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College Diabetes Network Inc.

 50 Milk Street, Floor 16
 Boston, MA 02109
[P] (857) 415-3733
[F] --
www.collegediabetesnetwork.org
[email protected]
Christina Roth
Facebook Twitter
INCORPORATED: 2010
 Printable Profile (Summary / Full)
EIN 27-2774316

LAST UPDATED: 11/09/2017
Organization DBA --
Former Names --
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

--

Mission StatementMORE »

 The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes.

Mission Statement

 The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes.


FinancialsMORE »

Fiscal Year Jan 01, 2017 to Dec 31, 2017
Projected Income $929,294.00
Projected Expense $702,744.00

ProgramsMORE »

  • Annual Retreat
  • Campus Chapters
  • Campus Pilot Program
  • Newly Diagnosed Young Adult Program
  • Off to College

Revenue vs. Expense ($000s)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

 The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes.


Background Statement

Christina graduated Summa Cum Laude with a BA in Psychology from UMass’s Commonwealth Honors College in 2011, and was awarded several honors for her work through CDN. She started working at the Joslin Diabetes Center as a research assistant, while still managing CDN as her “5pm-10pm volunteer job”. In 2012, Christina quit her job to work full-time for CDN as a volunteer. She and her colleague decided they would give themselves six months to get CDN off the ground. And despite the many challenges they faced, in 2013, they started the year with two full-time employees and went on to be awarded a $100,000 capacity building grant from the Helmsley Charitable Trust, which was then followed up in 2014 with an additional 3 year capacity building grant of $450,000.

With Christina leading CDN full-time, the organization doubled its Chapter network and annual revenue each year for three straight years. The organization also formed Corporate Member relationships with major pharmaceutical and medical device companies, such as Novo Nordisk, Eli Lilly and Medtronic.

CDN’s vision is for students and young professionals to thrive with diabetes. CDN is an organization dedicated to its mission, and to using its successes to have a transformational impact in the diabetes sector as a whole.

Since being founded in 2010 to address the unmet needs young adults with diabetes were facing, CDN has fundamentally changed how the sector thinks about and supports young adults with diabetes. The organization is the gold standard in supporting this underserved population, and is widely recognized as the leaders in this space with a track record for successfully addressing gaps and creating change.

CDN won the 2016 Smaller Business Association of New England (SBANE) Innovation Award, and formalized national partnerships with leading organizations such as JDRF, ADA, AADE, and others



Impact Statement

Supporting young adults with Type-1 Diabetes to lead more connected, engaged and empowered lives.


Needs Statement

 CDN’s model leverages the power of peer support, and the transformational experience of community. Supplementing this experience with a suite of programs which address the lack of resources and systemic supports available to this population. CDN’s chapter network includes over 2,000 student members, 110 affiliated Chapters, and more than 35 additional Chapters in the start-up process. During the past academic year, CDN’s network hosted 300 Chapter meetings and over 1,100 events. Being an underserved population, young adults with diabetes are incredibly vulnerable and experience some of the worst T1D health outcomes. The only ones who can fix these trends are young adults themselves. CDN makes this possible by empowering them to lead this change, ask for help, and build a community.

CDN focuses on keeping this population healthy until a cure can be found and helping to identify and support the next generation of leaders, scientists, researchers, and doctors in the sector. CDN compliments a cure - we all will benefit from a cure, but we need to keep those living with type one healthy today.


CEO Statement

The focus of the past few years has been to continue our fast organic growth, to strengthen the support systems in place for Chapter leaders, and to implement infrastructure to support the significant organizational growth. As CDN’s Chapter network continues to grow stronger and wider, complementary program opportunities continue to emerge.




Board Chair Statement



Geographic Area Served

NATIONAL
The United States.

Organization Categories

  1. Diseases Disorders & Medical Disciplines - Specifically Named Diseases
  2. Health Care - Patient & Family Support
  3. Diseases Disorders & Medical Disciplines -

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

Yes

Programs

Annual Retreat

 

This retreat is an exciting opportunity for students who have taken on a leadership role in their CDN chapter to:

• Connect with student leaders from across the country to share experiences, best practices, collaborate, and forge relationships.

