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Lucys Love Bus Charitable Trust

 89 South Street, Suite LL02
 Boston, MA 02111
[P] (857) 277-1984
[F] (857) 277-1807
www.LucysLoveBus.org
beecher@lucyslovebus.org
Beecher Grogan
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INCORPORATED: 2006
 Printable Profile (Summary / Full)
EIN 20-4036256

LAST UPDATED: 09/10/2016
Organization DBA Lucy's Love Bus
Former Names --
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

Mission StatementMORE »

Lucy's Love Bus delivers comfort and quality of life to children with cancer through free integrative therapies such as massage, acupuncture, therapeutic horseback riding, meditation, and art/music/dance therapies; and offers young people lifelong lessons in activism and philanthropy through our Lucy's Kid Corps™ program. 

Mission Statement

Lucy's Love Bus delivers comfort and quality of life to children with cancer through free integrative therapies such as massage, acupuncture, therapeutic horseback riding, meditation, and art/music/dance therapies; and offers young people lifelong lessons in activism and philanthropy through our Lucy's Kid Corps™ program. 

FinancialsMORE »

Fiscal Year Jan 01, 2016 to Dec 31, 2016
Projected Income $400,000.00
Projected Expense $376,000.00

ProgramsMORE »

  • Lucy's Children™ Integrative Therapies Program
  • Lucy's KidCorps™ and Lucy's LoveSquad™
  • The Healing Room™

Revenue vs. Expense ($000s)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Expense Breakdown 2013 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

Lucy's Love Bus delivers comfort and quality of life to children with cancer through free integrative therapies such as massage, acupuncture, therapeutic horseback riding, meditation, and art/music/dance therapies; and offers young people lifelong lessons in activism and philanthropy through our Lucy's Kid Corps™ program. 

Background Statement

Lucy's Love Bus was founded by 11-year-old Lucy Grogan, six months before she died of cancer in 2006. Lucy derived significant relief from pain, anxiety and depression through acupuncture, massage, Reiki and therapeutic horseback riding. When she learned that other children were not able to use integrative therapies because they are rarely covered by health insurance, she told her mother that when she was "done" with cancer, she would work to ensure that all children would have access to the benefits of gentle integrative therapies. She understood and supported the need for a cure, but asked her mother, "What about us?" Lucy cared about the children for whom a cure might be too late- and for whom quality of life was the most pressing concern. Lucy did not survive her ordeal with cancer, but her dream did. Lucy’s Love Bus is a national program that covers the cost of integrative therapies for children with cancer and those who suffer from the late effects of cancer treatments. The goal of our organization is to deliver comfort to children with cancer, and to help educate the medical community surrounding the effectiveness of integrative therapies in balancing traditional cancer treatment protocols.

Lucy's Love Bus never gives up on the children we serve. When hospitals and insurance companies can no longer offer hope to a family fighting cancer, we stay by their side. When there is no longer medical hope for a cure, we help a family turn their focus from cure to comfort, and show families the power of the one thing they can control- which is quality of life. We provide comfort, relaxation, pain relief, and peace during a terrifying time for a child. We also strive to make the medical community aware of the many benefits of integrative therapies by collecting ongoing data from our patients and our therapists as they serve our children. 


Impact Statement

Top accomplishments in past year:
1. Supported 300 children with free integrative therapies
2. Published our new book for children with cancer called 'A Lion Inside'
3. Ran hospital-based group music therapy and yoga programs in 3 local hospitals in VT, ME, and MA
4. Offered our Lucy's Kid Corps™ program to over 1,000 children in MA, VT, and ME who in turn raised over $20,000 to support our work
 
Top Goals for 2016
1. Continue success of 3 hospital-based integrative therapy programs and seek funding to add pediatric oncology massage to in-patient offerings
2. Support 400 pediatric oncology patients by year end
3. Visit 15 middle and high schools with Lucy's KidCorps™
4. Hire a PT development staff member 
 
 
 

Needs Statement

1.  Funding for our programs- we always have between 20 and 30 children on our wait list, waiting for services.
2.  Research partners to measure the impact of integrative therapies on quality of life for childhood cancer patients
3.  Ambassadors and fundraising partners throughout New England
4.  Volunteers to help with PR and marketing
5.  Program staff 

