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College Diabetes Network Inc.

 50 Milk Street, Floor 16
 Boston, MA 02109
[P] (339) 236-0078
[F] --
www.collegediabetesnetwork.org
[email protected]
Christina Roth
Facebook Twitter
INCORPORATED: 2010
 Printable Profile (Summary / Full)
EIN 27-2774316

LAST UPDATED: 05/31/2017
Organization DBA --
Former Names --
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

--

Mission StatementMORE »

 The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes.

Mission Statement

 The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes.


FinancialsMORE »

Fiscal Year Jan 01, 2015 to Dec 31, 2015
Projected Income $590,000.00
Projected Expense $559,000.00

ProgramsMORE »

  • Annual Retreat
  • Campus Chapters
  • Off to College

Revenue vs. Expense ($000s)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Expense Breakdown 2013 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

 The College Diabetes Network (CDN) is a 501c3 non-profit organization whose mission is to provide innovative peer based programs which connect and empower students and young professionals to thrive with diabetes.


Background Statement

Young adults living with diabetes are an underserved and forgotten population, and yet they are the next generation of diabetes leaders. CDN is an innovative organization which supports them through every stage of their transition to adulthood. We cannot expect college students to jump directly into perfect diabetes management practices while navigating the first few years of college and independence, but we can give them the tools to make it easier. This stage of independence is the goal for all families of children with diabetes; it is also the most influential phase contributing to success in adulthood. CDN connects these life stages and provides continuity of support, thereby removing the fear and isolation which previously defined this time in life.

Prior to CDN there was no viable place for these individuals to turn, and little focus on keeping their needs from being overlooked. CDN represents this population, connecting them, bringing their voice to the rest of the diabetes community, and building systems of support where they are needed.

Founded in 2009 by a student at the University of Massachusetts Amherst, CDN started out as a small student group on campus, but quickly grew into a national organization with chapters throughout the country. CDN’s mission is to empower and improve the lives of students living with Type 1 diabetes through peer support and access to information and resources.

CDN is governed by a key group of leaders in their fields who are dedicated to building a strong organizational foundation to enable CDN to change the experience of young adults with diabetes and their families. They recognize the profound impact we can have, and the enormous unmet need we are addressing.



Impact Statement

Supporting young adults with Type-1 Diabetes to lead more connected, engaged and empowered lives.


Needs Statement

We now find ourselves as an inflection point. We have demonstrated proof of concept, but we must now invest in our infrastructure and program capacity in order to meet the demand for our programs and to build a sustainable foundation to the organization. CDN’s proven program model, and the tremendous amount of excitement and momentum surrounding the organization, has created a unique environment in which CDN has the ability to scale its impact exponentially.

Despite CDN’s non-profit status, we embrace a “for-profit” approach to our operations. Our goal is to provide impactful programs, and we can only do that through investing in our infrastructure, scaling, and giving ourselves the time to become independently “profitable” by nature of our program success. Similar to the venture capital for-profit start-ups need, we seek to secure venture philanthropy to help us get to this next level of our development.


CEO Statement

The focus of the past year has been to continue our fast organic growth, to strengthen the support systems in place for chapter leaders, and to implement infrastructure to support the significant chapter growth anticipated in 2016. As CDN’s chapter network continues to grow stronger and wider, complementary program opportunities continue to emerge. These programs offer enhanced value to CDN’s students, as well as additional funding opportunities through which CDN can raise funds and further contribute to its long term financial health.

I. Chapter Network

Over the past year, CDN has spent considerable time researching comparable model organizations, focused on collegiate student run chapters, in existence in a variety of sectors. Through interviews, and data collection, we now have a deeper understanding regarding the successes and challenges which these organizations have faced and have worked to integrate these findings into our strategic plans for the coming years. One key learning has been in regards to scaling, and the most effective and sustainable way in which to grow a campus based chapter network run by students. A focus on retention emerged as the key takeaway, with a variety of mechanisms through which to accomplish this. Such mechanisms include best practices, trainings, constant engagement, campus based program support, incentives, transition of leadership preparation, etc. The mechanisms which we believe will be most impactful with our network include student leadership, chapter portal, personalized interaction, financial support opportunities, and a focus on chapter development at a local level, all of which are important mechanisms through which to facilitate and support the growth and retention of chapters.