• Work closely with a national organization that has strong ties in the diabetes field.

• Gain valuable skills and knowledge that will help them to be a more effective and successful leaders within their Chapters.

• Play an integral role in CDN’s strategic planning for the upcoming year, and have a voice in upcoming CDN programming and events.

 

Budget  $20,000.00
Category  Education, General/Other Educational Programs
Population Served College Aged (18-26 years)
Program Short-Term Success  Gain insight from student leaders on how to improve CDN's programming and use that insight to provide strategic direction for company growth year by year.
Program Long-Term Success  Helping students with T1 live empowered lives by educating and molding effective chapter leaders who can grow and support their college chapters and peers. 
Program Success Monitored By  Retreat evaluations are provided to each student and an annual retreat report is published based upon those insights. 
Examples of Program Success 

“This retreat allowed me to openly ask questions and gain a clearer picture of what it is like. It helped me come up with different ideas and strategies to educate others and better my support for my T1D friends.” – 2017 retreat participant


Campus Chapters

Chapters allow students to connect with each other about diabetes, learn about the latest diabetes technology and gadgets, exchange tips and tricks for managing diabetes on campus, and anything else that students are interested in discussing. CDN provides each Chapter with personal support through both our staff and our Chapter mentors.

Budget  $7,000.00
Category  Education, General/Other Educational Programs
Population Served College Aged (18-26 years)
Program Short-Term Success 

If even one student connection is made through a Chapter, we consider that a success. Chapter success is not judged on the size of their participants, but on the fostering of relationships so students can feel connected, empowered, and supported.

Program Long-Term Success 

Long term success of our college Chapters will empower and improve the lives of students living with type 1 diabetes.

Program Success Monitored By 

CDN uses chapter evaluation forms at the end of each semester for the Chapters that have affiliated with us.

Examples of Program Success 

110 chapters are currently affiliated with CDN. We have seen growth in chapters year after year, and expect to grow our chapter base to 150 by the end of 2017.


Campus Pilot Program

In order to better support students with diabetes, The College Diabetes network is pilot testing a suite of campus toolkits during the 2017-2018 school year. These toolkits will provide resources to three distinct on-campus departments with the tools they need to best to support students with diabetes. It is the aim of this program to assist your campus in providing the best possible support to students with diabetes through tailored resources and ongoing support. 

Budget  --
Category  Education, General/Other Educational Programs
Population Served College Aged (18-26 years)
Program Short-Term Success 

Campus health professionals including student health services, disabilities offices, and mental health professionals will gain an understanding of type 1 diabetes in order to better suit students with type 1 diabetes who seek their help.

Program Long-Term Success 

Program Success Monitored By: college students with type 1 diabetes will have better support on campus and be able to better manage their diabetes through education of the departments that are designed to help them succeed and overcome the obstacles diabetes may pose.

Program Success Monitored By 

Program is in process and will be evaluated at the end of the school year.

Examples of Program Success 

Program is in process and will be evaluated at the end of the school year.


Newly Diagnosed Young Adult Program

The goal of our guide called “You’ve Got This: A Guide for Young Adults Diagnosed with Type 1 Diabetes” and the accompanying video series is to provide this population with a starting point for feeling supported and empowered post-diagnosis. Our aim is to share many tips and pieces of advice through a peer-to-peer based model, answer many questions about diabetes, calm fears, and help confidently adjust to life with diabetes.

Budget  --
Category  Education, General/Other Educational Programs
Population Served College Aged (18-26 years)
Program Short-Term Success  People diagnosed with diabetes as young adults will gain important information soon after diagnosis in order to learn how to adapt to this new diagnosis.
Program Long-Term Success  Program Success Monitored By: Young adults diagnosed with diabetes will gain valuable tips, tricks, advice and insights from other peers following diagnosis and will learn how to adapt to the psychosocial aspects of living with diabetes.
Program Success Monitored By  The program launches November 13th, 2017. 
Examples of Program Success  The program launches November 13th, 2017.