CEO Statement

The mission and vision for Lucy's Love Bus was born in a hospital bed in Boston, and grew directly from the heart of an 11-year-old girl, who knew what sick children need most.  Lucy's Love Bus is a unique cancer organization in that our entire focus is on improving the comfort level and quality of life for very sick children. During Lucy's four years of treatment, we spent months on end in the hospital due to the toxicity of her chemotherapy regimen. We were at a premiere children's hospital, and were fortunate to have an excellent team of physicians and nurses who worked round the clock to preserve the quantity of my daughter's days.  However, Lucy and I also cared very deeply about something else that was often overlooked in the hospital setting, which was the quality of her days.  Lucy and I quickly learned that we had no say in whether or not she would survive, and began to focus on the part of her life that we could control, which was simply the quality of each and every day. 
 
Lucy was in excruciating pain after her bone marrow transplant. She was given powerful pain killers, yet often experienced break-through pain before she was allowed to have another dose. Lucy grew to depend on massage, acupuncture and Reiki to relieve the pain.  Hospitals are slowly starting to embrace these modalities, as they can greatly improve the patient experience. 
 
At Lucy's Love Bus, we are providing comfort... until the cure.
 
We ask our families to complete a brief survey midway through their grant allotment. When the results are compiled, they tell a deeply compelling story. According to our children, integrative therapies work. They report that massage helps reduce anxiety, decreases pain, elevates mood, and improves their general sense of calm and well being.  Our children report that acupuncture helps them feel calm, reduces nausea, increases their appetite and helps them sleep. Parents tell us that therapeutic horseback riding strengthens their child's core muscles, helps them walk again, and increases their confidence.
 
Our programs offer children choice about their treatment and empower them with therapies that actually help them feel better. Our brave children are living proof of the power of integrative therapies in cancer care. 

Board Chair Statement

I joined Lucy's Love Bus as a volunteer in 2011. The spirit and the mission of the organization were very compelling to me, but the main motivation for me was the fact that I met one of the patients who was benefiting from the services we provide. I became friends with the family and was able to join them at some of their therapeutic horseback riding lessons. I saw firsthand the impact of the work we are doing, and became deeply committed to our mission. Our founder, Lucy Grogan, was a visionary and I am very proud to be working to keep her dream alive.

We are a grass-roots organization and have raised the majority of our funds through smaller individual donations. We have a small, but determined staff and a very solid Board, with 12 highly active and engaged members. We are very efficient, and have streamlined our operations so that we are able to impact a large number of children with a very small office staff. 

Our biggest challenge right now is that we are a national organization functioning without a national infrastructure. We are the only organization in the United States providing integrative therapies to children on an inpatient and outpatient basis, on a national level. While it would have been easier to focus our efforts in Massachusetts, the need for our services is nationwide, and we decided early on that we would adhere to Lucy's vision of offering help to all children in the U.S. facing this insidious disease.

Because we are a national organization, we are often not eligible for local foundation funding, yet we are also too small to be eligible for larger, national foundation funding. 
 
We plan to bridge this gap by focusing our development efforts on individual and corporate fundraising until we are big enough to compete for larger foundation grants.  
 
Every year we experience a large increase in the number of applications we receive on a weekly basis. We are currently seeking funding to refine our data collection and analysis processes so that we can prove the impact of integrative therapies on quality of life for children with cancer. We recently reached out NIH's National Center for Complementary and Alternative Medicine (NCCAOM) to inquire about grant funding.
 
Of the five billion government dollars allocated to cancer research every year in the United States, only 3.8% is directed to childhood cancers. The harsh reality is that most pediatric cancer protocols are still highly experimental and toxic in nature because the incidence rate of childhood cancers do not offset the enormous cost of developing new drugs. Since the 1990s, only two drugs have been developed that were designed specifically for childhood cancers. At this rate, real advances in the fight against childhood cancer will be a long time coming. LLB recognizes the tragic implications of these facts, and offers comfort and quality of life to children with cancer until there is a cure.

 

 

 


Geographic Area Served

STATEWIDE
The majority of our patients live in and are being treated in Massachusetts; however, we offer support to children in all 6 New England states. We have a limited amount of funding available to children outside of New England who have relapsed or are transitioning to hospice care, whose need is most urgent.

