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International OCD Foundation Inc.

 18 Tremont Street, Suite 308
 Boston, MA 02108
[P] (617) 973-5801 x 27
[F] (617) 973-5803
www.iocdf.org
[email protected]
Elijah Peterson
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INCORPORATED: 1987
 Printable Profile (Summary / Full)
EIN 22-2894564

LAST UPDATED: 02/02/2018
Organization DBA Obsessive Compulsive Foundation
Former Names Obsessive Compulsive Foundation (2009)
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

Mission StatementMORE »

The mission of the International OCD Foundation is to help everyone affected by obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.

Mission Statement

The mission of the International OCD Foundation is to help everyone affected by obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.


FinancialsMORE »

Fiscal Year Jan 01, 2017 to Dec 31, 2017
Projected Income $2,501,500.00
Projected Expense $2,181,062.00

ProgramsMORE »

  • 1 Million Steps 4 OCD Walk
  • Annual OCD Conference
  • Anxiety in the Classroom (Pilot)
  • OCD Awareness Week
  • Training Institute

Revenue vs. Expense ($000s)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

The mission of the International OCD Foundation is to help everyone affected by obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.


Background Statement

The International OCD Foundation (IOCDF) is a donor-supported nonprofit organization. Founded in 1986 by a small group of individuals with OCD, the Foundation has grown into an international membership-based organization serving a broad community of individuals with OCD and related disorders, their family members and loved ones, and mental health professionals and researchers. We have affiliates in 25 states and territories in the US, in addition to global partnerships with other OCD organizations and mental health non-profits around the world.  

 The IOCDF aims to improve outcomes for individuals with OCD and related disorders by:
   
- Providing resources and support for those affected by OCD, including individuals with OCD and related disorders, their family members, friends, and loved ones. 
- Promoting awareness about OCD and related disorders to the OCD community and the general public. 
- Increasing access to effective treatment through:  
      - Educating mental health professionals about evidence-based treatments.
      - Providing a forum for professional collaboration and networking.
      - Supporting research into the causes of and treatments for OCD and related disorders.

Impact Statement

We are the “go to” resource for individuals, families, caregivers, and professionals in the OCD and related disorders (e.g., hoarding disorder, body dysmorphic disorder) community. Through our programs, we make a lasting impact, enhancing the lives of those living with OCD and related disorders. Every year, more and more individuals in the OCD community turn to the International OCD Foundation (IOCDF) as a trusted resource. We continue to expand our impact, increasing access to critical resources, programs, and services to all those living with and affected by OCD or a related disorder. 

The IOCDF celebrated its 30th anniversary in 2016. That year, we saw our annual "1 Million Steps 4 OCD" Walk participation grow significantly, launched our Behavioral Therapy Training Institute for mental health providers, and added our new Hoarding website to our family of sites. As the "go to" resource for OCD, we are always looking to improve our programs and service delivery. In the coming years, we will focus on the following goals:
 
1. Increase awareness and improve access to up-to-date resources for those affected by OCD and related disorders.
2. Expand our state-of-the-art education and training opportunities for those affected by OCD and related disorders as well as the varied professionals who provide care. 
3. Continue to build a highly engaged, mutually supportive community
4. Establish a strong organizational infrastructure to ensure long-term success and growth
5. Improve research into OCD and related disorders 

Needs Statement

The IOCDF seeks philanthropy to drive organizational growth and fulfill our mission of improving the lives of those affected by OCD and related disorders. Specifically, we plan to pursue the following goals:   
  1. Launch Anxiety in the Classroom, an online resource center for school personnel, students, and their families.
  2. Enhance our web presence and improve access to our online resources
  3. Increase visibility of OCD and related disorders via dissemination of psychoeducational and health-related materials
  4. Increase our engagement with diverse communities and bilingual audiences.
  5. Secure corporate and foundation funding for our programs, including our Annual OCD Conference, annual walk, BTTI, pediatric programming, OCD Awareness Week, and ongoing marketing and outreach efforts
 

CEO Statement

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Board Chair Statement

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Geographic Area Served

INTERNATIONAL

Our headquarters is on Tremont Street in downtown Boston, a major national hub of OCD research. We serve a global audience and have members and donors in all fifty states and around the world. We have 27 local affiliates in communities around the United States
 

