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Hope and Friendship Metastatic Breast Cancer Foundation, Inc.

 PO Box 706
 Wilmington, MA 01887
[P] (978) 604-6521
[F] --
hopeandfriendship.org
[email protected]
Heather LoRe
Facebook
INCORPORATED: 2012
 Printable Profile (Summary / Full)
EIN 30-0751988

LAST UPDATED: 10/22/2016
Organization DBA Breast Cancer Foundation
Former Names Hope and Friendship Breast Cancer Foundation for Men and Women Inc. (2012)
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

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Mission StatementMORE »

The Hope and Friendship Metastatic Breast Cancer Foundation is a non-profit, 501(c)(3), all volunteer organization enhancing the lives of women and men with a diagnosis of metastatic breast cancer (Stage IV), and their families, by offering support groups, resources for learning and networking, therapeutic activities, scholarships and creative retreats. The foundation also supports research focused on metastatic breast cancer treatments.
 
Since 2010, we have been offering our exemplary support groups and comprehensive programs to residents in northeastern Massachusetts, the Merrimack Valley, the North Shore, and southern New Hampshire where enormous needs have been identified.

Mission Statement

The Hope and Friendship Metastatic Breast Cancer Foundation is a non-profit, 501(c)(3), all volunteer organization enhancing the lives of women and men with a diagnosis of metastatic breast cancer (Stage IV), and their families, by offering support groups, resources for learning and networking, therapeutic activities, scholarships and creative retreats. The foundation also supports research focused on metastatic breast cancer treatments.
 
Since 2010, we have been offering our exemplary support groups and comprehensive programs to residents in northeastern Massachusetts, the Merrimack Valley, the North Shore, and southern New Hampshire where enormous needs have been identified.

FinancialsMORE »

Fiscal Year Jan 01, 2014 to Dec 31, 2014
Projected Income $17,076.00
Projected Expense $14,031.00

ProgramsMORE »

  • 1. Hope and Friendship Metastatic Breast Cancer Support Group
  • 2. Hope and Friendship Metastatic Breast Cancer Foundation Symptom Management Program
  • 3. Hope and Friendship Metastatic Breast Cancer Foundation Scholarship Program
  • 4. Hope and Friendship Metastatic Breast Cancer Foundation Retreat Program
  • 5. Hope and Friendship Metastatic Breast Cancer Foundation Enrichment and Bereavement Program

Revenue vs. Expense ($000s)

Expense Breakdown 2014 (%)

Expense Breakdown 2013 (%)

Expense Breakdown (%)

No data available

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

The Hope and Friendship Metastatic Breast Cancer Foundation is a non-profit, 501(c)(3), all volunteer organization enhancing the lives of women and men with a diagnosis of metastatic breast cancer (Stage IV), and their families, by offering support groups, resources for learning and networking, therapeutic activities, scholarships and creative retreats. The foundation also supports research focused on metastatic breast cancer treatments.
 
Since 2010, we have been offering our exemplary support groups and comprehensive programs to residents in northeastern Massachusetts, the Merrimack Valley, the North Shore, and southern New Hampshire where enormous needs have been identified.

Background Statement

Approximately 230,000 US women and men are diagnosed each year with breast cancer and 44,000 US patients die each year from this disease.  1 in 8 US women and 1 in 1,100 US men are diagnosed with breast cancer each year.  Sadly, 1 in 3 of those diagnosed with early stage breast cancer will become metastatic (terminal). 

Metastatic breast cancer (Stage IV) means that the breast cancer has spread beyond the breast, usually to the bones, lungs, liver or brain.  Life expectancy with metastatic breast cancer is only 50% at 2-3 years, and 22% at 5 years.  There is no cure for metastatic breast cancer, it is a terminal disease, patients are in treatment for the rest of their lives, and then transfer to hospice care. 
 
The Hope and Friendship Metastatic Breast Cancer Foundation was founded by Heather LoRe, a Nurse Practitioner, in northeastern Massachusetts.  In 2004, at age 38, Mrs. LoRe was treated with mastectomy, chemotherapy and radiation for Stage IIB breast cancer.  In 2008, at age 42, Mrs. LoRe was diagnosed with metastatic  breast cancer, the terminal form of the disease.  Initially, Mrs. LoRe attended a metastatic breast cancer support group that helped her enormously.  This group met over an hour away, however, in western Massachusetts.  Mrs. LoRe discovered there was a real need for  breast cancer services in northeastern Massachusetts, the Merrimack Valley, the North Shore, and southern New Hampshire.
 
In October 2010, Mrs. LoRe started the Hope and Friendship Metastatic Breast Cancer Support Group.  With the highly educated and experienced support group facilitation consultant, Marie Lucca, patients find hope, are no longer alone, learn how to live each day to the fullest, and face the future together with friends.
 
In November 2012, our foundation became a 501(c) (3) non-profit to enhance the lives of patients with breast cancer by financing patient support group meetings, scholarships to national breast cancer conferences, retreats, symptom management treatments, enrichment activities, and bereavement programs. 
 
All of our programs are FREE.
 
Having a breast cancer diagnosis is physically, emotionally, psychologically and financially burdensome to patients and their families. Our goals are to continue our current patient programs and expand our services to caregivers, families, children and communities of those with breast cancer.  We receive weekly requests to provide these services in a northeastern Massachusetts location.

Impact Statement

We reach breast cancer patients directly with support groups and multiple programs.  Studies demonstrate that patients adjust better and have an improved quality of life when part of a group, engaging in enriching programs, and receiving supportive services.  Our programs are open to all regardless of age, gender, race, color, national origin, sexual orientation, marital status, disability, religion, ethnicity, economic status, and all other characteristics protected by law.
 
All of our programs are FREE. 
 
Since 2010, we have held patient support group meetings every other week.  Our program facilitation consultant, Marie Lucca, promotes the health and well-being of our patient support group members through a variety of programs, educational opportunities, stress-reduction strategies, positive life-style integration, art and music therapy, meditation, gentle yoga, Reiki, self-advocacy programs, end-of-life preparation, and spirituality exploration ($1,591/yr).

