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Lucys Love Bus Charitable Trust

 89 South Street, Suite LL02
 Boston, MA 02111
[P] (857) 277-1984 x 3
[F] (857) 277-1807
www.LucysLoveBus.org
[email protected]
Beecher Grogan
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INCORPORATED: 2006
 Printable Profile (Summary / Full)
EIN 20-4036256

LAST UPDATED: 05/01/2019
Organization DBA Lucy's Love Bus
Former Names --
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

Mission StatementMORE »

The mission of Lucy's Love Bus is to improve quality of life for children with cancer and life-threatening illness, to support their families, and to mobilize the next generation of cancer activists.

Mission Statement

The mission of Lucy's Love Bus is to improve quality of life for children with cancer and life-threatening illness, to support their families, and to mobilize the next generation of cancer activists.

FinancialsMORE »

Fiscal Year Jan 01, 2019 to Dec 31, 2019
Projected Income $436,000.00
Projected Expense $435,000.00

ProgramsMORE »

  • Lucy's Children™ Integrative Therapies Program
  • Lucy's LoveSquad™
  • The Healing Room™
  • The Sajni Center

Revenue vs. Expense ($000s)

Expense Breakdown 2017 (%)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

The mission of Lucy's Love Bus is to improve quality of life for children with cancer and life-threatening illness, to support their families, and to mobilize the next generation of cancer activists.

Background Statement

Our organization was founded by 11-year-old Lucy Grogan, who was diagnosed with leukemia in July of 2002. During four years of cancer treatment, Lucy found relief from intense pain and anxiety through integrative therapies such as massage, Reiki, meditation, acupuncture, music therapy, and therapeutic horseback riding. Lucy was distressed to learn that integrative therapies were not covered by insurance, and were therefore not accessible to her peers in the hospital. She decided that when she was “done” with cancer, she would make sure that sick children could have access to free integrative therapies to manage the debilitating side effects of traditional treatments. In January of 2006 we launched Lucy’s Love Bus from Lucy’s hospital room at Floating Hospital for Children in Boston. Unfortunately, Lucy did not survive her ordeal with cancer, but her beautiful dream did.

Since 2006, Lucy’s Love Bus has helped over 1,500 children, primarily in Massachusetts and the New England region, by providing integrative therapies in hospitals, homes, and hospices. The Healing Room™ (hospital-based) and Lucy’s Children™ (home and hospice-based) programs empower families by helping them participate in their own child’s healing, while delivering the joy, comfort, and stability that belong in every childhood.

In February 2018, LLB began offering pilot programs at our new Sajni Center: a healing space for children with cancer or life-threatening illness and their families to gather, learn, and thrive together. The Sajni Center was created in direct response to the many requests expressed by families over the years for a place where they could come for support, and to connect with others who are facing similar circumstances. Programs are offered on weekends, in our fully accessible center, in Amesbury, Massachusetts. All of our programs are available to sick children's siblings and their parents/primary caregivers, as we believe in a whole-family approach to wellness.


Impact Statement

Top accomplishments in 2018:
1. Held an Open House on January 27th, 2018, inviting our Love Bus families and members of the local community to come celebrate the official opening of The Sajni Center and the launch of programs in February. The Open House was advertised in several news outlets, and drew over 200 attendees.
2. Designed and launched 14 monthly programs for children and families coping with cancer and life-threatening illness.
3. Recruited over 150 individuals to participate in programs at The Sajni Center.
4. Continued to expand The Healing Room™ program, adding acupuncture and meditation offerings at Tufts Floating Hospital for Children, developed a new relationship and upcoming acupuncture program at Hasbro Children's Hospital in Rhode Island, and continued with music therapy and massage partnerships at Floating Hospital for Children, Baystate Medical Center, and UVM Children's Hospital, delivering in-hospital integrative therapies to pediatric patients in the hospital setting.
5. Connected 75 new pediatric oncology patients to integrative therapies in or near their homes through the Lucy's Children™program, and continued to support over 150 other children with cancer with funding to continue with their integrative therapies funded by Lucy's Love Bus. 
 