Organization Categories

  1. Mental Health & Crisis Intervention - Mental Health Associations - Multipurpose
  2. Human Services -
  3. Unknown -

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

No

Programs

1 Million Steps 4 OCD Walk

In 2012, Denis Asselin walked over 500 miles -- or roughly 1 million steps -- from his home in Cheyney, Pennsylvania to Boston, Massachusetts in memory of his son, Nathaniel. Nathaniel took his own life at just 24, after a long struggle with severe body dysmorphic disorder (BDD) and OCD. After Nathaniel's death, Denis decided to embark on a pilgrimage to honor Nathaniel and raise awareness about the disorder that stole his young son's life. On June 5, 2012, Denis completed his walk in Boston and was greeted by the staff of the International OCD Foundation, as well as friends, family, and members of the OCD community at a rally to honor Denis and support BDD and OCD awareness. The first 1 Million Steps 4 OCD was created the following year in Boston, with the goal of raising awareness, funds, and hope. The walk has since spread to four U.S. cities and countless communities overseas, as well as a virtual "walk" that allows our supporters to participate from anywhere around the world.
Budget  $26,000.00
Category  Mental Health, Substance Abuse Programs, General/other Mental Disorders
Population Served US
Program Short-Term Success  The Walks unite our community around the shared mission of raising awareness about OCD and supporting those who live with the disorder. By adding new walks, we build out our affiliate program and introduce new individuals to our work. The Walks are also an excellent opportunity for the IOCDF to raise funds in support of the programs of the IOCDF and our local affiliates.
Program Long-Term Success  The long-term goals of the Walks are to increase awareness about OCD and related disorders in the communities we serve, while raising funds to support the Foundation’s programs.
Program Success Monitored By  We measure success by conducting post-walk interviews with regional sponsors, volunteers, and members. We also track Walk registrations for teams and individuals, as well as overall funds raised through walkers, donors and sponsors.
Examples of Program Success  In 2017, the Walks raised over $144,000 and included affiliate walks in 22 U.S. states and Japan, as well as virtual walks that were held around the world. We hope to see the Walks continue to grow both in numbers and funds raised so that we can continue to raise awareness about OCD and related disorders and fund new IOCDF resources and programs.

Annual OCD Conference

Since 1993, the International OCD Foundation's Annual OCD Conference has been the only national event focused solely on obsessive compulsive disorder (OCD) and related disorders. This extraordinary event brings mental health professionals, individuals with OCD, and their loved ones together to build community and learn about the latest treatments, research, and practice in OCD and related disorders. Every year, our goal is to bring mental health professionals, people with OCD, and their families together to learn, connect, and build a stronger community. Our hope is that each attendee will be inspired to advocate in their home communities for those living with OCD.

The Conference features more than 120 presentations, workshops, and evening activities, as well as nearly two dozen support groups. Our presenters include some of the most experienced and knowledgeable clinicians and researchers in the field, as well as individuals with OCD and family members who graciously share their stories. The conference also includes professional trainings (including continuing education opportunities), 35+ support groups for a variety of populations, evening activities, receptions, and other networking activities. In 2017, we introduced a free, fully integrated Conference Mobile App that allows conference attendees to view the schedule, read presentation abstracts, and use the interactive venue map. Over 800 attendees utilized the app at our 2017 conference, and we anticipate this number will increase in 2018.

Budget  $434,500.00
Category  Mental Health, Substance Abuse Programs, General/other Mental Health, Substance Abuse Programs, General/other
Population Served People/Families with of People with Psychological Disabilities
Program Short-Term Success  We use the CVENT conference registration platform to track attendance metrics for the conference. The first Annual Conference took place in 1993 in Bloomington, Minnesota, with just over 300 attendees and 10 presentations. The 2017 Annual OCD Conference had over 1,700 attendees, representing 46 U.S. States and 21 countries. Mental health professionals comprise 37% of conference attendees, while individuals with OCD or related disorders make up an additional 34%. Nearly 45% of our 2017 attendees had attended at least one previous Annual Conference in the past five years, which speaks to the conference’s role in fostering continued engagement with the IOCDF and the OCD community at large. We expect between 1,800 and 1,900 attendees at our 25th Anniversary Conference in Washington, DC this summer.
Program Long-Term Success  The first Annual Conference took place in 1993 in Bloomington, Minnesota, with just over 300 attendees and 10 presentations. Last year, we welcomed over 1,700 people to San Francisco for the Conference's twenty-fourth year. Our three-day program now includes over 100 presentations, pre-conference sessions, and an OCD and related disorders research symposium. Interest in the Conference continues to grow from year to year, and we are constantly adding and improving our conference programming to meet the diverse needs and interests of our attendees.
Program Success Monitored By  In order to ensure consistent high-quality programming, we ask conference attendees to fill out anonymous surveys after every session and at the close of the conference. We also have an on-staff public health expert who conducts program development and quality control for the conference, and incorporates attendee feedback into her assessments.
Examples of Program Success 

Over the past eight years, Annual Conference attendance has grown from 900 in 2009 to over 1,700 in 2017. This is more than five times the attendance of the first Annual Conference in 1993.