In 2014, our Scholarships Program provided 3 scholarships for patients to attend national breast cancer conferences ($2,320); our Retreats Program enabled 9 patients to participate in the "5 Wishes--Dying with Dignity" workshop ($1,209); our Symptom Management Program provided patient treatments to alleviate pain, stress, muscle spasm and decreased mobility ($4,049); and our Enrichment and Bereavement Program provided 20 patient enrichment items, 1 bereavement meal, 2 bereavement gifts to families and 40 chaplaincy consultant hours to patients and their families ($2,061).
 
Overwhelmingly, patients report:  decreased feelings of anxiety, fear and isolation; better coping skills; improved relationships; increased knowledge of their health and disease; hope for the future; and new friendships and opportunities.
 
Our future is focused on expanding our support groups and programs to caregivers, families, children and communities who are requesting our services with calls and emails on a weekly basis ($12,000/yr).

Needs Statement

The goals of our foundation are:
 
1.  Continue to provide breast cancer patient support groups, scholarships, retreats, symptom management, enrichment and bereavement programs ($12,000/yr).
 
2.  Expand our programs to caregivers, families, children and communities affected by breast cancer including:  support groups; educational, networking, resource and advocacy opportunities; retreats; and enrichment and bereavement programs ($12,000/yr).
 
3.  Hire one part-time facilitation consultant for expanded programs:  ($10,000/yr).
 
4.  Hire one part-time administration/communications consultant:  ($10,000/yr).
 
5.  Provide relevant education to consultants and volunteers ($2,000/yr).
 
6.  Secure a centrally located, 400+sf, permanent space (3-year lease is the norm) to offer our current and expanded services, located in northeastern Massachusetts and meeting the needs of our programs and participants:  handicapped accessible with handicapped accessible bathroom; clean; have parking, storage, privacy and temperature control; and allow flexibility of space for our guest leaders in meditation, yoga, Reiki, art, and music therapy ($30,000/3-year lease), or purchase ($100,000).
 
7.  Increase volunteer fundraising committee membership and promote self-sustainability practices (Minimal cost).

CEO Statement

Our all volunteer organization is unique because we reach patients and their families directly, we are providing FREE support groups and programs that would otherwise be cost-prohibitive to breast cancer patients and their families, and we are offering our services in a location with significant needs. 
 
Our patients benefit from our support groups and programs for many years while they are living as well as they can for as long as they can.  When the time comes for hospice, we are ready to meet the patient and family needs with additional support and chaplaincy consultation.  The leadership offered by our facilitation consultant, Marie Lucca, is exceptional. 
 
Our support groups and programs can't be found anywhere else in northeastern Massachusetts.  Patients want to meet with others who share their diagnosis and prognosis.  Patients literally find hope, friendship, become empowered and motivated in their self-advocacy. 
 
We are uniquely the only foundation providing the support groups and programs to breast cancer patients in northeastern Massachusetts.  We receive weekly calls and email requests to expand our services and programs to include caregivers, families, children and the communities of patients with breast cancer in northeastern Massachusetts, the Merrimack Valley, the North Shore, and southern New Hampshire, and this is the next step for our foundation.  From our 4 successful years of experience, our organization has the skills and resources necessary to make this next natural step. 
 
Our goals are to raise the funds necessary for expansion and to secure a long-term location where we can meet the needs of these important groups who are asking for our help as there are no similar services to what we provide in northeastern Massachusetts for a 1-2 hour radius.

Board Chair Statement

The successes we have found in our support groups and programs are based on patient, family, friend, colleague, community and health care provider reports.  We hear our support groups, scholarships, retreats, symptom management treatments, and enrichment and bereavement programs are absolutely meeting the needs of patients who are fighting for their lives.  Patients want to live as well as they can for as long as they can.  And then we are also providing our planning and preparation programs, spirituality explorations and chaplaincy consultations to help the patient and their family members before and even after a transition to hospice. 
 
There are direct needs that caregivers, family members, children and communities of patients with breast cancer have throughout their loved one's disease, transfer to hospice, death and even after death.  Our foundation is committed to expanding our services to meet these needs once we have adequate funding and an appropriate long-term meeting space.
 
Our organization has been very satisfied providing our support groups and programs in northeastern Massachusetts and we find that our communities in the Merrimack Valley, the North Shore and southern New Hampshire are grateful to know we are offering these services.  We anticipate that expansion of our services to caregivers, families, children and community members will also be welcomed and embraced as the requests have been so frequent and persistent for 4 years.  The breast cancer numbers are so great that no one who needs services related to this epidemic should have to drive 1-2 hours to find them.

Geographic Area Served

NORTHEAST REGION, MA
Our organization provides support groups, scholarships, symptom management treatments, retreats, enrichment, and bereavement programs for FREE to those affected by breast cancer in northeastern Massachusetts, the Merrimack Valley, the North Shore and southern New Hampshire.

Organization Categories

  1. Diseases Disorders & Medical Disciplines - Breast Cancer
  2. Health Care - Patient & Family Support
  3. Health Care - Health Support

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

Under Development

Programs

1. Hope and Friendship Metastatic Breast Cancer Support Group

Hope & Friendship offers a caring and confidential support group for those with a diagnosis of metastatic breast cancer in northeastern Massachusetts.  You can share your story or simply listen to others–you are not alone! Our meetings offer enriching activities and topics. We practice relaxation and share resources from our growing multi-media library. We learn how to integrate exercise and healthy eating into our treatments, and we explore the role of spirituality in illness. Sometimes, there are guest leaders like art and music therapists, meditation guides, Reiki, and gentle yoga practitioners.
 