Organization Categories

  1. Health Care - Health Support
  2. Youth Development - Youth Development Programs
  3. Education - Alliances & Advocacy

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

No

Programs

Lucy's Children™ Integrative Therapies Program

The primary program of Lucy's Love Bus is to deliver comfort and quality of life to pediatric oncology patients and children coping with late effects of cancer treatment.  After completing our paperwork, and choosing the type of integrative therapy/ies that would be most helpful (ie: massage, acupuncture, nutritional counseling, chiropractic care, art/music/dance therapy, therapeutic horseback riding), each child is matched with a partnering practitioner who has been screened by our staff. We automatically award $1,000 grants to each child.  We pay our partnering practitioners directly so that the family does not incur any out of pocket expenses. We collect surveys from our patients to help gauge the effectiveness of the services we provide and to ensure quality of care.  When a child is on hospice or has extreme circumstances that require extra support, we increase the level of funding to meet the needs of the child.
Budget  $200,000.00
Category  Health Care, General/Other Alternative Health Care
Population Served Children and Youth (0 - 19 years) Hispanic, Latino Heritage Immigrant, Newcomers, Refugees
Program Short-Term Success  In the short term, we aim to be able to offer $1,000 grants to every child who needs our support.  We anticipate that our survey results will continue to show a very high success rate, with over 90% of our patients reporting a decrease in pain and anxiety levels after an integrative therapy treatment.
Program Long-Term Success  It is our goal to provide integrative therapies for all children facing life threatening illness until integrative therapies are covered by health insurance.  We lobby for survivorship programs and research dollars to support childhood cancer survivors, funding for childhood cancer research, and legislation that will encourage drug companies to develop new drugs that are targeted toward childhood cancers.  We plan to partner with a research organization that will capture the experience of our patients to add their voices to the scientific research that will one day validate the need to balance traditional cancer treatments with more gentle therapies.
Program Success Monitored By  Our integrative therapy program is working wonders every day in our community.  Our parents and children consistently report decreases in pain and anxiety, increases in appetite and overall well being, increased strength and improved muscle tone, and significant reduction in stress and anxiety that are brought about by life threatening illness.  Our patients love going to get their integrative treatments and are empowered by the experience.We collect data both from practitioners notes and from surveys that the children fill out themselves at their appointments before and after treatment. 
Examples of Program Success 

For the duration of her (therapeutic horseback riding) lesson, Sophie is the hero, and while the physical benefits of her therapeutic riding are strongly evident by her increased muscle and neck control, core strength, fine and gross motor skills, one cannot deny that the Victory is one of the Spirit.

 

Thank you Lucy's Love Bus!

Julia Pettengill and Family

Lucy's KidCorps™ and Lucy's LoveSquad™

Lucy's KidCorps™(grades 4 to 8) and Lucy's LoveSquad™ (grades 9 to 12) are our youth engagement programs that introduce young people to philanthropy, activism and leadership. Our Director presents Lucy's inspiring story to students at elementary, middle, and high schools. Schools or individual classrooms are often partnered with a child through Lucy's Love Bus, and raise funds in honor of that child. Our Director is dedicated to empowering youth and devotes quite a bit of her time and attention to our young ambassadors. For schools outside of New England, she uses technology to connect young people to the mission of Lucy's Love Bus. Students are invited to write notes of encouragement to their partner patient, which deepens the student experience.  

 

Budget  $10,000.00
Category  Youth Development, General/Other Youth Leadership
Population Served Adolescents Only (13-19 years) Children Only (5 - 14 years) Poor,Economically Disadvantaged,Indigent
Program Short-Term Success  This year we have a short term goal for the students to raise $15,000 in honor of 15 children with cancer. The program participants are very motivated and understand the urgency and importance of their work at Lucy's Love Bus. We also hope that 100% of the schools we work with this year will run the program again next year, and that we will recruit an additional five middle and five high schools in Boston's underserved community to run the program next year as well.
Program Long-Term Success  This program allows Lucy's Love Bus to raise funds and awareness in a new and exciting way. The long term success will be when we have several Lucy's KidCorps™ and Lucy's LoveSquad™ programs in each state that we serve.  
Program Success Monitored By  We evaluate the program success by gathering evaluations from our facilitators at the end of each fundraising cycle. At the end of the program, we conduct surveys with each school to hear what the students (and teachers) learned, how effective the program was, how engaged the students were, and any suggestions to how we can make improvements. We then reevaluate our program and make changes as needed before our next session begins.
Examples of Program Success  The most compelling evidence of the success of Lucy's KidCorps™ that we have to date is the overwhelmingly positive response of each student group to our presentation. 