Top Goals for 2019
1. Continue success of hospital-based integrative therapy programs at three partner hospitals and launch fourth program at Hasbro Children's Hospital
2. Recruit 75 new families of children with life-threatening illness to attend programs at The Sajni Center
3. Hire a full-time Development Director midyear to further improve Lucy's Love Bus sustainability initiatives through corporate partnerships and individual giving initiatives 
 
 
 

Needs Statement

1.  Funding for our programs
2.  Research partners to measure the impact of integrative therapies on quality of life for childhood cancer patients
3.  Ambassadors and fundraising partners throughout New England
4.  Volunteers to help with PR and marketing
5.  Funding to aid in the hiring of a Development Director

CEO Statement

Lucy named her organization Lucy's Love Bus, because she wanted to deliver love, comfort and quality of life to children with cancer. She felt that cure was very important, but recognized that no one was addressing the immediate suffering that she and her friends faced every day. Lucy's primary concern was to deliver comfort... until a cure. Lucy passed away only six months later, but her legacy of care and compassion live on through Lucy's Love Bus.

Board Chair Statement

Of the five billion government dollars allocated to cancer research every year in the United States, only 3.8% is directed to childhood cancers. The harsh reality is that most pediatric cancer protocols are still highly experimental and toxic in nature because the incidence rate of childhood cancers do not offset the enormous cost of developing new drugs. Since the 1990s, only two drugs have been developed that were designed specifically for childhood cancers. At this rate, real advances in the fight against childhood cancer will be a long time coming. LLB recognizes the tragic implications of these facts, and offers comfort and quality of life to children with cancer until there is a cure.

 

 

 


Geographic Area Served

STATEWIDE
The majority of our patients live in and are being treated in Massachusetts or southern New Hampshire. We offer support to children in all six New England states through our Lucy's Children™ program which pays for integrative therapies, and to patients treated at our partner hospitals where weekly integrative therapies are offered through The Healing Room™ program. 

Organization Categories

  1. Health Care - Health Support
  2. Youth Development - Youth Development Programs
  3. Education - Alliances & Advocacy

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

No

Programs

Lucy's Children™ Integrative Therapies Program

The flagship program of Lucy's Love Bus is to deliver comfort and quality of life to pediatric oncology patients and children coping with late effects of cancer treatment.  After completing our paperwork, and choosing the type of integrative therapy/ies that would be most helpful (ie: massage, acupuncture, nutritional counseling, chiropractic care, art/music/dance therapy, therapeutic horseback riding), each child is matched with a partnering practitioner who has been screened by our staff. We automatically award $1,000 in funding to each child.  We pay our partnering practitioners directly so that the family does not incur any out of pocket expenses. We collect surveys from our patients to help gauge the effectiveness of the services we provide and to ensure quality of care.  When a child is on hospice or has extreme circumstances that require extra support, we increase the level of funding to meet the needs of the child.
Budget  75,000
Category  Health Care, General/Other Alternative Health Care
Population Served Children and Youth (0 - 19 years) Hispanic, Latino Heritage Immigrant, Newcomers, Refugees
Program Short-Term Success  In the short term, we aim to be able to offer $1,000 grants to every child who needs our support.  We anticipate that our survey results will continue to show a very high success rate, with over 95% of our patients reporting a decrease in pain and anxiety levels after an integrative therapy treatment.
Program Long-Term Success  It is our goal to provide integrative therapies for all children facing life threatening illness until integrative therapies are covered by health insurance. We lobby for survivorship programs and research dollars to support childhood cancer survivors, funding for childhood cancer research, and legislation that will encourage drug companies to develop new drugs that are targeted toward childhood cancers. We plan to partner with a research organization that will capture the experience of our patients to add their voices to the scientific research that will one day validate the need to balance traditional cancer treatments with more gentle therapies.
Program Success Monitored By  Our integrative therapy program is working wonders every day in our community. Our parents and children consistently report decreases in pain and anxiety, increases in appetite and overall well being, increased strength and improved muscle tone, and significant reduction in stress and anxiety that are brought about by life threatening illness. Our patients love going to get their integrative treatments and are empowered by the experience. We collect data both from practitioners notes and from surveys that the children fill out themselves at their appointments before and after treatment. 
Examples of Program Success 

"For the duration of her (therapeutic horseback riding) lesson, Sophie is the hero, and while the physical benefits of her therapeutic riding are strongly evident by her increased muscle and neck control, core strength, fine and gross motor skills, one cannot deny that the Victory is one of the Spirit."