Our participants report the experience provides: decreased feelings of anxiety, fear and isolation; better coping skills for managing a cancer diagnosis and its impact on daily life; improved relationships with family members and friends; increased knowledge about breast cancer, including the latest treatments, clinical trials and related side effects; new friendships; and hope for the future.
Budget  $4,744.00
Category  Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer Adults People/Families with of People with Disabilities
Program Short-Term Success  At the end of just one support group meeting, a patient is noticeably transformed. They come in with the "deer in the headlights" look, crying, or looking at the floor.  By the end of their first meeting, however, they report being grateful to have found us, are chatty, embracing new friends, look a little more confident, state they have found hope and are looking forward to the next meeting.  Each meeting thereafter, the transformation continues until our most recently joined member is now herself/himself the new welcoming committee for a brand new member.  Herein is where the rewards lie:  new   friends, empowerment, self-advocacy and hope being passed on.
Program Long-Term Success 
When patients come to our support groups, they are in shock. They have been told that they have metastatic breast cancer and their life is going to be cut short. They are just going through the motions and are paralyzed from fear. They have very limited understanding of their illness, treatments, side effects and prognosis. They feel that they do not have a fighting chance.  They are isolated with feelings of despair and have given up hope.
 
Becoming a member of our support group, patients transition from "alone" to "befriended", from "helpless" to "hopeful", and from "overwhelmed" to "an empowered, knowledgeable, self-advocate".  The transformation is amazing to experience and is extremely rewarding to know that it is our organization that has made a difference.
 
For these reasons, our participants renew, speak openly about our group on printed and social media, refer new patients and spread the word to their friends, families, communities, and health care providers.
Program Success Monitored By 
For the past four years, the success of our support groups have been monitored by attendance records, interviews with participants, and facilitator consultant feedback.  Moving forward, in 2015, our success will begin to be measured by collecting data on including demographics, surveys, participation numbers, renewal numbers, multi-program utilization, numbers of referrals.  Analyzing the data and improving and re-evaluating after improvements will be paramount.
 
Our future expanded support groups, services and programs for caregivers, families, children and communities, once funding is in place, will also be monitored using similar methods.  It would also be useful to create a tool to determine how the patients feel the expanded programs are helping their support systems.
Examples of Program Success 
Overwhelmingly, our participants report that the experience provides: decreased feelings of anxiety, fear and isolation; better coping skills for managing a cancer diagnosis and its impact on daily life; improved relationships with family members and friends; increased knowledge about breast cancer, including the latest treatments, clinical trials and related side effects; new friendships and opportunities to relax, laugh, cry and play in a safe and supportive environment; and hope for the future.
 
Testimonials:  
 
“I really like the support group meetings because they are my time to deal with my illness and then I let it rest for the two weeks in between and enjoy each day to the fullest.”
 
“It was great to find a local support group for metastatic patients.”
 
“The group facilitator is really special and provides us with the guidance and support that we need.”
 
“I love not feeling so alone with this diagnosis and having a chance to talk to friends who really understand.”

2. Hope and Friendship Metastatic Breast Cancer Foundation Symptom Management Program

The Hope and Friendship Metastatic Breast Cancer Foundation Symptom Management Program provides funding for relief of intolerable pain, nausea, neuropathy, treatment side effects, exhaustion, decreased mobility, isolation, and emotional stress.  Breast cancer care and treatments have a multitude of expensive out-of-pocket costs including: co-pays for hospital stays, health care provider visits, consultations, treatments, procedures, operations, lab tests, imaging tests, medications; travel and parking; missing work or needing to take leave from work; and home care. 
 
To enhance and improve the quality of life for patients, we offer our FREE Symptom Management Program.  Patients benefit from complementary therapies that provide symptom relief.  These therapies are otherwise cost-prohibitive and patients are afraid to spend money on them.
 
In 2014, our organization provided patients with:
 
Acupuncture Treatments--$200
Massage Treatments--$219
Yoga--$70
Portable Wheelchair Ramp--$3650
Budget  $4,049.00
Category  Health Care, General/Other Health Care Issues
Population Served People/Families of People with Cancer People/Families with of People with Disabilities Adults
Program Short-Term Success  This program has only been underway for a few months and we have provided patients with many symptom relieving treatments, and many repeated treatments.  We are very pleased with  participation, discern that there is a high need for these cost-prohibitive services, and are increasing promotion of this program to our patients. 
Program Long-Term Success 
This program improves patients' and families' experiences with breast cancer.  Patients feel better when their symptoms are being cared for, report they look forward to their next complementary therapy appointments, and are grateful to have immediate access to a wheelchair ramp when needed.  We support the treatment of the whole person, the relief of their symptoms and the promotion of their well-being.  When symptoms are controlled, functioning of the whole person, and their support systems, improve dramatically. 
 
Patients with breast cancer suffer symptoms of pain, side effects, inordinate amounts of stress, and are emotionally distraught.  Complementary therapies including massage, reflexology, acupuncture, Reiki, and others provide relief.  These treatments are cost-prohibitive and not covered by health insurance. 
 
We will determine the long-term success of our symptom management program by the reports and numbers of utilizing and repeating the therapies, and update as needed.
Program Success Monitored By 
Patients began utilizing this program immediately upon hearing it was offered.  Now that it is known, we hope the numbers will increase markedly as patients share reports of symptom improvements with their support group members. 
 
In 2015, keep track of the numbers and the confidential reports from the support group facilitation consultant. 
Examples of Program Success 
Immediate utilization of the program once the information was shared by the facilitation consultant to the patients, demonstrated to the board that requested symptom management therapies were needed.  Patients report these are treatments they know help and  they definitely want them, but they cannot afford them.  It is extremely satisfying to know our organization is able to provide such helpful services to breast cancer patients.

3. Hope and Friendship Metastatic Breast Cancer Foundation Scholarship Program

The Hope and Friendship Metastatic Breast Cancer Foundation Scholarship Program provides scholarships to patients to attend national breast cancer conferences. Our scholarships include registration, transportation and accommodations. In recent years, the foundation has provided patients with the following scholarships:
 
September 2014--2 Scholarships to the MBCN 8th Annual Metastatic Breast Cancer Conference in Chapel Hill, North Carolina.
 