We have continued to add new programs to the Annual Conference, such as the Annual Hoarding Meeting (now in its fifth year) and an expanded Research Symposium for scientists and clinicians who focus on OCD and related disorders. In addition, attendees now have the opportunity to choose from different tracks at the conference, including a Body Dysmorphic Disorder (BDD) track, an OCD & Substance Abuse track, and a bilingual Spanish/English track called "El Conferencia del TOC" (the Spanish term for "OCD"). We have also expanded our Youth Programming to reflect the recent increase in youth attendees, with workshops, speakers, and activities for children and teens.


Anxiety in the Classroom (Pilot)

Anxiety in the Classroom is an IOCDF pilot program that will create an online OCD resource center for school personnel, students, and their families. The website will provide general information, resources, and materials about anxiety and OCD as they relate to the school setting, as well as more specific tools for teachers, administrators, and other school personnel who may work with students with anxiety or OCD. Parents and students will also find tools and information to help them advocate for any specific needs they may have at school, in addition to educating their teachers and classmates about OCD and anxiety. 
Budget  $30,000
Category  Mental Health, Substance Abuse Programs, General/other Mental Disorders
Population Served People/Families with of People with Psychological Disabilities
Program Short-Term Success  In the short term, Anxiety in the Classroom will begin to build awareness about anxiety and OCD in youth. This is an area that does not receive much, if any, coverage within training and education for school personnel, and thus initial awareness will go a long way towards helping kids and teens who struggle with anxiety and OCD.
Program Long-Term Success  As a result of this program, school personnel of all types will be better equipped to recognize OCD and anxiety disorders when they appear in the school setting. School personnel will also be prepared to facilitate connection to proper treatment, and will feel comfortable providing support to students in their school who live with anxiety and/or OCD. Parents of school-age children with anxiety and/or OCD will be able to advocate for the support their child may need in the school setting, and will be aware of their child's rights in the classroom. Students will be empowered to advocate for themselves with their families and schools, and will have resources to educate and raise awareness in their own communities. 
Program Success Monitored By 

        Although we have yet to launch this project, we have determined that there is a clear need for anxiety/OCD-related education and resources for the classroom. Recently, our on-staff public health professional conducted a comprehensive needs assessment on Anxiety & OCD in Schools, which was distributed to school personnel all over the United States and garnered over 800 responses. When asked whether they felt they had the knowledge and support to feel comfortable working with students with OCD, 1 out of 3 respondents reported that they disagreed or strongly disagreed. A further 1 out of 3 reported feeling neutral, thus revealing that 2 out of 3 school personnel do not feel confident in their ability to work with students with OCD. The results were largely the same when queried about their ability to work with chronic anxiety/anxiety disorders. Almost half of the respondents do not feel confident in their ability to work with students with chronic anxiety/anxiety disorders, with a quarter reporting feeling “neutral” and a quarter “disagreeing” or “strongly disagreeing.”

Even beyond the self-reported data from a nationwide sample of school personnel, we know there is a need based on the lack of existing resources. Training for school personnel (including teachers, administrators, school nurses, school mental health staff, etc.) does not currently cover working with most mental health conditions. The only way school personnel would receive training or resources is if they specifically sought it out, and there are limited opportunities for them to access this kind of information. This is further underscored by responses from the IOCDF’s needs assessment. The vast majority of respondents (80%) indicated their desire for more training about anxiety and OCD as they relate to schools, including how they interfere with learning, practical classroom strategies, and ideas for accommodations. 60% of respondents also indicated that they would like to learn more about anxiety and OCD in general.

Once Anxiety in the Classroom is live, we will measure success using website analytics that track page views and downloads of program materials. We will also make an effort to follow up with participants in the needs assessment to let them know these resources are available.
Examples of Program Success  We envision program success as a greater sensitivity to issues of anxiety and OCD in a school setting on the part of teachers and administrators. In addition, we hope that Anxiety in the Classroom materials will help students and parents advocate for themselves in the classroom and raise awareness about OCD and anxiety. 