 Thank you Lucy's Love Bus!

Julia Pettengill and Family

Lucy's LoveSquad™

Lucy's LoveSquad™ is our youth engagement program that introduces young people to philanthropy, activism and leadership. Our Director presents Lucy's inspiring story to students at elementary, middle, and high schools. Schools or individual classrooms are often partnered with a child through Lucy's Love Bus (their "Butterfly Buddy"), and raise funds in honor of that child. Our Director is dedicated to empowering youth and devotes quite a bit of her time and attention to our young ambassadors. For schools outside of New England, she uses technology to connect young people to the mission of Lucy's Love Bus. Students are invited to write notes of encouragement to their partner patient, which deepens the student experience.  

 

Budget  $15,000.00
Category  Youth Development, General/Other Youth Leadership
Population Served Adolescents Only (13-19 years) Children Only (5 - 14 years) Poor,Economically Disadvantaged,Indigent
Program Short-Term Success  This year we have a short term goal for the students to raise $20,000 in honor of 20 children with cancer. The program participants are very motivated and understand the urgency and importance of their work at Lucy's Love Bus. Many of these schools have chosen to run this program for several years in a row.
Program Long-Term Success  This program allows Lucy's Love Bus to raise funds and awareness in a new and exciting way. The long term success will be when we have several Lucy's LoveSquad™ programs in many local communities.
Program Success Monitored By  We evaluate the program success by gathering evaluations from our facilitators at the end of each fundraising cycle. At the end of the program, we conduct surveys with each school to hear what the students (and teachers) learned, how effective the program was, how engaged the students were, and any suggestions to how we can make improvements. We then reevaluate our program and make changes as needed before our next session begins.
Examples of Program Success  The most compelling evidence of the success of Lucy's LoveSquad™ that we have to date is the overwhelmingly positive response of each student group to our presentation. Each group we have presented to has enthusiastically agreed to get involved, and deeply engaged in the experience of becoming activists and philanthropists. 

The Healing Room™

The Healing Room™ is our hospital-based program, bringing a wide variety of integrative therapies to children and families in three New England hospitals. Our qualified and vetted practitioners deliver comfort to patients in the hospital, right when and where they need it most. Practitioners deliver weekly sessions for an average of two hours, and offer different modalities on different days so that all children and families have the opportunity to take advantage of the program. Yoga, massage, and music therapy are offered in group and individual sessions at UVM Children's Hospital in Burlington, VT; massage, music therapy, meditation, and acupuncture are offered at Floating Hospital for Children in Boston, MA; massage is offered at Baystate Medical Center in Springfield, MA; and we are launching a new acupuncture program at Hasbro Children's Hospital in Providence, RI. Lucy's Love Bus also created and ran the in-hospital integrative therapy program at Barbara Bush Children's Hospital in Portland, ME from 2014-2018 before the hospital secured funding to continue with their own program upon seeing the success of the offerings from Lucy's Love Bus.
Budget  $71,000.00
Category  Health Care, General/Other Inpatient/Hospital Care
Population Served People/Families of People with Cancer Children and Youth (0 - 19 years)
Program Short-Term Success  Our goal is to have at least 100 children at each hospital access at least one of the weekly integrative therapy offerings each year, and connect with at least 15 children from each hospital who qualify for additional individual funding through our Lucy's Children™ program and 20 local families of children with life-threatening illness to join programs at The Sajni Center in Amesbury, MA.
Program Long-Term Success  The aim of The Healing Room™ is to bring comfort to children in the hospital, and to allow them some fun and relief during a very stressful time. We hope to demonstrate the immense physical, mental, and spiritual benefits of integrative therapies, and encourage hospitals to secure their own funding to continue these vital programs. We launch each program with the pledge that we will fund three years of integrative therapy programs, and then work with the hospital staff over those three years to ensure the program can continue at the end of our proposed commitment, either through full transition of ownership to the hospital or through a continued relationship with Lucy's Love Bus with a cost-sharing partnership.
Program Success Monitored By  We collect attendance forms from the practitioners after each sessions, recording the number of patients they worked with (oncology and other diagnoses, in a group vs. individual sessions) as well as testimonials from patients, families, and medical staff as to the successes of the program.
Examples of Program Success 
From our music therapist at Floating: "A four year old boy I've seen often but only worked with a few times was very enthusiastic and interested in doing music today, particularly when he saw the xylophone. Then he decided he wanted to play music until his doctor came in, so that the doctor could hear the music he was making."
 
