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Hope and Friendship Metastatic Breast Cancer Foundation, Inc.

 PO Box 706
 Wilmington, MA 01887
[P] (978) 352-0204
[F] --
hopeandfriendship.org
[email protected]
Heather LoRe
Facebook Twitter
INCORPORATED: 2012
 Printable Profile (Summary / Full)
EIN 30-0751988

LAST UPDATED: 11/05/2018
Organization DBA Breast Cancer Foundation
Former Names Hope and Friendship Breast Cancer Foundation for Men and Women Inc. (2012)
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary

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Mission StatementMORE »

The Hope and Friendship Metastatic Breast Cancer Foundation is a non-profit, 501(c)(3), all volunteer organization, enhancing the lives of women and men with metastatic breast cancer(Stage IV), the incurable and terminal form of breast cancer, and their families, by offering support groups, creative retreats, holistic therapies, scholarships, resources for learning and networking, and enrichment and bereavement programs. The foundation also supports research focused on metastatic breast cancer treatments. All of our programs are FREE and all are welcome.

Our primary funding sources are individual donations, fundraisers and grants. Thank you for considering a donation to help us support our patients and their families.

Mission Statement

The Hope and Friendship Metastatic Breast Cancer Foundation is a non-profit, 501(c)(3), all volunteer organization, enhancing the lives of women and men with metastatic breast cancer(Stage IV), the incurable and terminal form of breast cancer, and their families, by offering support groups, creative retreats, holistic therapies, scholarships, resources for learning and networking, and enrichment and bereavement programs. The foundation also supports research focused on metastatic breast cancer treatments. All of our programs are FREE and all are welcome.

Our primary funding sources are individual donations, fundraisers and grants. Thank you for considering a donation to help us support our patients and their families.


FinancialsMORE »

Fiscal Year Jan 01, 2017 to Dec 31, 2017
Projected Income $90,000.00
Projected Expense $45,000.00

ProgramsMORE »

  • 1. Metastatic Breast Cancer Support Group
  • 2. Symptom Management Program
  • 3. Retreat Program
  • 4. Scholarship Program
  • 5. Enrichment and Bereavement Program

Revenue vs. Expense ($000s)

Expense Breakdown 2017 (%)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

The Hope and Friendship Metastatic Breast Cancer Foundation is a non-profit, 501(c)(3), all volunteer organization, enhancing the lives of women and men with metastatic breast cancer(Stage IV), the incurable and terminal form of breast cancer, and their families, by offering support groups, creative retreats, holistic therapies, scholarships, resources for learning and networking, and enrichment and bereavement programs. The foundation also supports research focused on metastatic breast cancer treatments. All of our programs are FREE and all are welcome.

Our primary funding sources are individual donations, fundraisers and grants. Thank you for considering a donation to help us support our patients and their families.


Background Statement

Research studies demonstrate that support groups and wellness activities have a positive effect on longevity in breast cancer patients. Patients adjust better and have an improved quality of life when part of a group, engaging in enriching programs, and receiving supportive services. Our programs are focused on providing these positive outcomes. All of our programs are FREE.

In the US:

  • 1 in 8 women and 1 in 1,000 men will be diagnosed with breast cancer each year.
  • Of the 300,000 women and men diagnosed with early stage breast cancer each year, 30% will later be diagnosed with terminal breast cancer.
  • Life expectancy remains poor as 50% of patients will die within 2-3 years and 78% of patients will die within 5 years.
  • More than 41,000 women and men die each year from breast cancer.

Metastatic breast cancer is a physically, psychologically, and financially burdensome disease. Patients are trying to live as long as possible with the best quality of life. Patients are in treatment for the rest of their lives.

The Hope and Friendship Metastatic Breast Cancer Foundation was founded by Heather LoRe, a Nurse Practitioner, in northeastern Massachusetts. Mrs. LoRe was diagnosed in 2004, at age 38, with early stage breast cancer and treated with mastectomy, chemotherapy and radiation. Mrs. LoRe was then diagnosed in 2008 with metastatic (terminal) breast cancer. Mrs. LoRe found a real need for metastatic breast cancer services in northeastern Massachusetts.