OCD Awareness Week

OCD Awareness Week is an international effort that takes place annually during the second week of October, with the goals of building an engaged online community, raising awareness about obsessive compulsive disorder, and helping more people access timely, appropriate, and effective treatment. Launched in 2009, OCD Awareness Week is now celebrated by a number of organizations across the US and around the world, with events such as OCD screening days, film and book festivals, lectures, conference, fundraisers, online Q&As, and more.
Budget  $12,500.00
Category  Mental Health, Substance Abuse Programs, General/other Mental Disorders
Population Served General/Unspecified
Program Short-Term Success  Each year, OCD Awareness Week builds increased awareness about OCD and related disorders. Through events, outreach, and regional campaigns, we bring attention to help all of those suffering with OCD and related disorders to lead full and productive lives. In 2017, we expanded upon the week by hosting our first-ever OCD Capital Walk in Washington D.C., with the goal of inviting the entire community to come together and advocate in one place. OCD Awareness Week is also an opportunity to collaborate with our regional affiliates and global partners to increase our impact. These groups coordinate local and regional activities such as informational booths, lectures, storytelling events, and day-long conferences.
Program Long-Term Success  Our goal for OCD Week is to educate the general public about OCD and related disorders and end stigma associated with these conditions. We also hope that by uniting the OCD community and expanding our reach to new audiences, we can help ensure that everyone living with OCD has access to effective treatment.
Program Success Monitored By  --
Examples of Program Success  As our use of social media platforms and online outreach strategies has increased, we have seen increased engagement with our OCD Awareness Week events, both from the OCD community and the general public. This past fall, we mobilized 258 supporters to simultaneously tweet a message of OCD awareness using a platform called Thunderclap, reaching over 130,000 in total. In addition, 1,154 people supported #OCDweek by downloading our Twibbon, a dedicated microsite that social media users can superimpose over their profile picture. We continue to monitor press mentions, social media engagement, and OCD awareness events around the globe. We also see increased participation on the part of our affiliates. The 2017 OCD Capital Walk (organized by our Mid-Atlantic affiliate) was a huge success, attracting over 200 donors and participants and raising more than $15,000.

Training Institute

On average, it takes individuals with OCD 17 years from the onset of symptoms to receive an accurate diagnosis and begin receiving effective treatment. The IOCDF is committed to changing this statistic. In 1995, we launched our flagship training opportunity for mental health professionals: the Behavioral Therapy Training Institute (BTTI). The BTTI is a three-day program that focuses on teaching cognitive behavioral therapy (CBT) -- specifically, exposure with response prevention (ERP) -- to clinicians who work with OCD and related disorders. Treating OCD is not a standard part of the curriculum in any of the therapeutic disciplines, and the BTTI is designed to meet the need for specialized training among providers with a wide range of experience and education levels. Over the years, we have added more specialized programming to the BTTI in response to growing demand. In 2013, we began offering a Pediatric BTTI for clinicians who work with children and teens. The following year, we added a Hoarding BTTI that focused on working with individuals with hoarding disorder.
 
In 2016, we further expanded upon the BTTI to create the IOCDF Training Institute. The Training Institute offers a comprehensive curriculum that addresses a variety of specialties and issues pertaining to the OCD and related disorders community, while providing continuing education credits to qualified professionals.
 
The curriculum is formatted in the style of higher education course catalogs, ranging from 100-level basic training to the 400-level advanced training. 100-level courses are designed to introduce trainees and clinicians to the world of OCD and related disorders, while 400-level courses are intended for seasoned providers who are interested in advanced topics in the field. The Training Institute also offers opportunities for online learning: several100-level classes are available online through our partnership with Massachusetts General Hospital's Psychiatry Academy, and our 300-level classes include Online Consultation Groups that allow clinicians to troubleshoot challenging OCD and related disorders cases with peers and experts in the field. As the Training Institute continues to grow, we are excited to offer more online and remote learning opportunities to further expand the global pool of trained clinicians.
 
Budget  $165,840.00
Category  Mental Health, Substance Abuse Programs, General/other
Population Served US& International
Program Short-Term Success  There is a very high demand among providers for further education regarding OCD and related disorders. One of the goals outlined in our 2016 strategic plan was to run 3-5 BTTIs every year. Last year, we reached 93 providers through the BTTI and Training Institute. Over the next year, we anticipate that we will reach 120 providers through the Training Institute, including 8 BTTI workshops. Our goal is to provide opportunities for mental health professionals to train in evidence-based practices for treating OCD and related disorders.
Program Long-Term Success  The Training Institute gives clinicians the opportunity to explore advanced topics in OCD and related disorders and build critical skills around OCD evaluation and treatment. In addition, all BTTI and Training Institute graduates are added to the IOCDF's resource directory, which can be accessed for free on our website. Ultimately, our training programs result in a global increase in the number of providers who are knowledgeable about OCD, which makes it easier for OCD sufferers and their families to access timely, appropriate, and effective treatment.
Program Success Monitored By  Using CVENT, we track the number of enrollments, number of inquiries, and other metrics that attest to the growth of the BTTI and Training Institute cohort over time. In addition, we ask that all BTTI and Training Institute participants complete a survey about their experience with our programming so that we can continue to refine our offerings.
Examples of Program Success  Over 1,000 mental health care providers have completed the BTTI program since its inception. BTTI registration typically reaches capacity in less than 20 minutes, and we maintain an interest list with over 100 individuals on it in case of cancellations. Due to the high demand for these trainings, we have gone from offering 3 BTTIs per year to eight.