March 2014--2 Scholarships to the CAM for Cancer 9th Annual Conference in West Palm Beach, Florida.
 
September 2013--1 Scholarship to the MBCN 7th Annual Metastatic Breast Cancer Conference in Houston, Texas.
 
Patients inquire about scholarship availability confidentially through the support group facilitation consultant who communicates with a board member.  Once confirmed, a confirmation email is sent to the support group facilitator who explains the reimbursement procedure to the patient.
Budget  $2,477.00
Category  Health Care, General/Other Patient Education
Population Served People/Families of People with Cancer People/Families with of People with Disabilities Adults
Program Short-Term Success  Upon return from national conferences, patients share their updates with the support group members, their own support systems and the communities.  It is a great learning opportunity for all.  I "learned so much, made new friends and found hope" is how patients describe their conference experiences. 
Program Long-Term Success 
Breast cancer is a financially burdensome disease.  Our FREE scholarship program offers patients the opportunity to continue becoming  experts in managing their diseases, symptoms, side effects and life-styles.  The conferences attended thus far are oriented to patients and taught by national leaders in the fields of breast cancer.  Patients attending the conferences return and provide the support group members with the national updates in  breast cancer care including current treatments, the latest research, ongoing clinical trials and new strategies coming down the pike.  The conferences offer new opportunities for patients to find new friends, network, learn about new resources and find hope for the future which they share with  support group members, loved ones and their communities.
Program Success Monitored By  The successes of a patient's attendance at national conferences are monitored by multi-media interviews if the patient is interested in participating and confidential facilitation consultant updates to the board. We also receive a confidential summary from the patient about what they learned and how it has affected them or changes they have instituted in their self-care.
Examples of Program Success 
For the 5 scholarships already provided to patients to attend national breast cancer conferences, we have received outstanding reports of success in multi-media summaries from the participants and in updates from the facilitation consultant.  Attending conferences has reportedly provided patients with new friends, new resources, feelings of comradery, expertise, and empowerment, and most often, hope.

4. Hope and Friendship Metastatic Breast Cancer Foundation Retreat Program

The Hope and Friendship Metastatic Breast Cancer Foundation Retreat Program is FREE and offers educational seminars, workshops, respite activities, brainstorming for the future, relationship strengthening, enlightenment, and creativity. 
 
Our first retreat was held in June 2014, hosted by our support group facilitator consultant, was amazingly received, and highly effective.
 
Our first retreat included all organic meals.  It was an educational and participatory workshop on the national "5 Wishes--Dying with Dignity" program.  Cancer patients want to be well-prepared for what comes next.  They don't want to be a burden to their loved ones after they have passed.  They want to make arrangements ahead of time and have their inner most desires known. 
 
The "5 Wishes" are:  
 
1.  The Person I Want to Make Decisions for Me When I Can't.
2.  The Kind of Medical Treatment I Want or Don't Want.
3.  How Comfortable I Want to Be.
4.  How I Want People to Treat Me.
5.  What I Want my Loved Ones to Know.
Budget  $1,200.00
Category  Health Care, General/Other Patient Education
Population Served People/Families of People with Cancer People/Families with of People with Disabilities Adults
Program Short-Term Success 
The short-term success was easily measured by the high number of workbooks that were completed within two weeks of our "5 Wishes--Dying with Dignity" retreat, according to reports from the patients and the facilitation consultant.  In addition, in support group meetings henceforth, the workbook topics have been brought up freely by support group members for further discussion.  The workshop retreat has created a deepened relationship between support group members and the facilitation consultant.
 
Our goals for 2015 is to hold another retreat with an equally enriching and much requested topic, to secure funding for creating additional retreat opportunities, and to expand our retreat programs to the caregivers, families, children and community members.
Program Long-Term Success 
Our first retreat was a huge success. 95% of our patients attended. Patients had been requesting a preparation program for years and many went home, discussed the "5 Wishes" with their loved ones, and completed their workbooks immediately after attending. Patients reported they found comfort broaching the tough topics, empowerment in getting their desires written down and shared, and felt much lighter physically and mentally after having completed their processes.  The retreat gave them great peace of mind and direction on how to achieve these very important tasks that had been weighing on them heavily, often for years. 
 
The organization covered the cost of the retreat at a beautiful location, in a fully accessible and comfortable meeting space, with organic meals seated at a giant window with beautiful scenery on a pond in full view.  During breaks at the retreat, each patient had either a massage, acupuncture, reflexology or Reiki treatment. The patients loved these treatments.
Program Success Monitored By 
Although it wasn't done formally for our first retreat, we will be formally monitoring our retreat program success using data collection, attendance, participation, learning assessments, renewal numbers, and referral numbers to determine our ongoing successes and make updates and improvements as appropriate.
Examples of Program Success  Our patients are constantly asking for another retreat opportunity as soon as possible, as they liked it so much.  They are always discussing topics they would like to have addressed, respite ideas, and additional retreat activities.  One support group member reported going home and completing their "5 Wishes--Dying with Dignity" workbook the same weekend of the retreat with their spouse.  When the beloved support group member passed away 2 months later, their spouse reported the loved one's planning activities made the process "so much easier" for them when the time came.

5. Hope and Friendship Metastatic Breast Cancer Foundation Enrichment and Bereavement Program

The Hope and Friendship Metastatic Breast Cancer Foundation provides an enrichment and bereavement program.  Enrichment items are provided to support group members throughout the year to let patients know they are cared for, not forgotten and are encouraged to continue their efforts at living as well as they can for as long as they can.  Our enrichment programs also include field trips, holiday meals and concert tickets.
 