 From our massage/yoga therapist at UVM: "I received feedback from last weeks session that one of the patients I worked with had benefited from our time together. She is paraplegic and I had given her massage with Yogic/ Relaxation breath, which had reduced the amount of stress she had been experiencing from her extended hospitalization."

The Sajni Center

The Sajni Center is a space of hope and healing for children with cancer or life-threatening illness and their families. Located in Amesbury, Massachusetts, one hour north of Boston, MA, The Sajni Center offers a place for families of children who have or had a child with life-threatening illness to gather, grow, and grieve together. The Sajni Center was created in direct response to the many requests expressed by families over the years for a place where they could come for support, and to connect with others who are facing similar circumstances. Programs are offered on weekends, and all children’s programs are offered to sick children and their siblings, a group often excluded from the support structures in place at health care institutions.
 
Programs at The Sajni Center are open to families, regardless of income, who have children from birth to age 21 who have a life-threatening illness or chronic physical health condition not developmental in nature that affects a child's daily life or requires more frequent and intensive medical care than is typically required. Some of these diagnoses include: cancer, cystic fibrosis, sickle cell, epilepsy, diabetes, asthma, spina bifida, heart conditions, and severe depression. Siblings and parents/legal guardians are welcome to join programs, and childcare will be available on-site if needed during parent-oriented programs.  
Budget  50,000
Category  Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer People/Families of People with Health Conditions Children and Youth (0 - 19 years)
Program Short-Term Success  In the first year of programming at The Sajni Center, over 100 individuals attended programs between February and December 2018. In 2019, Lucy's Love Bus would like to recruit 50 new families to join programs, and hopes to continue to see many of these families return to several programs each month, as was common at the end of 2018.
Program Long-Term Success  Long-term success will be evident in the continued positive feedback from attendees, and hearing that these families have become empowered through workshops and trainings in a wide variety of integrative modalities, including teaching parents how to safely incorporate yoga, Reiki, music, meditation, essential oils, and massage at home, impacting our families well beyond our time together at The Sajni Center.
Program Success Monitored By  --
Examples of Program Success 

Since opening in early 2018, The Sajni Center programs have been attended by over 150 individuals at an average of six scheduled programs each month. A local mother of a nine-month-old boy with neuroblastoma and his five-year-old sister shared, “LLB has helped [my daughter] find a place in this whole mess of her brother being diagnosed. I’m so grateful for your events and for connecting her with activities so she can feel like a priority, too!”


CEO/Executive Director/Board Comments

Our biggest challenge is fundraising to meet the rapidly growing demand for our services. We are building a diverse fundraising strategy that will allow us to draw support from a wide range of supporters, including youth, individuals, business owners, corporations, pharmaceutical companies, hospitals and national organizations such as the NCCAOM. 

Management


CEO/Executive Director Ms. C. Beecher Grogan
CEO Term Start Jan 2006
CEO Email [email protected]
CEO Experience

Recent achievements

  • Co-founded Lucy’s Love Bus Charitable Trust in 2006, to deliver comfort and quality of life to children with cancer through free integrative therapies
  • Wrote essay which was included in Twelve Breathes a Minute: End of life essays (Lee Gutkind, ed. published in 2011 by SMU Press and the Creative Nonfiction Foundation)
  • Authored and self-published a children’s book called A Lion Inside, for children undergoing cancer treatment, released October of 2014
  • Selected as one of the 2012 Massachusetts General Hospital Cancer Center’s ‘The One Hundred’ honoring 100 individuals and groups whose diligence and discoveries, philanthropy and passion have helped advance the fight against cancer
  • Chosen as recipient for the 2018 "Heroes Among Us" Award by the Boston Celtics

Experience
Co-Founder & Executive Director
Lucy’s Love Bus Charitable Trust, 2006- present
Senior Program Manager Interise, 2008- 2013
Owner Lucy Starling Family Photography 1996-2006
Founder & Manager Amesbury Farmers’ Market 1999-2002

Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
-- -- --

Senior Staff

Name Title Experience/Biography
Ms. Jackie Walker Director of Programs and Marketing --