CEO/Executive Director/Board Comments

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Management


CEO/Executive Director Dr. Jeff Szymanski
CEO Term Start Sept 2008
CEO Email [email protected]
CEO Experience

Jeff Szymanski, PhD, is the Executive Director of the International OCD Foundation and author of The Perfectionist’s Handbook. Dr. Szymanski, a clinical psychologist, previously worked at McLean Hospital’s Obsessive Compulsive Disorder Institute (OCDI), a residential facility for individuals with severe and refractory OCD. Dr. Szymanski also has a long track record of teaching and training. As a Clinical Instructor in Psychology at Harvard Medical School, he has supervised pre-doctoral psychology interns, psychiatry residents, and has run Cognitive Behavior Therapy seminars.

Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
Ms. Patti Perkins Aug 2000 Aug 2008
Mr. James Broatch 1987 1997

Senior Staff

Name Title Experience/Biography
Ms. Pamela Layne Director of Operations --

Awards

Award Awarding Organization Year
-- -- --

Affiliations

Affiliation Year
-- --
Member of state association of nonprofits? No
Name of state association --

External Assessments and Accreditations

External Assessment or Accreditation Year
American Psychological Association (APA) --

Collaborations

Mass General Hospital Psychiatry Academy
 
This collaboration will bring forth a curriculum and pathway for mental health and medical professionals interested in studying and treating OCD and related disorders. The goal is to arm therapists and clinicians with best practices and to increase the overall number of providers who can effectively treat OCD. The program will provide a comprehensive spectrum of courses for professionals that will be offered online to educate both novices and experts within the OCD community. These training opportunities will broaden the reach to providers and bring new specialists to the field.
 
Below is a list of our Affiliates:
OCD Central & South Florida
OCD Connecticut 
OCD Georgia
OCD Greater Denver 
OCD Jacksonville 
OCD Kansas
OCD Louisiana 
OCD Massachusetts
OCD MidAtlantic 
OCD Midwest 
OCD New Hampshire
OCD New Jersey
OCD New York
OCD North Carolina
OCD Oregon
OCD Pennsylvania
OCD Rhode Island 
OCD Sacramento 
OCD SF Bay Area 
OCD Southern California 
OCD Texas
OCD Twin Cities 
OCD Utah
OCD Washington
OCD Wisconsin
 

CEO/Executive Director/Board Comments

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Foundation Comments

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Staff Information

Number of Full Time Staff 11
Number of Part Time Staff 1
Number of Volunteers 2
Number of Contract Staff 0
Staff Retention Rate % 80%

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 12
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 6
Male: 6
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Under Development
Organization has Strategic Plan? Yes
Years Strategic Plan Considers 5
Management Succession Plan Under Development
Business Continuity of Operations Plan Yes
Organization Policies And Procedures Yes
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit Yes
State Registration Exempt

Risk Management Provisions

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Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency Yes Annually
Senior Management Formal Evaluation and Frequency Yes Annually
Non Management Formal Evaluation and Frequency Yes Quarterly

Governance


Board Chair Ms. Susan Boaz
Board Chair Company Affiliation President
Board Chair Term Feb 2018 - Feb 2020
Board Co-Chair Ms. Susan M. Boaz
Board Co-Chair Company Affiliation Vice-President
Board Co-Chair Term Feb 2016 - Feb 2018

Board Members

Name Company Affiliations Status
Mr. Denis Asselin Secretary Voting
Ms. Susan M. Boaz Vice-President --
Mr. David Calusdian Community Volunteer Voting
Ms. Diane Davey RN Community Volunteer Voting
Dr. Michael Jenike MD Community Volunteer Voting
Ms. Joy Kant Emeritus NonVoting
Ms. Elizabeth McIngvale PhD, LMSW Board Member Voting
Mr. Paul A. Mueller Community Volunteer Voting
Ms. Patricia Perkins JD Emeritus NonVoting
Mr. Ron Prevost Community Volunteer Voting
Ms. Denise Egan Stack LMHC Community Volunteer Voting
Mr. Michael J. Stack CFA Treasurer Voting
Ms. Jo-Ann Winston Community Volunteer Voting