Our bereavement program finances a chaplaincy consultant, bereavement meals shared by the support group when a beloved member has passed, provides bereavement gifts to family members, and covers the costs of annual cards in memory of their loved ones.
Budget  $2,061.00
Category  Health Care, General/Other Patient & Family Support
Population Served People/Families of People with Cancer People/Families with of People with Disabilities Adults
Program Short-Term Success  As our patients have traversed the scary and unpredictable terrain of breast cancer, we have remained a constant presence that can be counted upon for our support groups and programs.  We continue to offer enrichment items throughout the year, 40 chaplaincy consultant hours upon requests from patients and their family members, bereavement recognition events including shared meals, and gifts to family members when their loved one's have passed, and annually in memory so they know their loved one hasn't been forgotten.  We are present and will continue to be.
Program Long-Term Success 
Our enrichment and bereavement programs are well-received by patients, their support systems and the community.  People are amazed that we offer what we do throughout the entire experience of breast cancer from diagnosis to after the end-of-life.
 
Our organization feels that patients and their support systems should be well-cared for, never forgotten and encouraged to continue on in their battle and have their needs met even when the battle is through.  We remain committed to being the organization offering these services in northeastern Massachusetts for those from the Merrimack Valley, the North Shore and southern New Hampshire.
Program Success Monitored By  Our patient, family member and community feedback has guided us to respond to requests for enrichment and bereavement services.  We hear  reports of the effectiveness of our programs in letting people know they are cared about, are important, are encouraged to do their best, and always remembered.
Examples of Program Success  An example of our enrichment and bereavement program success is the number of thank you cards our organization receives from patients, their support system members and communities for offering these services.  At wakes and funerals, family members frequently report to the facilitation or chaplaincy consultant that our support groups and programs their loved ones participated in made enormous positive differences in their lives and they are eternally grateful their loved ones had these opportunities. 

CEO/Executive Director/Board Comments

Our foundation reaches patients directly.  Our goals are to promote quality of life and emotional well-being in our patients through our support groups, services and programs.  We hope to expand our support groups and programs to whom they are so greatly needed, including caregivers, families, children and the communities. In order to do so, we need to have funding and a permanent, long-term meeting space.  Without these, expansion isn't possible.

Management


CEO/Executive Director Mrs. Heather LoRe
CEO Term Start Nov 2012
CEO Email [email protected]
CEO Experience
Mrs. Heather LoRe, a Nurse Practitioner, was diagnosed in 2004 with Stage IIB Breast Cancer and underwent a mastectomy, chemotherapy and radiation.  In 2008, Mrs. LoRe was diagnosed with Metastatic (Stage IV) Breast Cancer, the terminal form of the disease.  Mrs. LoRe founded the Hope and Friendship Metastatic Breast Cancer Support Group in 2010 in northeastern Massachusetts welcoming patients from the Merrimack Valley, the North Shore and southern New Hampshire where a lack for services existed.  Mrs. LoRe founded the Hope and Friendship Metastatic Breast Cancer Foundation in 2012 to enhance and improve the lives of women and men living with metastatic breast cancer, and their families.
 
Mrs. LoRe's education includes a 1988 Bachelor of Science Degree in Nursing and a 1994 Master's of Science Degree in Nursing.  Mrs. LoRe has been a Registered Nurse and a Nurse Practitioner for over 26 years with  extensive experience in hospitals, visiting nurse and home care settings,  ambulatory clinics and public health settings.  Many of these positions have included effective management roles, as well.
 
Mrs. LoRe has successfully developed and completed extensive projects including the establishment of two ambulatory clinics with operating rooms and having been the planner for the Tri-Town H1N1 Emergency Response in Massachusetts of which she received a state award for number of vaccinations delivered to the public.
Co-CEO Ms. Kayla Richburg
Co-CEO Term Start Nov 2012
Co-CEO Email [email protected]
Co-CEO Experience
Ms. Kayla Richburg is currently an honors scholar in the Sawyer Business School at Suffolk University.  She is working on her undergraduate degree in business management and plans on continuing her education with Suffolk’s Master of Business Administration in Health Degree.  Ms. Richburg currently works as an administrative assistant.
 
Eventually, Ms. Richburg would like to pursue a career in health care management or possibly one of the many non-profit fields.  Ms. Richburg wants to help the foundation to achieve its goals while getting valuable experience in the non-profit sector.  She would also like to provide the support needed by so many with Metastatic Breast Cancer.

Former CEOs and Terms

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Senior Staff

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Awards

Award Awarding Organization Year
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Affiliations

Affiliation Year
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Member of state association of nonprofits? No
Name of state association --

External Assessments and Accreditations

External Assessment or Accreditation Year
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Collaborations

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CEO/Executive Director/Board Comments

The biggest challenge facing our organization is finding a centrally located, appropriate, long-term, 400+sf meeting space to provide all of our services and programs to the patients and to allow expansion to caregivers, families, children and communities. Our needs for a meeting space include:
1)Accessibility for All--Handicapped accessible, handicapped bathrooms, and closeby parking.
2)Privacy--We are offering confidential support groups.
3)Cleanliness--Our support group members have compromised immune systems making cleanliness of the space paramount.
4)Heat/AC Control--Body temperature regulation is abnormal for many cancer patients.
5)Comfort and Dignity--People with advanced cancer, especially in their bones, need comfortable seating and to feel valued. Ideally, support groups meet in a living room style: couches, arm chairs, blankets, pillows, end tables for tissues and tea – in order to open up and share their emotions.
6)Flexible Space for Guest Practitioners--Hope and Friendship often invites music, art and other therapists, as well as various practitioners (Yoga, Reiki). We need a room that is large enough to move furniture and set up/take down tables as needed.
7)Access to the Building--When we use borrowed space, we constantly risk having our meetings cancelled because we are “bumped” by the owner of the venue, or the person who unlocks the door comes much later to let us in.
8)Storage--We use lots of items for our programs, audio/visual equipment, table cloths, snacks, utensils, plates, napkins, cups, electric kettle, tea, coffee, water, juice, tissues, educational materials, decorations, free donated stuff, paperwork, member files and much more. We have a huge multi-media lending library that would be greatly utilized if it could be displayed.
9)Continuity--Cancer patients have enormous chaos in their lives and crave control and continuity.
10)Program Expansion--Our goal is to have a space as described above in order that we can expand our wonderful programs to the caregivers, families, children and communities who call weekly and request these services.