As a way to strengthen our chapter programming, and as first step to implementing some of our findings from similar organizations, we launched our new Chapter Portal along with our new Chapter Affiliation model. Under the new Affiliation Agreement, we've signed around 60 chapters. We also began a Chapter-to-Chapter mentoring initiative, to engage our Student Advisory Committee members in strengthening new chapters.

Based on this comparable model research, we have also concluded that we need one program staff for every 50 chapters. Therefore, in order to support our chapter growth goals we must increase the number of staff supporting chapters. 

II. Tools

CDN’s website contains a host of resources for young adults, and we are constantly updating and adding to this content. We are planning a website overhaul for 2016 that will involve a total redesign of the site, as well as the content. This new website will integrate with our internal database, allowing for a more user-friendly experience and richer functionality.

III. Ecosystem

A major goal of ecosystem programming has been to create alliances with member associations within the diabetes sector to more successfully reach providers who can then provide CDN information to patients who otherwise have no contact with the diabetes community. Another goal of ecosystem programming is to understand the barriers young adults face in each sector, and to identify the opportunities for improvement which CDN can help to facilitate.

This area of programming has been instrumental in our growth, as well as building our reputation as a strong, reputable, and impactful organization. This area of programming provides the opportunity for us to not only support the young adults which actively reach out to us, but to also improve the experience of all young adults with diabetes. The time we have spent looking into the barriers our students face across sectors has demonstrated that there are several of these barriers which we are in a position to impact. However, given our limited capacity, programs within this pillar will need to be more limited in scope, or discontinued completely, until we build the capacity to fully support them.

Board Chair Statement



Geographic Area Served

NATIONAL
College campuses across the U.S.

Organization Categories

  1. Diseases Disorders & Medical Disciplines - Specifically Named Diseases
  2. Health Care - Patient & Family Support
  3. Diseases Disorders & Medical Disciplines -

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

Yes

Programs

Annual Retreat

This retreat is an exciting opportunity for students who have taken on a leadership role in their CDN chapter to:

• Connect with student leaders from across the country to share experiences, best practices, collaborate, and forge relationships.
• Work closely with a national organization that has strong ties in the diabetes field.
• Gain valuable skills and knowledge that will help you to be a more effective and successful leader within your chapter.
• Play an integral role in CDN’s strategic planning for the upcoming year, and have a voice in what’s next for the College Diabetes Network!

Budget  $20,000.00
Category  Education, General/Other Educational Programs
Population Served College Aged (18-26 years)
Program Short-Term Success  Gain insight from student leaders on how to improve CDN's programming and use that insight to provide strategic direction for company growth year by year.
Program Long-Term Success  Helping students with T1 live empowered lives by educating and molding effective chapter leaders who can grow and support their college chapters and peers. 
Program Success Monitored By  Retreat evaluations are provided to each student and an annual retreat report is published based upon those insights. 
Examples of Program Success  Testimonial from a retreat participant ----

Campus Chapters

Chapters allow students to connect with each other about diabetes, learn about the latest diabetes technology and gadgets, exchange tips and tricks for managing diabetes on campus, and anything else that students are interested in discussing. CDN provides each chapter with personal support through both our staff and our chapter mentors. 
The program budget of $7000 reflect what it cost per year to run a campus chapter through CDN. 
Budget  $7,000.00
Category  Education, General/Other Educational Programs
Population Served College Aged (18-26 years)
Program Short-Term Success  If even one student connection is made through a chapter, we consider that a success. Chapter success is not judged on the size of their participants, but on the presence of the chapter on campus so that students with T1 can feel supported and empowered by peers. 
Program Long-Term Success  Long term success of our college chapters will empower and improve the lives of students living with Type 1 diabetes. 
Program Success Monitored By  CDN uses chapter evaluation forms at the end of each semester for the chapters that have affiliated with us. 
Examples of Program Success  XX chapters are currently affiliated with CDN. We have seen growth in chapters year after year, and expect to grow our chapter base by XX% this year. 