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
Dr. Jonathan S. Abramowitz PhD. University of North Carolina, Chapel Hill, NC --
Dr. Throstur Bjorgvinsson PhD. The Houston OCD Program --
Dr. James Claiborn PhD. South Portland, ME --
Dr. Darin Dougherty MD Mass General Hospital, OCD Institute, McLean Hospital --
Dr. Jamie Feusner MD University of California at Los Angeles, Los Angeles, CA --
Dr. Edna B. Foa PhD. University of Pennsylviania, Philadelphia, PA --
Dr. Martin E. Franklin PhD. University of Pennsylviania, Philadelphia, PA --
Dr. Randy Frost PhD. Smith College, Northampton, MA --
Dr. Wayne K. Goodman MD Mount Sinai Medical Center, New York, NY --
Dr. Jonathan Grayson PhD. The Grayson LA Treatment Center for Anxiety and Related Disorders Behavioral Treatment Program --
Dr. Benjamin Greenberg MD/PhD Butler Hospital, Providence, RI --
Dr. John H. Greist MD (Emeritus) University of Wisconsin School of Medicine and Public Health --
Dr. Jonathan Hoffman PhD., ABPP NeuroBehavioral Institute, Weston, FL --
Dr. Michael Jenike MD Mass General Hospital, OCD Institute, McLean Hospital Voting
Dr. Nancy Keuthen PhD. Mass General Hospital, Boston, MA --
Dr. Lorrin M. Koran MD Stanford Unversity Medical Center, Palo Alto, CA --
Dr. Adam B. Lewin PhD., ABPP University of South Florida OCD, Anxiety and Related Disorders Behavioral Treatment Program --
Dr. Charles S. Mansueto PhD. Behavior Therapy Center of Greater Washington, Silver Spring, MD --
Dr. Carol A Matthews MD University of Florida Voting
Dr. Patrick McGrath PhD. Alexian Brothers Behavioral Health Hospital, Hoffman Estates, IL --
Dr. Dean McKay PhD. Fordham University, Bronx, NY --
Dr. E. Katia Moritz PhD., ABPP NeuroBehavioral Institute, Weston, FL --
Dr. Tanya K. Murphy MD University of South Florida, St Petersburg, FL --
Dr. Gerald Nestadt MD Johns Hopkins University, Baltimore, MD --
Dr. Fugen Neziroglu PhD. Bio Behavioral Institute, Great Neck, NY --
Dr. Michele Pato MD University of Southern California, Los Angeles, CA --
Dr. David Pauls PhD. (Emeritus) Harvard Medical School, Mass General Hospital --
Dr. Fred Penzel PhD. Western Suffolk Psychological Services, Huntington, NY --
Dr. Katharine A. Phillips MD Rhode Island Hospital, Providence, RI --
Dr. John Piacentini PhD., ABPP University of California at Los Angeles, Los Angeles, CA --
Dr. Christopher Pittenger MD/PhD Yale University, New Haven, CT --
Dr. C. Alec Pollard PhD. St Louis Behavioral Medicine Institute, St. Louis, MO --
Dr. Steven J. Poskar MD Spectrum Neuroscience & Treatment Institute, New York, NY --
Dr. Judith L. Rapoport MD National Institute of Mental Health, Bethesda, MD --
Dr. Steven Rasmussen MD Butler Hospital, Providence, RI --
Dr. Scott L. Rauch MD (Emeritus) McLean Hospital --
Dr. Peggy M.A. Richter MD Sunnybrook Health Science Centre Voting
Dr. Bradley C. Riemann PhD. Rogers Memorial Hospital, Oconomowoc, WI --
Dr. Sanjaya Saxena MD University of California at San Diego, La Jolla, CA --
Dr. H. Blair Simpson MD, PhD. Anxiety Disorders Clinic, Columbia University, New York, NY --
Dr. Gail Steketee PhD. School of Social Work, Boston University, Boston, MA --
Dr. S. Evelyn Stewart MD University of British Columbia, Vancouver, Canada, Mass General Hospital, Boston, MA McLean Hospital, Belmont, MA --
Dr. Eric A. Storch PhD. University of South Florida, St Petersburg, FL --
Dr. Susan Swedo MD National Institute of Mental Health, Bethesda, MD --
Dr. Kiara R. Timpano PhD. University of Miami, FL --
Dr. Barbara L. Van Noppen PhD. University of Southern California, Los Angeles, CA --
Dr. Aureen P. Wagner PhD. The Anxiety Wellness Center, Cary, NC --
Dr. Allen Weg EdD. Stress & Anxiety Services of New Jersey, East Brunswick, NJ --
Dr. Sabine Wilhelm PhD. Mass General Hospital, Harvard Medical School Voting
Dr. Monnica T. Williams PhD., ABPP University of Louisville, Louisville, KY --
Dr. Robin Zasio PsyD, LCSW -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 13
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 8
Male: 5
Not Specified 0