Off to College

Moving from home to college can be tough on students with diabetes, as well as their families. It's important for everyone involved in this transition - health care providers, parents, and students - to prepare, and to make sure that everyone is on the same page. CDN has created multiple resources for all of these individuals to help ease this transition.

Currently, some local clinics and organizations host "Going off to College" or "Transitioning" events, where they bring high school students with diabetes and their families together to share information and answer questions. These events are important resources in this process. CDN was granted funding through the Lilly Grant Office to compile Organizing an Off to College Event: A How to Guide.

CDN also created two versions of “Off to College” Booklets, one for parents, and one for students, in which there are helpful tips, tricks, and advice for students with T1D and their parents who are going through the transition to college.

Budget  --
Category  Education, General/Other Education, General/Other
Population Served College Aged (18-26 years) Adolescents Only (13-19 years)
Program Short-Term Success 

This year, CDN continues to distribute the Off to College Event Hosting Guide to clinics and partners and collect associated event evaluations. We developed student and parent Off to College booklets in the summer of 2016 and continue to distribute these materials.


Program Long-Term Success 

The more Off to College Event Hosting Guides and Off to College booklets that can be distributed nationwide, the more families that can be educated about the transition process for students with T1D and enter college feeling prepared and connected.

Program Success Monitored By 

CDN distributes event evaluations for each Off to College event registered with us and periodic evaluation surveys to people who have received Off to College Booklets.

Examples of Program Success 

The Off to College Event Hosting Guide has been distributed to 118  and 925 digital parent and student Off to College Booklets have been distributed.


CEO/Executive Director/Board Comments


Management


CEO/Executive Director Ms. Christina L Roth
CEO Term Start Jan 2013
CEO Email [email protected]
CEO Experience

Christina is the Chief Executive Officer and Founder of CDN. Diagnosed with type 1 diabetes at age 14, Christina became an active patient advocate while in college where she started CDN as a campus group in 2009. Due to the overwhelming response to the initial group, Christina expanded CDN into a national non-profit organization serving young adults with diabetes. After graduation, Christina worked at the Joslin Diabetes Center and consulted for the T1D Exchange. As CEO of CDN, Christina frequently speaks on topics such as CDN’s programs, research on the young adult population and how to meet their unique needs, non-profit management, women in business, innovation, and start-up organizations.


Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
-- -- --

Senior Staff

Name Title Experience/Biography
-- -- --

Awards

Award Awarding Organization Year
Innovation Award Small Business Association of New England (SBANE) 2016
Innovation Award Finalist Small Business Association of New England (SBANE) 2015

Affiliations

Affiliation Year
-- --
Member of state association of nonprofits? Yes
Name of state association Massachusetts Nonprofit Network

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

CDN collaborates with many important nonprofit partners in the diabetes sector, including The American Diabetes Association and JDRF. 

CEO/Executive Director/Board Comments

CDN’s model leverages the power of peer support, and the transformational experience of community. Supplementing this experience with a suite of programs which address the lack of resources and systemic supports available to this population. CDN’s chapter network includes over 2,000 student members, 110 affiliated Chapters, and more than 35 additional Chapters in the start-up process. During the past academic year, CDN’s network hosted 300 Chapter meetings and over 1,100 events. Being an underserved population, young adults with diabetes are incredibly vulnerable and experience some of the worst T1D health outcomes. The only ones who can fix these trends are young adults themselves. CDN makes this possible by empowering them to lead this change, ask for help, and build a community.

CDN focuses on keeping this population healthy until a cure can be found and helping to identify and support the next generation of leaders, scientists, researchers, and doctors in the sector. CDN compliments a cure - we all will benefit from a cure, but we need to keep those living with type one healthy today.