In November 2012, Mrs. LoRe founded the Hope and Friendship Metastatic Breast Cancer Foundation as a non-profit, 501(c)(3), all volunteer organization to provide services to patients and families facing metastatic breast cancer including: support group meetings, creative retreats, holistic symptom management therapies, scholarships, enrichment activities, and bereavement services. Patients find hope, learn self-advocacy, live each day to the fullest, and face the future together with friends.


Impact Statement

All of our programs are FREE.

1. Support Group Program--Promoting health, wellness and longevity at bi-monthly meetings, therapeutic guest leaders, networking, education, stress-reduction, positive lifestyles, art and music therapy, meditation, gentle yoga, Reiki, self-advocacy, end-of-life preparation, and more. Our support groups are facilitated by a Licensed Clinical Social Worker and our therapeutic programs are facilitated by experts in their fields. A full brunch for the support group meeting is provided monthly and a guest leader providing healing therapies is provided monthly including: yoga, Qi Gong, art, and music therapies, and more ($17,678). Our support group meetings are held in a confidential, comfortable, and accessible location in Wilmington, MA, granted by the Cummings Foundation thru April 30, 2025.

2. Scholarship Program--In 2017, provided scholarships for a support group member and her daughters to attend the "Mother and Daughter Retreat: The Heroic Journey" conference at the Kripalu Center in Stockbridge, MA. Two support group members were able to join the "Betty J. Borry Adventure Weekend Breast Cancer Retreat" in Leyden, MA, and several scholarships were given for education ($10,653).

3. Retreats Program--In 2017, our Retreats Program offered "A Day in Nature Spring Retreat" at the beautiful Essex Woods, and our second overnight retreat in the Fall at the Stonehedge Inn Resort and Spa in Tyngsboro, MA ($6,714).

4. Symptom Management Program--In 2017, provided treatments to improve quality of life, alleviate pain, stress, muscle spasm and decreased mobility including: Pilates, yoga, massage, pool therapy, and meditation ($2,480).

5. Enrichment and Bereavement Program--In 2017, provided 50 patient enrichment items, including quarterly greeting cards, gift cards, retreat gifts, winter celebration gifts, and memory boxes ($3,017).


Needs Statement

The goals of our foundation are to:

1. Continue to provide patient support groups, scholarships, retreats, symptom management therapies, enrichment and bereavement programs ($45,000/yr).

2. Expand our programs to caregivers, families, children and communities affected by breast cancer including: support groups; education, networking, resource and advocacy opportunities; and enrichment and bereavement programs ($20,000/yr).

3. Hire one part-time administration consultant: ($10,000/yr).

4. Provide relevant education to consultants and volunteers ($2,000/yr).

5. Hire one part-time communications consultant ($10,000/yr).


CEO Statement

Overwhelmingly, our patients report: decreased feelings of anxiety, fear and isolation; better coping skills; improved relationships; increased knowledge of their health and disease; hope for the future; and new friendships and opportunities. Studies have shown that support groups and wellness activities have a positive effect on longevity in breast cancer patients.

Our all volunteer organization is unique because we reach patients and their families directly, we are providing FREE support groups and programs that would otherwise be cost-prohibitive to metastatic breast cancer patients and their families, and we are offering our services in a location with significant needs.

Our patients benefit from our support groups and programs for many years while they are living as well as they can for as long as they can. When the time comes for palliative care and hospice, we continue to provide support to our patients and their families. The leadership offered by our facilitation consultant is exceptional.

Our support groups and programs can't be found anywhere else in northeastern Massachusetts. Patients want to meet with others who share their diagnosis and prognosis and literally find hope and friendship, learn self-advocacy, and become empowered.

We are uniquely the only organization providing the support groups and programs to metastatic breast cancer patients in northeastern Massachusetts. We receive frequent requests to expand our services and programs for family members, children and caregivers of patients with metastatic breast cancer in northeastern Massachusetts, Metrowest, the Merrimack Valley, the North Shore, and southern New Hampshire, and this is the next step for our foundation. From our years of successful experiences, our organization has the skills and resources necessary to make this next natural step.


Board Chair Statement

The successes we have found in our support groups and programs are based on patient, family, friend, colleague, community and health care provider reports, and program evaluation forms. We hear our support groups, scholarships, retreats, symptom management treatments, and enrichment and bereavement programs are absolutely helping patients, and their families.

There are direct needs that family members, children and caregivers of patients with metastatic breast cancer have throughout their loved one's disease, transfer to hospice, death and even after death. Our foundation is committed to expanding our services to meet these needs.