Board Information

Board Term Lengths 2
Board Term Limits --
Board Meeting Attendance % 90%
Written Board Selection Criteria Under Development
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 90%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation Yes

Standing Committees

  • Communications / Promotion / Publicity / Public Relations
  • Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
  • Diversity & Inclusion
  • Executive
  • Finance
  • Governance and Nominating
  • Youth

CEO/Executive Director/Board Comments

The "Other Board" list above refers to our Diversity Council.

Foundation Comments

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Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Fiscal Year Jan 01, 2017 to Dec 31, 2017
Projected Income $2,501,500.00
Projected Expense $2,181,062.00
Form 990s

2016 IRS 990

2015 IRS 990

2014 IRS 990

Audit Documents

2016 Audited Financial Statement

2015 Audited Financial Statement

2014 Audited Financial Statement

2013 Audited Financial Statement

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2016 2015 2014
Total Revenue $2,027,290 $1,851,797 $1,850,705
Total Expenses $2,018,242 $1,788,522 $1,774,482

Prior Three Years Revenue Sources

Fiscal Year 2016 2015 2014
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $1,175,153 $1,044,461 $1,165,939
Indirect Public Support $30,440 $38,305 $45,527
Earned Revenue $578,311 $533,376 $445,858
Investment Income, Net of Losses $300 $216 $164
Membership Dues $243,086 $235,439 $193,217
Special Events -- -- --
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2016 2015 2014
Program Expense $1,479,343 $1,309,179 $1,273,327
Administration Expense $318,323 $254,146 $345,459
Fundraising Expense $220,576 $225,197 $155,696
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.00 1.04 1.04
Program Expense/Total Expenses 73% 73% 72%
Fundraising Expense/Contributed Revenue 18% 21% 13%

Prior Three Years Assets and Liabilities

Fiscal Year 2016 2015 2014
Total Assets $1,213,263 $1,116,412 $1,073,688
Current Assets $694,647 $614,716 $563,572
Long-Term Liabilities $29,942 $17,151 $21,013
Current Liabilities $231,548 $180,657 $192,835
Total Net Assets $951,773 $918,604 $859,840

Prior Three Years Top Three Funding Sources

Fiscal Year 2016 2015 2014
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value --
Spending Policy N/A
Percentage(If selected) --
Credit Line No
Reserve Fund Yes
How many months does reserve cover? --

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? No

Short Term Solvency

Fiscal Year 2016 2015 2014
Current Ratio: Current Assets/Current Liabilities 3.00 3.40 2.92

Long Term Solvency

Fiscal Year 2016 2015 2014
Long-term Liabilities/Total Assets 2% 2% 2%

CEO/Executive Director/Board Comments

--

Foundation Comments

Financial summary data in charts and graphs are per the organization's IRS Form 990s. Contributions from foundations and corporations are listed under individuals when the breakout was not available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

The mission of the International OCD Foundation is to help everyone affected by obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.

Our goal is to assist everyone affected by OCD and related disorders, such as hoarding disorder, body dysmorphic disorder, and body-focused repetitive disorders. Our target population is not limited to the individual experiencing the disorder, as families and friends are also affected when someone is struggling with the disorder and are looking for resources. Additionally, we see mental health and medical professionals, school personnel, and first responders as part of our target audience. Finally, we include the general public as part of our audience in that we want to decrease stigma associated with mental health issues. We believe that by building a broad community of interest, we can effectively dismantle barriers to effective treatment.

Current estimates are that it takes 14-17 years from onset of symptoms for an average OCD sufferer to access effective treatment. Our goal is to change this through stigma reduction, awareness of what OCD is (and isn't), and increasing the number of mental health providers who can treat the disorder effectively.