 

Foundation Comments

--

Staff Information

Number of Full Time Staff 8
Number of Part Time Staff 0
Number of Volunteers 120
Number of Contract Staff 3
Staff Retention Rate % --

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 0
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 6
Male: 2
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Yes
Organization has Strategic Plan? Yes
Years Strategic Plan Considers 3
Management Succession Plan Under Development
Business Continuity of Operations Plan No
Organization Policies And Procedures Yes
Nondiscrimination Policy Yes
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit Yes
State Registration Yes

Risk Management Provisions

--

Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency Yes Annually
Senior Management Formal Evaluation and Frequency Yes Semi-Annually
Non Management Formal Evaluation and Frequency Yes Bi-Annually

Governance


Board Chair Mr. John L. Brooks III
Board Chair Company Affiliation Healthcare Capital, LLC
Board Chair Term Jan 2012 -
Board Co-Chair --
Board Co-Chair Company Affiliation --
Board Co-Chair Term Jan 2012 - Dec 2014

Board Members

Name Company Affiliations Status
Mr. John L Brooks III Joslin Diabetes Center Voting
Mr. Kevin Conley Conley Search Group --
Miss Claudia Graham VP of Marketing and Global Access for Dexcom Voting
Mrs. Joyce Gresko Attorney, Alston & Bird LLP --
Dr. Kim Kelly Kelly Consulting Voting
Mr. Jay Kessler Managing Shareholder, Samet --
Ms. Emma Melton Attorney, Office of the General Counsel, Partners Healthcare --
Mr. David Schechter Vice President of Diabetes Marketing at Merck --
Mrs. Susan Solomon New York Stem Cell Foundation --
Mr. Paul Strumph MD Lexicon --
Mr. Michael Weintraub Humedica --

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
-- -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 8
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): Other
Gender Female: 2
Male: 6
Not Specified 0

Board Information

Board Term Lengths 3
Board Term Limits 3
Board Meeting Attendance % --
Written Board Selection Criteria Under Development
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 0%
Percentage of In-Kind Contributions 0%
Constituency Includes Client Representation Yes

Standing Committees

  • Audit
  • Nominating

CEO/Executive Director/Board Comments

--

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Fiscal Year Jan 01, 2017 to Dec 31, 2017
Projected Income $929,294.00
Projected Expense $702,744.00
Form 990s

2016 Form 990

2015 Form 990

2014 Form 990

2013 Form 990

2012 Form 990

Audit Documents

2016 Review

2013 Review

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2016 2015 2014
Total Revenue $787,543 $490,388 $607,642
Total Expenses $598,272 $455,922 $325,148

Prior Three Years Revenue Sources

Fiscal Year 2016 2015 2014
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $785,520 $489,653 $606,341
Indirect Public Support -- -- --
Earned Revenue $1,800 $535 $1,158
Investment Income, Net of Losses $223 $200 $143
Membership Dues -- -- --
Special Events -- -- --
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2016 2015 2014
Program Expense $360,965 $255,642 $228,340
Administration Expense $70,043 $46,448 $38,757
Fundraising Expense $167,264 $153,832 $58,051
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.32 1.08 1.87
Program Expense/Total Expenses 60% 56% 70%
Fundraising Expense/Contributed Revenue 21% 31% 10%

Prior Three Years Assets and Liabilities

Fiscal Year 2016 2015 2014
Total Assets $957,704 $779,463 $713,067
Current Assets $957,704 $779,463 $713,067
Long-Term Liabilities $0 $0 $0
Current Liabilities $0 $39,440 $7,510
Total Net Assets $957,704 $740,023 $705,557

Prior Three Years Top Three Funding Sources

Fiscal Year 2016 2015 2014
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value $0.00
Spending Policy N/A
Percentage(If selected) --
Credit Line Yes
Reserve Fund Yes
How many months does reserve cover? 3.00

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? No

Short Term Solvency

Fiscal Year 2016 2015 2014
Current Ratio: Current Assets/Current Liabilities -- 19.76 94.95

Long Term Solvency

Fiscal Year 2016 2015 2014
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

Young adults living with diabetes are an underserved and forgotten population, and yet they are the next generation of diabetes leaders. CDN is an innovative organization which supports them through every stage of their transition to adulthood. We cannot expect college students to jump directly into perfect diabetes management practices while navigating the first few years of college and independence, but we can give them the tools to make it easier. This stage of independence is the goal for all families of children with diabetes; it is also the most influential phase contributing to success in adulthood. CDN connects these life stages and provides continuity of support, thereby removing the fear and isolation which previously defined this time in life.

