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Organization DBA Rise Above Paralysis Inc
Former Names Greater Boston Chapter, National Spinal Cord Injury Association (2017)
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

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Mission StatementMORE »

The mission of the Greater Boston Chapter of the National Spinal Cord Injury Association is to RISE Above Paralysis:

Reach individuals and families affected by spinal cord injury and disease

Inspire the newly injured through role models and peer mentors

Support individuals and families as they begin their post injury journeys

Empower individuals with spinal cord injury/disease to reach their goals and dreams

Mission Statement

The mission of the Greater Boston Chapter of the National Spinal Cord Injury Association is to RISE Above Paralysis:

Reach individuals and families affected by spinal cord injury and disease

Inspire the newly injured through role models and peer mentors

Support individuals and families as they begin their post injury journeys

Empower individuals with spinal cord injury/disease to reach their goals and dreams


FinancialsMORE »

Fiscal Year July 01, 2017 to June 30, 2017
Projected Income $84,753.00
Projected Expense $150,433.00

ProgramsMORE »

  • Peer Mentoring and Resources to support and enhance the lives of those affected by life altering spinal cord injuries with a focus on the underserved

Revenue vs. Expense ($000s)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

The mission of the Greater Boston Chapter of the National Spinal Cord Injury Association is to RISE Above Paralysis:

Reach individuals and families affected by spinal cord injury and disease

Inspire the newly injured through role models and peer mentors

Support individuals and families as they begin their post injury journeys

Empower individuals with spinal cord injury/disease to reach their goals and dreams


Background Statement

The Greater Boston Chapter, United Spinal Association was founded in 1992 to assist individuals and family members affected by a spinal cord injury (SCI). Each year, nearly 300 individuals in Massachusetts suffer an SCI. It can happen to anyone at anytime. It is both physically and emotionally devastating to the individual, family members and loved ones. Most individuals lose all or partial sensation in their lower extremities and in many cases their upper extremities as well. They are paralyzed, unable to walk again, use a wheelchair for mobility and frequently rely on others for their daily care. Additionally, the financial impact can be substantial with the high costs of medical care, equipment, accessible vans and often changes in employment. This throws an individual’s life into turmoil, and leads to the question, "Why me, what is my life now worth, and how will I recover?”

Our organizations's nationally recognized Peer Mentoring Program offers positive role models and hope to individuals with an SCI. This process begins while the patient is in the rehabilitation hospital. Our peer mentor specialists meet with the newly injured and their loved ones to offer support and empathy in the form of vital information, resources, advocacy and education. In addition, we match the newly injured with an individual of similar injury level, age and/or ethnicity. These volunteer peer mentors also meet with the newly injured and their families in the hospital. Once discharged, our peer mentors continue to follow individuals as they transition back into their lives and into their communities. Moreover, the Chapter receives over 200 phone calls and emails for assistance from those living with a chronic SCI and from area hospital social workers/case mangers/physical therapists/ occupational therapists. We also have established a innovative position, Outreach Advocate, to assist the under-served, vulnerable members of the SCI community.

Today, over 25 years after the Chapter was founded, we have  5 part time staff, over 20 volunteers, a nationally recognized peer support program and two offices – one at New England Rehabilitation in Woburn, MA and one at Spaulding Rehabilitation Hospital (SRH) in Charlestown, MA. At SRH, our staff members are fully embedded in the patient’s care team, working directly with physicians, therapists and nurses to treat the “whole patient.” We are a part of the SRH bi-weekly education class and hold a community support groups for the community and one specifically for family members. We also offer peer support and advocacy to individuals in surrounding rehabilitation hospitals and nursing homes, and a durable medical equipment grant opportunity B2B grant.

We foster an “anything is possible” attitude and work to enable individuals to follow their dreams and fulfill their goals.

We have never charged for our services. We rely on donors, sponsors and grants.

 


Impact Statement

In 2016, the GBC worked with over 500 people affected by a new or chronic spinal cord injury (SCI). We offer understanding, vital information, resources, advocacy and education for those facing this life altering injury.
 
Our significant accomplishments were:
  • Over 1,000 peer mentor connections with members of the spinal cord injury community.
  • Over 500 hours by our volunteers
  • Approximately 100 connections to serve the vulnerable SCI community in the Boston area. Under-served individuals with an SCI face multiple obstacles to a high quality of life, including lack of healthcare, domestic violence and homelessness. They are at risk of becoming lost in the system.