The Healing Room™

The Healing Room™ is our in-hospital integrative therapy program, bringing up to three types of therapies to children and families in three New England hospitals. Qualified and vetted practitioners deliver comfort to patients in the hospital, right when and where they need it. Practitioners hold one weekly session for an average of two hours, and offer different modalities on different days so that all children and families have the opportunity to take advantage of the program. Yoga, massage, and music therapy are offered in group and individual sessions at UVM Children's Hospital in Burlington, VT; massage and music therapy are offered at Floating Hospital for Children in Boston, MA; and yoga and music therapy are offered at Barbara Bush Children's Hospital in Portland, ME. 
Budget  $40,000.00
Category  Health Care, General/Other Inpatient/Hospital Care
Population Served People/Families of People with Cancer Children and Youth (0 - 19 years)
Program Short-Term Success  We hope to have at least 100 children at each hospital access at least one of the weekly integrative therapy offerings each year, and connect with at least 10 children from each hospital who qualify for additional individual funding through our Lucy's Children™ program.
Program Long-Term Success  The aim of The Healing Room™ is to bring comfort to children in the hospital, and to allow them some fun and relief while in a typically sterile environment. We hope to demonstrate the immense physical, mental, and spiritual benefits of integrative therapies, and encourage the hospital to fight to secure their own funding to continue these vital programs. We launch each program with the idea that we will fund three years of integrative therapy programs (as we can secure foundation funding) and then will work with the hospital staff over those three years to ensure the program can continue at the end of our proposed commitment. 
Program Success Monitored By  We collect attendance forms from the practitioners after each sessions, recording the number of patients they worked with (oncology and other diagnoses, in a group vs. individual sessions) as well as testimonials from patients, families, and medical staff as to the successes of the program.
Examples of Program Success 
From our music therapist at Floating: "A four year old boy I've seen often but only worked with a few times was very enthusiastic and interested in doing music today, particularly when he saw the xylophone. Then he decided he wanted to play music until his doctor came in, so that the doctor could hear the music he was making."
 
 From our massage/yoga therapist at UVM: "I received feedback from last weeks session that one of the patients I worked with had benefited from our time together . She is paraplegic and I had given her massage with Yogic/ Relaxation breath, which had reduced the amount of stress she had been experiencing from her extended hospitalization."

CEO/Executive Director/Board Comments

Our biggest challenge is fundraising to meet the rapidly growing demand for our services. We are building a diverse fundraising strategy that will allow us to draw support from a wide range of supporters, including youth, individuals, business owners, corporations, pharmaceutical companies, hospitals and national organizations such as the NCCAOM. 

Management


CEO/Executive Director Ms. C. Beecher Grogan
CEO Term Start Jan 2006
CEO Email beecher@lucyslovebus.org
CEO Experience --
Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
-- -- --

Senior Staff

Name Title Experience/Biography
Ms. Jackie Walker Director of Programs and Marketing --

Awards

Award Awarding Organization Year
the one hundred MGH 2012

Affiliations

Affiliation Year
Massachusetts Nonprofit Network 2011
Associated Grant Makers --
Member of state association of nonprofits? Yes
Name of state association --

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

We strive to collaborate with every non-profit that serves our community. Some examples include: Kids Kicking Cancer, Care Dimensions, MaxLove Foundation, St. Baldrick's Foundation, Alex's Lemonade Stand, Jack's Magic Bean Fund, Ty Louis Campbell Foundation, Friends of Mel, Ironstone Farm,  Cops for Kids with Cancer, Our Space Rocks, Sy's Fund, Alex's Team, Golf Fights Cancer, and Talan's Angels.

CEO/Executive Director/Board Comments

--

Foundation Comments

--

Staff Information

Number of Full Time Staff 2
Number of Part Time Staff 2
Number of Volunteers 45
Number of Contract Staff 2
Staff Retention Rate % 100%

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 4
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 4
Male: 0
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Under Development
Organization has Strategic Plan? Under Development
Years Strategic Plan Considers --
Management Succession Plan Under Development
Business Continuity of Operations Plan No
Organization Policies And Procedures Under Development
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit Yes
State Registration Yes

Risk Management Provisions

--

Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency Yes Annually
Senior Management Formal Evaluation and Frequency Yes Annually
Non Management Formal Evaluation and Frequency Yes Annually