Awards

Award Awarding Organization Year
Heroes Among Us Boston Celtics 2018
the one hundred MGH 2012

Affiliations

Affiliation Year
Massachusetts Nonprofit Network 2011
Associated Grant Makers --
Member of state association of nonprofits? Yes
Name of state association Massachusetts Nonprofit Network

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

We strive to collaborate with every non-profit that serves our community. Some examples include: Kids Kicking Cancer, Care Dimensions, MaxLove Foundation, St. Baldrick's Foundation, Alex's Lemonade Stand, Jack's Magic Bean Fund, Ty Louis Campbell Foundation, Friends of Mel, Ironstone Farm,  Cops for Kids with Cancer, Our Space Rocks, Sy's Fund, Alex's Team, Golf Fights Cancer, and Talan's Angels.

CEO/Executive Director/Board Comments

--

Foundation Comments

--

Staff Information

Number of Full Time Staff 2
Number of Part Time Staff 1
Number of Volunteers 45
Number of Contract Staff 2
Staff Retention Rate % 100%

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 3
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 3
Male: 0
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Under Development
Organization has Strategic Plan? Under Development
Years Strategic Plan Considers --
Management Succession Plan Under Development
Business Continuity of Operations Plan No
Organization Policies And Procedures Under Development
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit Yes
State Registration Yes

Risk Management Provisions

--

Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency Yes Annually
Senior Management Formal Evaluation and Frequency Yes Annually
Non Management Formal Evaluation and Frequency Yes Annually

Governance


Board Chair Mrs. Jodi DiLbertis
Board Chair Company Affiliation Simmons School of Nursing
Board Chair Term Jan 2018 - Jan 2021
Board Co-Chair --
Board Co-Chair Company Affiliation --
Board Co-Chair Term -

Board Members

Name Company Affiliations Status
Mrs. Kelly Balestrieri Lockheed Martin Voting
Mr. Jeff Banville Fritz DeGuglielmo LLC Voting
Mrs. Jodi DeLibertis Simmons College of Nursing Voting
Mr. Robert Dolan Lowell Five Cent Savings Bank Voting
Ms. Beecher Grogan Lucy's Love Bus NonVoting
Mr. Mark Iannuccillo Newburyport Chamber of Commerce Voting
Mrs. Sarah Oleson Sarah Oleson Yoga Voting
Mr. David Remillard Boston Solar Voting
Mrs. Vanessa Ruget Salem State University Voting
Ms. Lani Shumway Converse Voting
Ms. Lisa Tirone Newburyport Five Cents Savings Bank Voting

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
Mrs. Stacey Geary Home Health VNA NonVoting

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 2
Caucasian: 9
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 7
Male: 4
Not Specified 0

Board Information

Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 90%
Written Board Selection Criteria Under Development
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 100%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation Yes

Standing Committees

  • Development / Fund Development / Fund Raising / Grant Writing / Major Gifts

CEO/Executive Director/Board Comments

In 2012 we introduced a 3-6 month "dating period" during which prospective Board members could get to know the mission, values, staff and current Board members at Lucy's Love Bus. Each candidate is asked to demonstrate their commitment to our cause by hosting their own fundraising event. This policy has produced a very strong Board with 12 highly active and engaged Board members. 

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2017 (%)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Fiscal Year Jan 01, 2019 to Dec 31, 2019
Projected Income $436,000.00
Projected Expense $435,000.00
Form 990s

2017 990

2016 990

2015 990

2014 990

2013 990

2012 990

2011 990ez

2010 990ez

2009 990ez

Audit Documents

2017 Audited Financials

2016 Audited Financials

2015 Audited Financials

2014 Reviewed Financials

2013 Reviewed Financials

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2017 2016 2015
Total Revenue $560,921 $311,931 $404,602
Total Expenses $377,635 $327,014 $279,231

Prior Three Years Revenue Sources

Fiscal Year 2017 2016 2015
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $424,549 $194,185 $332,215
Indirect Public Support -- -- --
Earned Revenue $5,693 $7,312 $-1,407
Investment Income, Net of Losses $40 $13 --
Membership Dues -- -- --
Special Events $130,589 $110,421 $73,794
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2017 2016 2015
Program Expense $279,537 $241,608 $181,169
Administration Expense $54,155 $43,161 $40,006
Fundraising Expense $43,943 $42,245 $58,056
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.49 0.95 1.45
Program Expense/Total Expenses 74% 74% 65%
Fundraising Expense/Contributed Revenue 8% 14% 14%