The goals for 2017-2018 are:

 
 
  • Continue to advocate for and serve those in the greater Boston area SCI community and beyond. 
  • Become a widely known resource in the underserved/vulnerable SCI community.
  • Trail an Enhanced Peer Mentor Program to engage the newly injured earlier in their acute rehabilitation hospital stay. This will be a pro-active program vs. the traditional referral based peer mentor program.
  • Secure grants and philanthropic funds to allow our programs, which are offered free of charge, to continue.

Needs Statement

For over 25 years, we, the Greater Boston Chapter, have never charged for our services. We rely on grants, donors and sponsors to support our programs and operations. We are a small organization serving a community which is largely unknown to the general population. As a result, we rely on a limited number of sources for funding. Several of these sources are state-based and facing their own challenging times, resulting in a decrease in income for our organization over the last few years. Thus, our most pressing need is sustainability of the program through fundraising efforts. This includes the Peer Mentor role model Programs for the newly injured, their family and community members which costs $ 20,000 per year. Additionally, we would like to continue to respond to the unique needs of the Greater Boston area SCI community with innovative programming, such as the newly added Outreach Advocate position, which costs $10,000 per year. Lastly, we recently hired a part-time fundraising expert who focuses on sustainability and growth of the organization financially, estimated at $40,000 per year and a Chapter Coordinator who manages the Peer Mentor Programs and the day to day operations of the organization at a cost of $25,000.


CEO Statement

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Board Chair Statement

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Geographic Area Served

In a specific U.S. city, cities, state(s) and/or region.
GREATER BOSTON REGION, MA
STATEWIDE
We primarily serve those in the greater Boston area. Furthermore, with an office at SRH, we can be asked to serve Spaulding Rehabilitation Hospital in-patients from areas around New England and other states.

Organization Categories

  1. Human Services - Alliances & Advocacy
  2. Civil Rights, Social Action, Advocacy - Disabled Persons' Rights
  3. Human Services - Centers to Support the Independence of Specific Populations

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

No

Programs

Peer Mentoring and Resources to support and enhance the lives of those affected by life altering spinal cord injuries with a focus on the underserved

Our focus is Peer Mentoring for all those affected by a spinal cord injury (SCI), including family members and loved ones. We offer positive role models who have understanding, empathy, and vital information. We also offer education about social and attitudinal adjustments, life skills, resources, and advocacy.

· Early Intervention: GBC Early Intervention Peer staff meets one on one with the newly injured, their families and loved ones. This process begins while the patient is still in the rehabilitation hospital. At SRH, the GBC meets each week with SRH team leaders to discuss patient needs for peer support. We also connect the individual with a peer visitor, matched for similar injury level, age and/or ethnicity. The Peer Visitor volunteer meets with the individual while they are still inpatient.

· Peer Visitation: GBC staff and volunteers stay connected with the newly injured and their families after discharge. Peer Visitors continue to work with the individual back in the community to help them adjust to a new way of life. This connection provides the most important link to living successfully with an SCI.

· Outreach Advocate: The Outreach Advocate works with area healthcare facilities, community living centers, and other service providers to identify and work with at risk, vulnerable individuals in the SCI community. These individuals face multiple obstacles to a high quality of life, including lack of healthcare, domestic violence and homelessness. This position was developed to help prevent these people from falling through the cracks and becoming lost in the system.

· Support Groups: Community support groups are held at: SRH - Boston each Thursday; SRH - Cape Cod each month; Berkshire Medical Center each month and SRH – Boston for family members every three months.

· SCI Educational Series: The GBC is included in SRH’s bi-weekly inpatient educational series for the newly injured.

· Communications: We respond to phone and email inquiries within 24 hours and provide educational, research, social and recreational information on Facebook, through our website and in email newsletters.

Budget  $100,000.00
Category  Human Services, General/Other Services for Individuals with Disabilities
Population Served People/Families with of People with Disabilities At-Risk Populations
Program Short-Term Success  Our success will be determined by an increase in the number of individuals we serve annually. Our short term focus includes a greater reach into the SCI community and specifically, the underserved, vulnerable population. We anticipate a 25% increase in the year ahead in visits either face to face in the community, and/or, through phone calls and emails. Moreover, by strengthening and building collaborative relationships with rehabilitation care providers at all levels, we can help meet the critical service access gap that exists for those from underserved groups to improve both the health care outcomes and overall quality of life. We would like to see a 15% increase in collaborative partnerships in the next year. Ultimate success would be indicated by downward trends in annual state data of self reported access issues for people with physical disabilities compared to people with no disability, particularly by race/ethnicity and other vulnerable characteristics.
Program Long-Term Success  Ultimately, we would like to see all those affected by SCI living a fulfilling life that increases their health and self worth. This would be achieved by citizen reports of increased access to SCI healthcare and to programs for those with disabilities, including housing, transportation, community accessibility and employment. The GBC plays an important role in achieving this by assisting individuals with SCI during their initial transition after an accident and continues to offer valuable information and resources so individuals can live life to the fullest.
Program Success Monitored By 