Governance


Board Chair Mr. Jerry Murphy
Board Chair Company Affiliation The Old Court
Board Chair Term Feb 2012 - Feb 2018
Board Co-Chair --
Board Co-Chair Company Affiliation --
Board Co-Chair Term -

Board Members

Name Company Affiliations Status
Mrs. Kelly Balestrielli Lockheed Martin Voting
Mrs. Laurie Cote DSI Marketing Communications Voting
Mr. Alan Fagan EPS Global Voting
Ms. Beecher Grogan Lucy's Love Bus Voting
Mr. Declan Houghton Devri Voting
Mr. Jose Javier MetroFinancial Solutions Voting
Mr. Steve Jones Jeanne D'Arc Credit Union Voting
Mrs. Halima Khan Community Volunteer Voting
Mr. Mike McCarthy Comverse Voting
Mr. Jerry Murphy The Old Court Voting
Mrs. Kathleen Oleson RN Home Health VNA Voting
Mr. Steve Stewart Sage Bank Voting

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
Mrs. Stacey Geary Home Health VNA NonVoting
Ms. Jackie Mercedes Metro Financial Solutions NonVoting
Mrs. Julia Silverio Silverio Insurance NonVoting

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 1
Caucasian: 10
Hispanic/Latino: 1
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 5
Male: 7
Not Specified 0

Board Information

Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 90%
Written Board Selection Criteria Under Development
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 100%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation Yes

Standing Committees

  • Development / Fund Development / Fund Raising / Grant Writing / Major Gifts

CEO/Executive Director/Board Comments

In 2012 we introduced a 3-6 month "dating period" during which prospective Board members could get to know the mission, values, staff and current Board members at Lucy's Love Bus. Each candidate is asked to demonstrate their commitment to our cause by hosting their own fundraising event. This policy has produced a very strong Board with 12 highly active and engaged Board members. 

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Expense Breakdown 2013 (%)

Fiscal Year Jan 01, 2016 to Dec 31, 2016
Projected Income $400,000.00
Projected Expense $376,000.00
Form 990s

2015 990

2014 990

2013 990

2012 990

2011 990ez

2010 990ez

2009 990ez

Audit Documents

2015 Audited Financials

2014 Reviewed Financials

2013 Reviewed Financials

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2015 2014 2013
Total Revenue $404,602 $214,101 $233,250
Total Expenses $279,231 $272,082 $238,459

Prior Three Years Revenue Sources

Fiscal Year 2015 2014 2013
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- $0 --
Individual Contributions $332,215 $149,778 $156,636
Indirect Public Support -- $0 --
Earned Revenue $-1,407 $3,136 $1,008
Investment Income, Net of Losses -- $0 $153
Membership Dues -- $0 --
Special Events $73,794 $61,187 $74,750
Revenue In-Kind -- -- --
Other -- $0 $703

Prior Three Years Expense Allocations

Fiscal Year 2015 2014 2013
Program Expense $181,169 $179,810 $146,367
Administration Expense $40,006 $42,864 $41,541
Fundraising Expense $58,056 $49,408 $50,551
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.45 0.79 0.98
Program Expense/Total Expenses 65% 66% 61%
Fundraising Expense/Contributed Revenue 14% 23% 22%

Prior Three Years Assets and Liabilities

Fiscal Year 2015 2014 2013
Total Assets $175,665 $34,852 $93,699
Current Assets $173,554 $34,072 $91,359
Long-Term Liabilities $0 $0 $0
Current Liabilities $62,246 $57,315 $58,181
Total Net Assets $113,419 $-22,463 $35,518

Prior Three Years Top Three Funding Sources

Fiscal Year 2015 2014 2013
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value $0.00
Spending Policy N/A
Percentage(If selected) --
Credit Line No
Reserve Fund Yes
How many months does reserve cover? 3.00

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? --

Short Term Solvency

Fiscal Year 2015 2014 2013
Current Ratio: Current Assets/Current Liabilities 2.79 0.59 1.57

Long Term Solvency

Fiscal Year 2015 2014 2013
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

Lucy's Love Bus' financial position improved from 2014 when there was a $78,000 loss to 2015 when LLB had a $146,000 surplus. As LLB became known in the childhood cancer community the demand for grants outpaced the fundraising, which was based on individual donations and fundraising events which were not able to keep pace with the demand for services.