Foundation Comments

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Staff Information

Number of Full Time Staff 0
Number of Part Time Staff 0
Number of Volunteers 20
Number of Contract Staff 1
Staff Retention Rate % 100%

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 21
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 17
Male: 4
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Yes
Organization has Strategic Plan? Under Development
Years Strategic Plan Considers --
Management Succession Plan Under Development
Business Continuity of Operations Plan No
Organization Policies And Procedures Under Development
Nondiscrimination Policy Yes
Whistle Blower Policy No
Document Destruction Policy No
Directors and Officers Insurance Policy No
State Charitable Solicitations Permit Yes
State Registration Yes

Risk Management Provisions

Commercial General Liability

Reporting and Evaluations

Management Reports to Board? N/A
CEO Formal Evaluation and Frequency N/A N/A
Senior Management Formal Evaluation and Frequency N/A N/A
Non Management Formal Evaluation and Frequency N/A N/A

Governance


Board Chair Mrs. Heather LoRe
Board Chair Company Affiliation President
Board Chair Term Mar 2015 - Mar 2016
Board Co-Chair Kayla Richburg
Board Co-Chair Company Affiliation Vice-President
Board Co-Chair Term May 2015 - May 2016

Board Members

Name Company Affiliations Status
Lianne Bishop Community Volunteer Voting
Charles Drapala Director Voting
Anthony LoRe Treasurer Voting
Heather LoRe President Voting
Ashley O'Neil Director Voting
Judy Reynolds Director Voting
Kayla Richburg Vice-President Voting
Kayla St. Pierre Clerk Voting

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
-- -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 8
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 6
Male: 2
Not Specified 0

Board Information

Board Term Lengths 1
Board Term Limits 5
Board Meeting Attendance % 73%
Written Board Selection Criteria Yes
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 50%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation Yes

Standing Committees

  • Development / Fund Development / Fund Raising / Grant Writing / Major Gifts

CEO/Executive Director/Board Comments

The biggest challenge facing our organization is finding an appropriate, long-term, 400+sf meeting space in northeastern Massachusetts to provide our breast cancer support groups and programs.  Our needs for a meeting space include: 
 
1)Accessibility for All--Handicapped accessible, handicapped bathrooms, and closeby parking. 
2)Privacy--We are offering confidential support groups and programs.  
3)Cleanliness--Our support group members have compromised immune systems making cleanliness of the space paramount. 
4)Heat/AC Control--Body temperature regulation is abnormal for many cancer patients.
5)Comfort and Dignity--People with advanced cancer, especially in their bones, need comfortable seating and to feel valued.  Ideally, support groups meet in a living room style:  couches, arm chairs, blankets, pillows, end tables for tissues and tea – in order to open up and share their emotions.
6)Flexible Space for Guest Practitioners--Hope and Friendship often invites music, art and other therapists, as well as various practitioners (Yoga, Reiki). We need a room that is large enough to move furniture and set up/take down tables as needed. 
7)Access to the Building--When we use borrowed space, we constantly risk having our meetings cancelled because we are “bumped” by the owner of the venue, or the person who unlocks the door comes much later to let us in. 
8)Storage--We use lots of items for our programs, audio/visual equipment, table cloths, snacks, utensils, plates, napkins, cups, electric kettle, tea, coffee, water, juice, tissues, educational materials, decorations, free donated stuff, paperwork, member files and much more. We have a huge multi-media lending library that would be greatly utilized if it could be displayed.
9)Continuity--Cancer patients have enormous chaos in their lives and crave control and continuity.  
10)Program Expansion--Our goal is to have a space as described above in order that we can expand our wonderful programs to the caregivers, families, children and communities who call weekly and request these services.
 

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2014 (%)

Expense Breakdown 2013 (%)

Expense Breakdown (%)

No data available

Fiscal Year Jan 01, 2014 to Dec 31, 2014
Projected Income $17,076.00
Projected Expense $14,031.00
Form 990s

2014 Financial Data per Nonprofit

2013 Financial Data per Nonprofit

Audit Documents --
IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2014 2013 --
Total Revenue $17,076 $8,930 --
Total Expenses $14,031 $4,557 --

Prior Three Years Revenue Sources

Fiscal Year 2014 2013 --
Foundation and
Corporation Contributions
-- $750 --
Government Contributions $0 $0 --
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $11,890 $5,950 --
Indirect Public Support -- -- --
Earned Revenue -- -- --
Investment Income, Net of Losses -- -- --
Membership Dues -- -- --
Special Events $5,186 $2,231 --
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2014 2013 --
Program Expense $11,233 $1,746 --
Administration Expense $1,507 $2,596 --
Fundraising Expense $1,291 $215 --
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.22 1.96 --
Program Expense/Total Expenses 80% 38% --
Fundraising Expense/Contributed Revenue 8% 2% --

Prior Three Years Assets and Liabilities

Fiscal Year 2014 2013 --
Total Assets $3,045 $4,373 --
Current Assets $3,045 $4,373 --
Long-Term Liabilities $0 $0 --
Current Liabilities $0 $0 --
Total Net Assets $3,045 $4,373 --

Prior Three Years Top Three Funding Sources

Fiscal Year 2014 2013 --
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value --
Spending Policy Income Only
Percentage(If selected) --
Credit Line No
Reserve Fund No
How many months does reserve cover? --

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? No

Short Term Solvency

Fiscal Year 2014 2013 --
Current Ratio: Current Assets/Current Liabilities -- -- --