2. What are your strategies for making this happen?

• Annual Conference: At our annual conference, people with OCD and their families meet to share their personal experiences and knowledge with each other, prominent OCD researchers introduce their latest theories and research findings, and experienced clinicians explain and demonstrate their successful treatment techniques.
• Behavior Therapy Training Institute (BTTI): The BTTI was developed to address the shortage of therapists properly trained in the cognitive behavioral treatment of OCD. Since 1995, the BTTI faculty has trained numerous therapists around the country how to provide the most up-to-date, effective treatments for OCD.
• Anxiety in the Classroom: A conservative estimate is that as many as 1 in 200 kids and teens have OCD. Sadly, many of these individuals struggle academically and socially as they are rarely diagnosed accurately and even less frequently accommodated by school personnel. Without an alternate explanation, many children come to believe that they are "crazy" or that they must keep their worries and behaviors an embarrassing secret. Our Anxiety in the Classroom Program seeks to increase awareness and recognition of OCD within school systems in order to facilitate proper diagnosis and promote effective treatment.
• Newsletter: IOCDF members receive our newsletter four times a year to update them about the latest in research, resources, and recovery in OCD.
• IOCDF Website: We have completed a redesign of the IOCDF main website (www.iocdf.org) that includes a re-build of the IOCDF Resource Directory, which is a vital source of information about treatment providers, descriptions of Intensive Treatment Programs (ITPs) across the country, a list of support groups, and contact information for our 27 IOCDF affiliates. We were able to recently complete the redesign and upgrade of the OCDinkids.org website, a vital resource for kids, teens and families. We launched the new website dedicated to Body Dysmorphic Disorder and are in the process of redesigning the IOCDF website for Hoarding Disorder. The IOCDF websites also provide educational material about OCD and related disorders, updates on treatment strategies and research findings, and a downloadable version of our quarterly newsletter.
• Our Pediatric Outreach Program aims to reach kids and teens affected by OCD, their families, friends, fellow students, teachers, mental health professionals, and pediatricians. The Pediatric Outreach Program has two primary components: 1. Raising awareness and providing general education about OCD to families, school personnel, and the general public. 2. Training professionals to effectively diagnose and treat pediatric OCD and related disorders.
• Research: Since 1994, we have given out 3 million dollars in research awards to investigators involved in research into the nature, etiology and treatment of Obsessive Compulsive Disorder and related disorders.


3. What are your organization’s capabilities for doing this?

Our organization has a $2.1 million operating budget that is primarily funded by individual donors and membership fees. The organization is celebrating its 32nd year and 25th Annual OCD Conference in 2018. We have over 50 members on our Scientific and Clinical Advisory Board, comprised of leading OCD experts from around the world. We have provided $3.5 million in research grants to researchers and clinicians who conduct OCD-related research. We have 10 members on our board of directors and a full complement of 13. The IOCDF has been acknowledged world-wide as the leader in the field of OCD and related disorders in terms of expertise, resources, education, support, training, and research funding.

4. How will your organization know if you are making progress?

We measure our impact by tracking the effectiveness of our programs and activities. We survey our conference and BTTI attendees consistently and use this information to improve our programs. Regarding the latter, we have published data on the effectiveness of our BTTI and continue to actively collect data on this program. We have an on staff public health expert whose job, in part, is to develop and review the quality of all of our programs. We have seen concrete, increased engagement in the past 8 years including our Annual Conference attendance from 900 (in 2009) to over 1,700 in 2017; our Walk attendance from 175 in 2013 to 800 in 2016. From 2008 to 2016, our annual budget has doubled and our staff has tripled due to increased donor engagement and support. Finally, we have launched multiple new initiatives including OCD Awareness Week, online training courses for professionals, and outreach into the pediatrician community.

5. What have and haven’t you accomplished so far?

We are proud of past accomplishments and eager to embrace the future. We have accomplished key milestones through our Annual OCD Conference, the Behavior Therapy Training Institute and the Research Grant Program, but also know our work is far from done.

Improving access to effective treatment for OCD and related disorders has been at the heart of the Foundation’s mission from day one. We are always looking to improve and expand our professional training opportunities. These programs serve an expanding audience of therapists and clinicians.

Building out our International outreach is also fundamental to serving the needs of all those suffering with OCD and related disorders. OCD is universal, and is estimated to effect 1-2 percent of the global population across all demographics.

Launched at the 2015 conference, the OCDvocate program aims to harness the power of the amazing IOCDF community to spread awareness and advocate for those with OCD and related disorder. Challenges are issued regularly by our four spokespeople via the IOCDF blog, social media, and emails with fun, engaging ways to OCDvocates to join and work together to make a big impact as advocates for OCD and related disorders.

We are also in the process of building out our grant-seeking infrastructure in an effort to tap into a wider array of funding sources. We believe that by diversifying our year-to-year funding streams, we will increase the IOCDF's long-term financial stability while building new partnerships with foundations and corporations who are invested in our work.

Additional details about our programs, strategic plan, and impact can be found at www.iocdf.org