Off to College

Moving from home to college can be tough on students with diabetes, as well as their families. It's important for everyone involved in this transition - health care providers, parents, and students - to prepare, and to make sure that everyone is on the same page. CDN has created multiple resources for all of these individuals to help ease this transition. 
Currently, some local clinics and organizations host "Going off to College" or "Transitioning" events, where they bring high school students with diabetes and their families together to share information and answer questions. These events are important resources in this process. CDN was granted funding through the Lilly Grant Office to compile Organizing an Off to College Event: A How to Guide. 
Budget  $50,000.00
Category  Education, General/Other Education, General/Other
Population Served College Aged (18-26 years) Adolescents Only (13-19 years)
Program Short-Term Success  This year, CDN hopes to distribute all our Off to College Guide to clinics and partners and collect associated event evaluations. We also are develop student and parent Off to College booklets for planned distribution in 2016.
Program Long-Term Success  The more Off to College events that can be hosted nationwide, the more families that can be educated about the transition process for students with T1 and enter college feeling prepared and connected.
Program Success Monitored By  CDN distributes event evaluations for each Off to College event registered with us. 
Examples of Program Success  This program is very new, but the interest level in requests for our Off to College Event Hosting Guide has prompted us to create Student and Parent specific Off to College booklets. 

CEO/Executive Director/Board Comments


Management


CEO/Executive Director Ms. Christina L Roth
CEO Term Start Jan 2013
CEO Email [email protected]
CEO Experience

 

Christina is the Chief Executive Officer, and Founder, of the College Diabetes Network (CDN). Diagnosed with Type 1 Diabetes at age 14, Christina became an active patient advocate while in college where she started the organization as a campus group in 2009. Due to the overwhelming response to the initial group, Christina expanded CDN into a national non-profit organization serving young adults with diabetes, and filling the many gaps they currently experience. Since CDN’s founding, Christina has spoken at numerous events regarding CDN’s programs, research on the young adult population, and how to meet their unique needs.

Ms. Roth graduated Summa Cum Laude from the University of Massachusetts Amherst with departmental honors in Psychology, and Honors of Greatest Distinction from the Commonwealth Honors College. Awards include the 21st Century Leader Award, the Class of 1941 Humanitarian Award, and the Massachusetts governor’s “29 Who Shine” award. Christina has worked at the Joslin Diabetes Center, and the T1D Exchange. Christina served as President of CDN until 2013, when she was appointed CEO of the organization.

 

Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
-- -- --

Senior Staff

Name Title Experience/Biography
-- -- --

Awards

Award Awarding Organization Year
Innovation Award Finalist Small Business Association of New England (SBANE) 2015

Affiliations

Affiliation Year
-- --
Member of state association of nonprofits? Yes
Name of state association Massachusetts Nonprofit Network

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

American Diabetes Association (ADA): The College Diabetes Network (CDN) and the American Diabetes Association (Association) are delighted to announce an initial collaboration to promote better understanding and support of the unique needs of young adults with diabetes. 
To launch these collaborative efforts, the Association is pleased to have reviewed and approved the content of CDN’s Organizing an “Off to College” Event: A How-to Guide, and encourages all clinical providers and local organizations to visit the CDN website to order their own FREE copy of the guide and its resources, aimed at increasing the number of these types of events held across the country. This guide was supported by a grant from Lilly to CDN.
- See more at: http://www.diabetes.org/newsroom/press-releases/2015/college-diabetes-network.html#sthash.XSN0LOne.dpuf

CEO/Executive Director/Board Comments

We now find ourselves at an inflection point. We have demonstrated proof of concept, but we must now invest in our infrastructure and program capacity in order to meet the demand for our programs at many more campuses to build a sustainable foundation for the organization and to make this unique program available to help as many students as possible. CDN’s proven program model, and the tremendous momentum surrounding the organization, has created a unique environment in which we have the ability to exponentially scale our impact.

CDN direction is guided by a key group of leaders in their fields who are dedicated to building a strong organizational foundation to enable CDN to change the experience of young adults with diabetes and their families. They recognize the profound impact we can have, and the enormous unmet need we are addressing.

Lastly, despite CDN’s non-profit status, we embrace a business-oriented approach to our operations. Our goal is to provide impactful programs, which we can only do through investing in our infrastructure, scaling our programs, and giving ourselves the time to maximize the impact for our students now and in their future endeavors. Similar to the venture capital of “for-profit” start-ups, we seek to secure ‘venture philanthropy’ investors to help us broaden our reach and deepen our impact.  