Prior Three Years Assets and Liabilities

Fiscal Year 2017 2016 2015
Total Assets $362,084 $170,848 $175,665
Current Assets $356,924 $166,478 $173,554
Long-Term Liabilities -- -- $0
Current Liabilities $80,462 $72,512 $62,246
Total Net Assets $281,622 $98,336 $113,419

Prior Three Years Top Three Funding Sources

Fiscal Year 2017 2016 2015
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value $0.00
Spending Policy N/A
Percentage(If selected) --
Credit Line Yes
Reserve Fund Yes
How many months does reserve cover? 3.00

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? --

Short Term Solvency

Fiscal Year 2017 2016 2015
Current Ratio: Current Assets/Current Liabilities 4.44 2.30 2.79

Long Term Solvency

Fiscal Year 2017 2016 2015
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

The Organization continues to strive and show strong economic health. The Organization posted a current ratio of 3.82 and positive net assets of approximately $238,000.

Foundation Comments

Financial summary data in charts and graphs are per the organization's IRS 990s. Contributions from foundations and corporations are listed under individuals when the breakout was not available.

Documents


Other Documents

No Other Documents currently available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

Our goal at Lucy's Love Bus is to provide integrative therapies for children with cancer (ages birth to 21) throughout New England until all children have affordable access to integrative therapies through hospital-based programs and insurance coverage. 
 
Long-term success will be reached when all hospitals serving childhood cancer patients offer a range of free or low-cost integrative therapies on their inpatient and outpatient units. 
 
We will know that we have been successful when we, or hospital-run programs are providing free or low-cost weekly integrative therapy services to all children coping with cancer and the late effects of cancer treatment.    

2. What are your strategies for making this happen?

We take a multi-pronged approach to delivering our mission and reaching our organizational goals. Right now we are building our presence and maximizing our impact by funding and supplying weekly yoga and music therapy programs for children who are staying at partner hospitals on an inpatient basis. We also have referral programs with pediatric oncology social workers at New England children's hospitals. These patients receive $1,000 grants that are used for the integrative therapies of their choice. It is necessary to provide these grants for individuals until we are able to ensure broad and affordable access to integrative therapies through inpatient and outpatient clinics. As hospitals continue to compete in non-medical arenas such as quality of life and patient experience, more will be driven to create their own palliative and integrative therapy programs. We aim to support this movement through research on the impact that integrative therapies have on improving comfort and quality of life for children with cancer. 

3. What are your organization’s capabilities for doing this?

Over the past ten years we have built strong relationships with social workers, physicians and parents at pediatric oncology hospitals throughout New England. We have also built a large network of partnering practitioners who have expertise in a full array of integrative therapies for children with cancer. As funding allows, and as we solidify and prove the value of our inpatient pilot programs, we will be able to offer weekly integrative therapy group services which help us significantly stretch our program dollars and impact a much higher number of children per session.
 
Our Executive Director is a powerful speaker and advocate for balancing traditional cancer treatment with integrative therapies. As our organization continues to be recognized as a leader in the safe and effective delivery of integrative therapies to the childhood cancer community, the process of starting new hospital-based programs will become easier. When hospitals see the difference our programs make in terms of quality of life and promoting positive patient experience, they will be more likely to help fund the programs that we provide.  
 
Several of our Board members have expertise in managing large companies and play an instrumental role in managing our growth and setting our strategy. We are especially strong at financial management which will help us manage our growth in a sustainable way.  
 
We are very collaborative in nature and are connected to many other non-profits in the childhood cancer community. We use these connections to help weave together support for our families, help us strategize for our community as a whole, and as thinking partners in creating real and lasting change in the world of childhood cancer. 

4. How will your organization know if you are making progress?

We will know we are making progress as the number of applications for our services increases, and as we are able to implement group integrative therapy programs in the hospital setting. 

5. What have and haven’t you accomplished so far?

We are making great strides in ensuring equal access to our services through targeted outreach to immigrant communities in our region. We have not yet translated our materials to multiple languages, but through grant funding, we continue to work toward this end.