To address this challenge, a new Board member with significant financial experience in both public and nonprofit organizations was added as Treasurer. Secondly, the management team performed a strategic review that identified four key goals for 2015. These goals were to broaden the donor base, pursue corporate partners, create a cash reserve, and invest in new programs that would expand the number of children LLB could reach.

The result of this strategic plan was reflected in the 2015 financials. A focus on school programs expanded LLB's outreach, the pursuit of Corporate partnerships yielded $100,000 in funds in 2015, and grants were secured for our hospital-based programs, allowing us to help more children.

The change from 2014 to 2015 has created the stable financial platform to build on for coming years and the growth of the new programs.

Foundation Comments

Financial summary data in charts and graphs are per the organization's IRS 990s. Contributions from foundations and corporations are listed under individuals when the breakout was not available.

Documents


Other Documents

No Other Documents currently available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

Our goal at Lucy's Love Bus is to provide referrals and funds for integrative therapies for children with cancer (ages birth to 21) throughout New England until all children have affordable access to integrative therapies through hospital-based programs and insurance coverage. 
 
Long-term success will be reached when all hospitals serving childhood cancer patients offer a range of free or low-cost integrative therapies on their inpatient and outpatient units. 
 
We will know that we have been successful when we, or hospital-run programs are providing free or low-cost weekly integrative therapy services to all children coping with cancer and the late effects of cancer treatment.    

2. What are your strategies for making this happen?

We take a multi-pronged approach to delivering our mission and reaching our organizational goals. Right now we are building our presence and maximizing our impact by funding and supplying weekly yoga and music therapy programs for children who are staying at partner hospitals on an inpatient basis. We also have referral programs with pediatric oncology social workers at New England children's hospitals. These patients receive $1,000 grants that are used for the integrative therapies of their choice. It is necessary to provide these grants for individuals until we are able to ensure broad and affordable access to integrative therapies through inpatient and outpatient clinics. As hospitals continue to compete in non-medical arenas such as quality of life and patient experience, more will be driven to create their own palliative and integrative therapy programs. We aim to support this movement through research on the impact that integrative therapies have on improving comfort and quality of life for children with cancer. 

3. What are your organization’s capabilities for doing this?

Over the past ten years we have built strong relationships with social workers, physicians and parents at pediatric oncology hospitals throughout New England. We have also built a large network of partnering practitioners who have expertise in a full array of integrative therapies for children with cancer. As funding allows, and as we solidify and prove the value of our inpatient pilot programs, we will be able to offer weekly integrative therapy group services which help us significantly stretch our program dollars and impact a much higher number of children per session.
 
Our Executive Director is a powerful speaker and advocate for balancing traditional cancer treatment with integrative therapies. As our organization continues to be recognized as a leader in the safe and effective delivery of integrative therapies to the childhood cancer community, the process of starting new hospital-based programs will become easier. When hospitals see the difference our programs make in terms of quality of life and promoting positive patient experience, they will be more likely to help fund the programs that we provide.  
 
Several of our Board members have expertise in managing large companies and play an instrumental role in managing our growth and setting our strategy. We are especially strong at financial management which will help us manage our growth in a sustainable way.  
 
We are very collaborative in nature and are connected to many other non-profits in the childhood cancer community. We use these connections to help weave together support for our families, help us strategize for our community as a whole, and as thinking partners in creating real and lasting change in the world of childhood cancer. 

4. How will your organization know if you are making progress?

We will know we are making progress as the number of applications for our services increases, and as we are able to implement group integrative therapy programs in the hospital setting. 

5. What have and haven’t you accomplished so far?

We are making great strides in ensuring equal access to our services through targeted outreach to immigrant communities in our region. We have not yet translated our materials to multiple languages, but through grant funding, we continue to work toward this end. 
 
We have conducted multiple surveys with our patient population and have a 100% response rate for our surveys. Our families provide overwhelmingly positive feedback on our work. One hundred percent of them respond that they would be "highly likely" to recommend our services to other families coping with childhood cancer.
 
We are just beginning to establish hospital-based programs, and find that hospitals are most receptive to programs that offer very low risk integrative therapies such as music therapy and yoga. As we build trust with our partnering hospitals, we would like to add services such as massage and acupuncture, that have been scientifically proven to boost immune system function, aid in rest, appetite and nausea, and to lower anxiety, depression and pain.