Foundation Comments

--

Staff Information

Number of Full Time Staff 4
Number of Part Time Staff 1
Number of Volunteers 85
Number of Contract Staff 2
Staff Retention Rate % --

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 0
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 4
Male: 1
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Yes
Organization has Strategic Plan? Yes
Years Strategic Plan Considers 3
Management Succession Plan Under Development
Business Continuity of Operations Plan No
Organization Policies And Procedures Yes
Nondiscrimination Policy Under Development
Whistle Blower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit Yes
State Registration Yes

Risk Management Provisions

--

Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency Yes Annually
Senior Management Formal Evaluation and Frequency Yes Semi-Annually
Non Management Formal Evaluation and Frequency Yes Bi-Annually

Governance


Board Chair Mr. John L. Brooks III
Board Chair Company Affiliation Joslin Diabetes Center
Board Chair Term Jan 2012 -
Board Co-Chair --
Board Co-Chair Company Affiliation --
Board Co-Chair Term Jan 2012 - Dec 2014

Board Members

Name Company Affiliations Status
Mr. John L Brooks III Joslin Diabetes Center Voting
Mr. Bruce Buckingham MD Stanford School of Medicine --
Mr. Kevin Conley Conley Search Group --
Miss Claudia Graham VP of Marketing and Global Access for Dexcom Voting
Dr. Kim Kelly Kelly Consulting Voting
Dr. Jake Kushner Baylor College of Medicine --
Mrs. Susan Solomon New York Stem Cell Foundation --
Mr. Michael Weintraub Humedica --

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
-- -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 8
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): Other
Gender Female: 2
Male: 6
Not Specified 0

Board Information

Board Term Lengths 3
Board Term Limits 3
Board Meeting Attendance % --
Written Board Selection Criteria Under Development
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 0%
Percentage of In-Kind Contributions 0%
Constituency Includes Client Representation Yes

Standing Committees

  • Audit
  • Nominating

CEO/Executive Director/Board Comments

--

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2015 (%)

Expense Breakdown 2014 (%)

Expense Breakdown 2013 (%)

Fiscal Year Jan 01, 2015 to Dec 31, 2015
Projected Income $590,000.00
Projected Expense $559,000.00
Form 990s

2015 Form 990

2014 Form 990

2013 Form 990

2012 Form 990

Audit Documents

2013 Review

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2015 2014 2013
Total Revenue $490,388 $607,642 $495,899
Total Expenses $455,922 $325,148 $208,031

Prior Three Years Revenue Sources

Fiscal Year 2015 2014 2013
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $489,653 $606,341 $493,651
Indirect Public Support -- -- --
Earned Revenue $535 $1,158 $2,181
Investment Income, Net of Losses $200 $143 $67
Membership Dues -- -- --
Special Events -- -- --
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2015 2014 2013
Program Expense $255,642 $228,340 $125,806
Administration Expense $46,448 $38,757 $26,515
Fundraising Expense $153,832 $58,051 $55,710
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.08 1.87 2.38
Program Expense/Total Expenses 56% 70% 60%
Fundraising Expense/Contributed Revenue 31% 10% 11%

Prior Three Years Assets and Liabilities

Fiscal Year 2015 2014 2013
Total Assets $779,463 $713,067 $427,576
Current Assets $779,463 $713,067 $427,576
Long-Term Liabilities $0 $0 $0
Current Liabilities $39,440 $7,510 $4,513
Total Net Assets $740,023 $705,557 $423,063

Prior Three Years Top Three Funding Sources

Fiscal Year 2015 2014 2013
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value $0.00
Spending Policy N/A
Percentage(If selected) --
Credit Line Yes
Reserve Fund No
How many months does reserve cover? 0.00

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? Yes

Short Term Solvency

Fiscal Year 2015 2014 2013
Current Ratio: Current Assets/Current Liabilities 19.76 94.95 94.74

Long Term Solvency

Fiscal Year 2015 2014 2013
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

Young adults living with diabetes are an underserved and forgotten population, and yet they are the next generation of diabetes leaders. CDN is an innovative organization which supports them through every stage of their transition to adulthood. We cannot expect college students to jump directly into perfect diabetes management practices while navigating the first few years of college and independence, but we can give them the tools to make it easier. This stage of independence is the goal for all families of children with diabetes; it is also the most influential phase contributing to success in adulthood. CDN connects these life stages and provides continuity of support, thereby removing the fear and isolation which previously defined this time in life.

Prior to CDN there was no viable place for these individuals to turn, and little focus on keeping their needs from being overlooked.  CDN represents this population, connecting them, bringing their voice to the rest of the diabetes community, and building systems of support where they are needed. 