Our Customer Relations Management (CRM) program, DonorPro, is used to measure and track many of our successes. We are able to prepare reports on a variety of metrics including: number of peer visits, number of inpatients visited, number of emails and phone calls for assistance, source of emails and calls, number of visits at other locations, phone calls and emails to recently discharged patients, topics discussed on visits and more.

We also gain information from individuals who we mentor, staff who make referrals and the SCI and healthcare communities who call for services.
Examples of Program Success 
A few stories to share:

· It started, as many inquiries do, as an email in the Executive Director’s Inbox. A woman’s brother.....he had a spinal cord injury 18 months ago and became a quadriplegic. He has been in a bed, lying on his back, in a nursing home, ever since. Lost in the system - can we help? Yes. Her brother was matched with one of our peer visitors of a similar injury level. He helped them identify the obstacles they were facing and put together an action plan for advocacy, rehabilitation and recovery. Within 9 months, he received the health care he needed and was well on his way to fulfilling his dream of living independently in his own apartment.

· “How will I be happy again?” is a question that Steve often faced, alone, at night, as he lay in his bed, his body motionless. “There is so much I can’t do ever again. I will never be able to walk or run, and I will always be dependent on others”.

One of our peer volunteers, Mark, changed all that for Steve. What started out as a voice of encouragement, became a friendship. Mark and Steve stayed in touch after Steve’s discharge. However, Steve remained in the “I can’t do it” mode. Mark, determined to show him all he could do, invited Steve to stay at his home for a three-day, two-night boot camp.
 
Continued below ...

CEO/Executive Director/Board Comments

Examples of Program Success Continued:
 
“Mark helped me change my attitude. Mark had me cook dinner. He showed me how, as a person in a wheelchair, to safely move a pot of boiling water from the stove to the sink,” Steve said.

Questions abounded for Steve: “I cannot go outside in the winter. What happens if my wheelchair breaks down in a snowy parking lot? Who will help me?” “You will” Mark explained. “This is what to do, how to do it and the tools to have in your pack for those times when it will inevitably break down.” All these life skill lessons lead to independence for Steve.

“Mark inspired me to not give up. He taught me how to problem solve and think ahead. I can do anything if I set my mind to it and simply figure out how to do it. Today, I am finishing college and preparing to apply to medical school,” says Steve. “I have fun playing sled hockey and adaptive skiing. All things I never imagined during those dark nights.”
 

Management


CEO/Executive Director . Elizabeth Marshall Weaver
CEO Term Start Oct 2013
CEO Email [email protected]
CEO Experience --
Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
David Estrada Oct 2005 Oct 2013
Ellen Philbin July 2003 Sept 2005

Senior Staff

Name Title Experience/Biography
-- -- --

Awards

Award Awarding Organization Year
-- -- --

Affiliations

Affiliation Year
Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter --
Member of state association of nonprofits? No
Name of state association --

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

Spaudling Rehabilation Hospital
New England Rehabilitation Hospital
New England Regional Spinal Cord Injury Model System
Spaulding-Harvard Spinal Cord Injury Model System
Braintree Rehabilitation Hospital
Mercy Hospital
Whittier Rehabilitation Hospitals
Mass. Rehabilitaton Commission
Ride Away Accessable Vans
Numerous Chapters, NSCIA
Adaptive Sports Organizations
Case Managers from numerous insurance companies, skilled nursing hospitals

CEO/Executive Director/Board Comments

We are proud to say that the GBC staff and volunteers are all intimately involved with a spinal cord injury. They are either living with one or have been affected by a family member. They are working to "give back" all that was given to them at a critical time in their lives.