Prior to CDN there was no viable place for these individuals to turn, and little focus on keeping their needs from being overlooked.  CDN represents this population, connecting them, bringing their voice to the rest of the diabetes community, and building systems of support where they are needed. 

Foundation Comments

Financial summary data in the charts and graphs above are per the organization's IRS Form 990s. Contributions from foundations and corporations are listed under individuals when the breakout was not available. 

Documents


Other Documents

No Other Documents currently available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

 

Our vision is to create a college community, which will enable students with diabetes to thrive in all of their personal, healthcare, and scholastic accomplishments. We believe in creating a healthier and safer collegiate experience for young adults with diabetes. As education should not be at the expense of anybody’s safety, future health, or even their life.

We arm students with the information they need to thrive, empower them through connections with their peers, and create a safety net of support through working with

We have emerged as the only organization that focuses solely on the young adult population with diabetes. As such, we have a unique understanding of the key stakeholders surrounding this population, and we recognize that we have an obligation to use our unique understanding of this niche to address the systemic issues affecting this population. CDN actively works to establish partnerships across these systems to help facilitate collaboration between key stakeholders to help address these issues.


2. What are your strategies for making this happen?

Strategy 1: Peer Support. We create a community of young adults with diabetes, providing both in-person support on college campuses, as well as virtual support by connecting CDN’s network through social media.

Strategy 2: Ensuring that these young adults have access to the most up-to-date and relevant information that they need to thrive. Our website provides an online hub of information and resources specifically written for this population, keeping the tools that they need at their fingertips.

Strategy 3: Advocating for this population’s unique needs to those around them, such as clinical providers, campus administrators, and parents. The safety net of support and understanding that this creates, ensures a safer experience for all young adults with diabetes, even if they are not yet ready to reach out and connect with peers.

Strategy 4: Creating a sustainable model of student driven programming. CDN provides a platform to turn student ideas, and solutions, into reality for their entire community. Young adults are infamous for being passionate and driven change makers, CDN harnesses this passion, providing direction, resources, support, and leadership from throughout the sector. This model maintains the dedication to its original founding by a student, and creates a financially sustainable and impactful way to provide support this population.


3. What are your organization’s capabilities for doing this?

 

1. CDN has passionate and dedicated student leaders involved in the design and implementation of its programs.

2. CDN has strong collaborations and partnerships with organizations from across the diabetes and campus sectors.

3. CDN has a nationally representative Chapter based network, which continues to grow at exponential rates each year.

4. CDN has strong and dedicated leadership from its Board of Directors, consisting of top leaders from a diverse group of sectors and industries.

5. There is a strong awareness of CDN’s brand and recognition of its place as the voice for this unique population.

6. CDN is dedicated to an innovative and business minded approach to building and scaling the organization to ensure that it continues to provide impactful programs far into the future.


4. How will your organization know if you are making progress?

 

1. Feedback from students is an integral part of CDN’s evaluation strategy, ensuring that we are meeting their needs in a meaningful way.

2. Increased reach to students and their families. We measure this through the number of Chapters, student members, and parents engaged in our network.

3. Consistent and growing utilization of CDN’s web-based resources.

4. Continued growth of the number of CDN’s clinical, campus, and organizational partners who distribute information and resources to young adults with diabetes.


5. What have and haven’t you accomplished so far?

We have…

· Created a community of young adults with diabetes which has never before existed.

· Achieved a level of recognition and leadership in the community that is uncommon for such a young organization.

· Had exponential growth, both programmatically and financially, each year since our inception.

· Created a “go-to hub” of information and resources for young adults with diabetes

We haven’t…

· Yet been able to hire the number of staff we need to adequately meet the demand for our programs

· Created an organizational endowment to support our longer term activities in a sustainable way.