Foundation Comments

Financial summary data in the charts and graphs above are per the organization's IRS Form 990s. Contributions from foundations and corporations are listed under individuals when the breakout was not available. This organization is newer, founded in 2010, as such, two years of financial data are posted above and additional data will be posted as it becomes available. For FY11, the nonprofit filed a 990 postcard.

Documents


Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

Our vision is to create a college community, which will enable students with diabetes to thrive in all of their personal, healthcare, and scholastic accomplishments. We believe in creating a healthier and safer collegiate experience for young adults with diabetes. As education should not be at the expense of anybody’s safety, future health, or even their life.

To make our vision a reality, we use a three pronged approach to transform the experience of young adults with diabetes. Through the following three pillars of programs, we arm students with the information they need to thrive, empower them through connections with their peers, and create a safety net of support through working with those around them.

The Network: CDN creates a community of young adults with diabetes; a community run by students for students. CDN supports them in creating peer networks on campus, facilitates connections between students and local resources, and provides tools to reduce the barriers of running these on-campus “chapters.” In addition, CDN enables communication between student leaders across the country, to aid them in sharing ideas about chapter leadership.

The Ecosystem: CDN, clinicians, campus administrators, and parents are all complementary pieces to a puzzle that each can’t solve on their own. CDN brings them together to create partnerships to ensure that all young adults are better supported.

We have emerged as the only organization that focuses solely on
the young adult population with diabetes. As such, we have a unique understanding of the key stakeholders surrounding this population, and we recognize that we have an obligation to use our unique understanding of this niche to address the systemic issues affecting this population. CDN actively works to establish partnerships across these systems to help facilitate collaboration between key stakeholders to help address these issues.

 
 
 

2. What are your strategies for making this happen?

Strategy 1: Peer Support. We create a community of young adults with diabetes, providing both in-person support on college campuses, as well as virtual support by connecting CDN’s network through social media, working groups, introductions, and discussions.

Strategy 2: Ensuring that these young adults have access to the most up-to-date and relevant information that they need to thrive. Our website provides an online hub of information and resources specifically written for this population, keeping the tools that they need at their fingertips.

Strategy 3: Advocating for this population’s unique needs to those around them, such as clinical providers, campus administrators, and parents. The safety net of support and understanding that this creates, ensures a safer experience for all young adults with diabetes, even if they are not yet ready to reach out and connect with peers.

Strategy 4: Creating a sustainable model of student driven programming. CDN provides a platform to turn student ideas, and solutions, into reality for their entire community. Young adults are infamous for being passionate and driven change makers, CDN harnesses this passion, providing direction, resources, support, and leadership from throughout the sector. This model maintains the dedication to its original founding by a student, and creates a financially sustainable and impactful way to provide support this population.


3. What are your organization’s capabilities for doing this?

1. CDN has passionate and dedicated student leaders involved in the design and implementation of its programs.

2. CDN has strong collaborations and partnerships with organizations from across the diabetes and campus sectors.

3. CDN has a nationally representative chapter based network, which continues to grow at exponential rates each year.

4. CDN has strong and dedicated leadership from its Board of Directors, consisting of top leaders from a diverse group of sectors and industries.

5. There is a strong, and growing, awareness of CDN’s brand and recognition of its place as the voice and hub for this unique population.

6. CDN is dedicated to an innovative and business minded approach to building and scaling the organization to ensure that it continues to provide impactful programs far into the future.


4. How will your organization know if you are making progress?

1. Feedback from students is an integral part of CDN’s evaluation strategy, ensuring that we are meeting their needs in a meaningful way.

2. Increased reach to students and their families. We measure this through the number of chapters, chapter members, student members, and parents engages in our network.

3. Consistent and growing utilization of CDN’s web based resources.

4. Continued growth of the number of CDN’s clinical, campus, and organizational partners who distribute information and resources to young adults with diabetes.


5. What have and haven’t you accomplished so far?

We have…

· Created a community of young adults with diabetes which has never before existed.

· Achieved a level of recognition and leadership in the community that is uncommon for such a young organization.

· Had exponential growth, both programmatically and financially, each year since our inception.

· Created a “go-to hub” of information and resources for young adults with diabetes

· Been featured nationally by CNN and all of its new affiliates.

We haven’t…

· Yet been able to hire the number of staff we need to adequately meet the demand for our programs

· Fully taken advantage of the clinical and research opportunities available to us

· Had the capacity to spearhead or actively support campus safety initiatives for students living with diabetes

· Created an organizational endowment to support our longer term activities in a sustainable way.