Long Term Solvency

Fiscal Year 2014 2013 --
Long-term Liabilities/Total Assets 0% 0% --

CEO/Executive Director/Board Comments

The biggest challenge facing our organization is finding a centrally located, appropriate, long-term, 400+sf meeting space to provide all of our services and programs to the patients and to allow expansion to caregivers, families, children and communities. Our needs for a meeting space include:
1)Accessibility for All--Handicapped accessible, handicapped bathrooms, and closeby parking.
2)Privacy--We are offering confidential support groups.
3)Cleanliness--Our support group members have compromised immune systems making cleanliness of the space paramount.
4)Heat/AC Control--Body temperature regulation is abnormal for many cancer patients.
5)Comfort and Dignity--People with advanced cancer, especially in their bones, need comfortable seating and to feel valued. Ideally, support groups meet in a living room style: couches, arm chairs, blankets, pillows, end tables for tissues and tea – in order to open up and share their emotions.
6)Flexible Space for Guest Practitioners--Hope and Friendship often invites music, art and other therapists, as well as various practitioners (Yoga, Reiki). We need a room that is large enough to move furniture and set up/take down tables as needed.
7)Access to the Building--When we use borrowed space, we constantly risk having our meetings cancelled because we are “bumped” by the owner of the venue, or the person who unlocks the door comes much later to let us in.
8)Storage--We use lots of items for our programs, audio/visual equipment, table cloths, snacks, utensils, plates, napkins, cups, electric kettle, tea, coffee, water, juice, tissues, educational materials, decorations, free donated stuff, paperwork, member files and much more. We have a huge multi-media lending library that would be greatly utilized if it could be displayed.
9)Continuity--Cancer patients have enormous chaos in their lives and crave control and continuity.
10)Program Expansion--Our goal is to have a space as described above in order that we can expand our wonderful programs to the caregivers, families, children and communities who call weekly and request these services.

Foundation Comments

This nonprofit is newer, founded in 2012. Financial summary data in the charts and graphs above, for fiscal years 2014 and 2013, is per the organization's internal financial records, posted above, as the organization is not required to file a full 990 or 990-EZ with the IRS.
 
Per the nonprofit: Financial data is not available for 2012, as the organization was incorporated on 11/29/12.

Documents


Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

Currently, the Hope and Friendship Metastatic Breast Cancer Foundation fills substantial gaps in services to breast cancer patients in northeastern Massachusetts, the Merrimack Valley, the North Shore and southern New Hampshire by offering FREE support groups, scholarships, retreats, symptom management treatments, enrichment, and bereavement programs.  Having breast cancer is isolating, emotionally crippling, and financially burdensome. 
 
Our organization is enhancing and improving the quality of lives for those with breast cancer.  Our patients learn how to manage their disease, treatments, and side effects; how to mobilize their support systems; how to become a self-advocate; how to be empowered against this increasingly prevalent disease; and, in the process, find hope and friendship.  Health care providers, loved ones, friends, and community members are pleased to be able to refer patients to our programs.
 
In 2014, there were more than 2.8 million US women and men diagnosed with breast cancer.  In 2014, there will be 300,000 women and men newly diagnosed with breast cancer.  Breast cancer diagnoses are occurring in younger and younger women and men.  Breast cancer is the second leading cause of death of women in the US.  The rate of breast cancer in Massachusetts is 10% above the national average
 
A woman's chance of getting breast cancer is 1 in 8.  A man's chance of getting breast cancer is 1 in 1,000.  For those diagnosed at an early stage, 1 in 3 (30%) will progress to metastatic (Stage IV) terminal breast cancer.  Sadly, lives are dramatically shortened by this disease as 50% will die in the first 2-3 years and 78% will die within 5 years.
 
The caregivers, families, children and the communities need our help.  We receive weekly calls and emails to provide programs to these groups who are overwhelmed, devastated, exhausted and distraught due to their loved one's diagnosis of breast cancer.  When our patients join our support groups and programs, they tell us they are so grateful to have found us locally.  They are absolutely thrilled to find we have what they need right here in their own back yards.  As the word of the patient programs has gotten out, we have been alerted to similar gaps in meeting the needs of the caregivers, families, children and communities in northeastern Massachusetts, the Merrimack Valley, the North Shore and southern New Hampshire.
 
In 2015, our organization hopes to receive the necessary funding and to secure an appropriate long-term meeting space to immediately expand our programs to caregivers, families, children and communities of those with breast cancer.  The successes of our programs will be determined by the numbers of engaged and renewing participants, referrals, volunteers, and fundraisers; quantitative and qualitative data assessments, and analyses; and increasing self-sufficiency of the organization over the next 5 years.
 
Outcome indicators of our programs will include:  data collected at intake, at the beginning, and at the end of our programs and analyzed throughout the year.  Based on analyses, our programs will be updated and improved and new data collection and analyses will be undertaken to evaluate the effectiveness of change.  Evaluating increases in self-sufficiency will performed utilizing a non-profit self-sufficiency assessment tool with improvements implemented and re-assessed for effectiveness.

2. What are your strategies for making this happen?

For over 4 years, our foundation has been meeting the needs of breast cancer patients successfully with the support groups and programs we offer.  We are now focused on building off of our effective strategies to take the next natural step of expanding our programs to caregivers, families, children and communities affected by breast cancer.  We receive weekly calls and emails of requests from these groups and hope to receive the funding necessary and to secure an appropriate long-term meeting space to be able to meet their needs, as we have done so well with our patient programs in northeastern Massachusetts.
 
Our strategies are multiple:
 
1.  Have a strong, all volunteer board engaged and committed to our mission and meeting the needs of our clients as they grow and develop.
 
2.  Have educated, experienced, and engaged facilitation consultants running our current and expanded programs.
 
3.  Increase our base of volunteers, fundraisers, grant writers and long-term relationships to support the costs of our programs and self-sufficiency.
 
4.  Perform data collection, update and improve programs based on analyses, and then re-evaluating for change effectiveness.
 
5.  Assess demographics, referral sources, numbers of participants, numbers enrolled in multiple programs, and numbers of renewing participants to determine what continues to be effective, populations who are being reached and participating, where referrals are coming from, and updating and broadening our scope as needed.  

3. What are your organization’s capabilities for doing this?

Our organization is uniquely capable to continue offering our services to patients and to expand our programs to the caregivers, families, children, and communities because we have been doing it efficiently, effectively and successfully for over 4 years and are committed to the residents in northeastern Massachusetts, the Merrimack Valley, the North Shore and southern New Hampshire for the long-term. 
 