Foundation Comments

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Staff Information

Number of Full Time Staff 1
Number of Part Time Staff 5
Number of Volunteers 20
Number of Contract Staff 0
Staff Retention Rate % 100%

Staff Demographics

Ethnicity African American/Black: 1
Asian American/Pacific Islander: 0
Caucasian: 5
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 2
Male: 4
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Under Development
Organization has Strategic Plan? No
Years Strategic Plan Considers --
Management Succession Plan No
Business Continuity of Operations Plan No
Organization Policies And Procedures Yes
Nondiscrimination Policy Yes
Whistle Blower Policy No
Document Destruction Policy --
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit --
State Registration --

Risk Management Provisions

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Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency Yes Bi-Annually
Senior Management Formal Evaluation and Frequency N/A N/A
Non Management Formal Evaluation and Frequency Yes Semi-Annually

Governance


Board Chair . Douglas Frey
Board Chair Company Affiliation Community Volunteer
Board Chair Term July 2011 - July 2014
Board Co-Chair --
Board Co-Chair Company Affiliation --
Board Co-Chair Term -

Board Members

Name Company Affiliations Status
Mr. Laurence J. Brennan Massachusetts General Hospital Voting
Midge A. Dawicki President, North Shore and Cape Ann Independant Living Center, Secretary, Saugus Disability commission Voting
Chris P. Diehl Spaulding Rehabilitation Hospital Network Voting
David Estrada J.D. City of Boston Police Department, Boston Athletic Assoc., Spaulding Rehabilitation Hospital Voting
Douglas Frey Community Volunteer Voting
Ms. Bethlyn Vergo Houlihan New England Regional SCI Center, Health & Disability Research Inst., Boston University School of Public Health Voting
Dr. John Lowry Spaulding Rehabilitation Hospital Voting
Commissioner Kristen McCosh City of Boston Mayor's Commission for Persons with Disabilities Voting
Tom Parlon Community Volunteer Voting
Ellen K Philbin Executive Director, Cambridge Retirement System Voting
Jane Wiebicky United Spinal Association Voting

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
-- -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 11
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 5
Male: 6
Not Specified 0

Board Information

Board Term Lengths 3
Board Term Limits --
Board Meeting Attendance % --
Written Board Selection Criteria Yes
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 90%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation Yes

Standing Committees

  • Board Development / Board Orientation
  • Finance
  • Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)

CEO/Executive Director/Board Comments

The Greater Boston Chapter, NSCIA, Board of Directors is comprised of 11 members; 4, or 36% of whom, are living with a spinal cord injury. Many of them also volunteer as peer mentors who advocate for the newly injured and those living in the SCI community.

Foundation Comments

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Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Fiscal Year July 01, 2017 to June 30, 2017
Projected Income $84,753.00
Projected Expense $150,433.00
Form 990s

2016 990

2015 990

2014 990

2013 990

2012 990

2011 990

Audit Documents

2016 Review

2015 Review

2014 Review

2013 Review

2012 Review

2011 Review

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2016 2015 2014
Total Revenue $182,301 $125,185 $154,078
Total Expenses $176,340 $169,609 $156,195

Prior Three Years Revenue Sources

Fiscal Year 2016 2015 2014
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $122,400 $72,450 $97,264
Indirect Public Support -- -- --
Earned Revenue -- -- --
Investment Income, Net of Losses $1,978 $434 $447
Membership Dues -- -- --
Special Events $23,047 $23,520 $33,125
Revenue In-Kind $34,876 $28,781 $23,242
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2016 2015 2014
Program Expense $103,663 $111,849 $91,496
Administration Expense $25,497 $20,912 $21,099
Fundraising Expense $47,180 $36,848 $43,600
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.03 0.74 0.99
Program Expense/Total Expenses 59% 66% 59%
Fundraising Expense/Contributed Revenue 32% 38% 33%

Prior Three Years Assets and Liabilities

Fiscal Year 2016 2015 2014
Total Assets $482,733 $479,490 $522,058
Current Assets $482,328 $478,975 $522,058
Long-Term Liabilities $0 $0 $0
Current Liabilities $3,384 $6,102 $4,246
Total Net Assets $479,349 $473,388 $517,812

Prior Three Years Top Three Funding Sources

Fiscal Year 2016 2015 2014
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value --
Spending Policy N/A
Percentage(If selected) --
Credit Line No
Reserve Fund Yes
How many months does reserve cover? 36.00

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? --

Short Term Solvency

Fiscal Year 2016 2015 2014
Current Ratio: Current Assets/Current Liabilities 142.53 78.49 122.95

Long Term Solvency

Fiscal Year 2016 2015 2014
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

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Foundation Comments

Financial summary data in charts and graphs are per the organization's reviewed financials. Contributions from foundations and corporations are listed under individuals when the breakout was not available.

Documents


Other Documents

No Other Documents currently available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

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2. What are your strategies for making this happen?

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3. What are your organization’s capabilities for doing this?

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4. How will your organization know if you are making progress?

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5. What have and haven’t you accomplished so far?

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