Our desires to expand are natural.  We have found that by helping patients, their support system members and communities benefit.  We certainly anticipate that meeting the needs of the caregivers, families, children and communities, our reach will be thousand fold as we close the gaps in services.  Our expansion goals are based on the requests from our patients and weekly calls and emails requests from those in substantial need.
 
Our capabilities:
 
1. Over 4 years of experience offering our efficient, effective and successful patient support groups, scholarships, symptom management treatments, retreats, enrichment, and bereavement programs.
 
2.  A strong base of all volunteer board members, fundraising committee members and community members in fields that are very conducive to running an outstanding foundation and exceptional programs.  We have engaged and committed people from the fields of:  non-profit fundraising, nursing, health care management, health insurance, law, engineering, small business management, psychology, chaplaincy, support group management, education, communications, administration, public health, computer science, sales, marketing, and accounting.
 
3.  We have access to highly educated and very experienced facilitation consultants.
 
4.  Breast cancer is, unfortunately, so common that most of our board members, fundraising committee volunteers, community volunteers, and facilitation consultants have had first-hand experience themselves, or with friends, family, neighbors or colleagues who have or who have had breast cancer and we find they are sincerely committed to our mission.
 
5.  We have a comprehensive contact list, networking resources and  universal multi-media marketing access for community outreach and spreading the word as we expand our programs.
 
6.  Our offerings are FREE and are open to all regardless of age, gender, race, color, national origin, sexual orientation, marital status, disability, religion, ethnicity, economic status, or any other characteristic protected by law.
 
7.  Our current support groups and programs are well-known and considered to be providing significant services in areas of great need and the demands for expansion are so frequent.

4. How will your organization know if you are making progress?

Our facilitation consultant will be confidentially collecting quantitative and qualitative data indicators, analyzing the results to evaluate the efficiency, effectiveness and successes of our support groups and programs, and then meeting with the board with updates and requested improvements.
 
We will be evaluating:
 
1. Reach--determining the numbers and demographics of participants in each program; the number of referrals from health care providers; and, the number of fundraising committee and community volunteers engaged and committed to our organization and service (Who are we reaching and where can we do better?).
2. Quality--completion of surveys at the beginning and at the end of each program offered (What are the percent increases in participants' improvements in attitudes, knowledge and readiness to take take on the tasks required?).
3.  Utilization--determining the attendance rates at each program, percentage of participants renewing in a program, percentage of participants enrolling in multiple programs, referral rates when performing intake on new attendees (Are support groups and programs well-attended, renewed, are participants enrolling in multiple programs, and are attendees referring new participants?).
4.  Community involvement--determining numbers of community members engaging in volunteer, fundraising and educational opportunities; completion of surveys at the beginning and end of each program; and, determine desire to continue participation (is the community involved and learning from the activities and ready to re-engage?).
 
***Our preference is to perform these surveys using online survey tools to prevent the use of paper products and the creation of waste.

5. What have and haven’t you accomplished so far?

Since it's inception, the Hope and Friendship Metastatic Breast Cancer Foundation has been successfully enhancing and improving the lives of women and men with a diagnosis of breast cancer.  We offer FREE support groups and programs offering patients hope, friendship, empowerment, advocacy, resources for learning, networking opportunities, therapeutic activities, symptom management strategies, scholarships and creative retreats.  We have been accomplishing this in a setting where large gaps in services for breast cancer exist, in northeastern Massachusetts. 
 
Our breast cancer support groups have been meeting every other week since 2010.  Our non-profit 501(c) (3) all volunteer organization was established in 2012 so that we could increase our support groups and programs to address additional needs as identified by the patients and the support group facilitation consultant. 
 
Overwhelmingly, our patient participants report that the experience provides:  decreased feelings of anxiety, fear and isolation; better coping skills for managing a cancer diagnosis and its impact on daily life; improved relationships with family members and friends; increased abilities to manage their breast cancer, including the latest treatments, clinical trials and related side effects; opportunities to relax, laugh, cry and play in a safe and supportive environment; new friendships; and hope for the future.
 
In 2014 alone, our foundation covered the costs of 24 support group meetings with a facilitation consultant present; provided 3 scholarships for patients to attend national breast cancer conferences; covered the costs of symptom management strategies including massages, reflexology, acupuncture, muscle relaxation and yoga; provided a often requested field trip to a hospice house; covered the costs of a retreat on the often requested "5 Wishes--Dying with Dignity" national workshop; a holiday concert and luncheon; a bereavement luncheon after a member passed; the purchase of a portable wheelchair ramp for immediate use by patients when they need it; enrichment gifts; and 40 chaplaincy consultant hours.
 
Our support group members renew their participation in our support groups and programs 95% of the time, refer patients to our support groups and programs, come up with ideas for meeting topics, are active participants in the meetings and programs offered over and again, spread the word about our services, join in the work of fundraisers if they are feeling well enough, freely share their stories of being in the support groups via multi-media venues, utilize our multi-media lending library services, become powerful self-advocates and masters of their illnesses, treatments, side effect management, and their lives.
 
What is next on the horizon for our organization is to expand our support groups and programs to caregivers, families, children and communities. We will again be filling a substantial gap that exists in northeastern Massachusetts.
 
OUR GREATEST NEEDS:
 
1.  Funding to expand our programs to caregivers, family members, children and communities of breast cancer patients ($12,000/yr).
 
2. To secure an appropriate long-term meeting space (400+ SF) that is donated, available at a nominal fee or purchased in northeastern Massachusetts ($10,000/yr) or ($100,000 for purchase).
 
The space needs to meet the needs of our participants and programs:
 
  • Handicapped accessible with a handicapped accessible bathroom.
  • Clean with adequate parking, storage, privacy, temperature control, and flexibility of space for our guest leaders including: meditation, yoga, Reiki, art therapy and music therapy.