Our organization has been very satisfied providing our patient support groups and programs and we find that our communities are grateful to know we are offering these services. We anticipate that expansion of our services to family members, children and caregivers will also be welcomed and embraced.


Geographic Area Served

GREATER BOSTON REGION, MA
METROWEST REGION, MA
City of Boston- Citywide (Indiv. neighborhoods also listed)
NORTHEAST REGION, MA
Our organization provides support groups, scholarships, symptom management treatments, retreats, enrichment, and bereavement programs for FREE to those affected by metastatic breast cancer in northeastern Massachusetts, Metrowest, the Merrimack Valley, the North Shore and southern New Hampshire. Studies have shown that support groups and wellness activities have a positive effect on longevity in breast cancer patients.

Organization Categories

  1. Diseases Disorders & Medical Disciplines - Breast Cancer
  2. Health Care - Patient & Family Support
  3. Medical Research - Cancer Research

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

Yes

Programs

1. Metastatic Breast Cancer Support Group

Our foundation offers caring, confidential and FREE support groups for those with a diagnosis of metastatic breast cancer in northeastern Massachusetts.  Patients can share their stories or simply listen to others–they are not alone! Our meetings offer enriching activities and topics. We practice relaxation and share resources from our growing multi-media library. We learn how to integrate exercise and healthy eating into our treatments.  We have guest leaders such as:  art and music therapists, meditation guides, Reiki, and gentle yoga practitioners.
 
Our support group members report their experiences provide: decreased feelings of anxiety, fear and isolation; better coping skills for managing a cancer diagnosis and its impact on daily life; improved relationships with family members and friends; increased knowledge about breast cancer, including the latest treatments, clinical trials and related side effects; new friendships; and hope for the future.
Budget  $27,678.00
Category  Diseases, Disorders & Medical Disciplines, General/Other Cancer
Population Served People/Families of People with Cancer People/Families of People with Health Conditions US
Program Short-Term Success  At the end of just one support group meeting, a patient is noticeably transformed. They come in with the "deer in the headlights" look, crying, or looking at the floor.  By the end of their first meeting, however, they report being grateful to have found us, are chatty, embracing new friends, look a little more confident, state they have found hope and are looking forward to the next meeting.  Each meeting thereafter, the transformation continues until our most recently joined member is now herself/himself the new welcoming committee for a brand new member.  Herein is where the rewards lie:  new friends, empowerment, self-advocacy and hope being passed on.
Program Long-Term Success 
When patients come to our support groups, they are in shock. They have been told that they have metastatic breast cancer and their life is going to be cut short. They are just going through the motions and are paralyzed from fear. They have very limited understanding of their illness, treatments, side effects and prognosis. They feel that they do not have a fighting chance.  They are isolated with feelings of despair.
 
Becoming a member of our support group, patients transition from "alone" to "befriended", from "helpless" to "hopeful", and from "overwhelmed" to "an empowered, knowledgeable, self-advocate".  The transformation is amazing to experience and is extremely rewarding to know that it is our organization that has made a difference.
 
For these reasons, our participants renew, speak openly about our group on printed and social media, refer new patients and spread the word to their friends, families, communities, and health care providers.
Program Success Monitored By 
Our support group success is monitored by attendance records, interviews with participants, and facilitator consultant feedback.  We also measure our success by administering program evaluation surveys, multi-program utilization, renewal numbers, and numbers of patient and provider referrals.  Analyzing the data, making improvements, and re-evaluating are paramount. 
Examples of Program Success 
We receive consistent program evaluation surveys, patients participate in all of our FREE programs, our renewal numbers are always high, and patient and provider referrals are how most members hear about our support group.  
 
Overwhelmingly, our participants report that the experience provides: decreased feelings of anxiety, fear and isolation; better coping skills for managing a cancer diagnosis and its impact on daily life; improved relationships with family members and friends; increased knowledge about breast cancer, including the latest treatments, clinical trials and related side effects; new friendships and opportunities to relax, laugh, cry and play in a safe and supportive environment; and hope for the future.
 
Testimonials:  
 
“I really like the support group meetings because they are my time to deal with my illness and then I let it rest for the two weeks in between and enjoy each day to the fullest.”
 
“It was great to find a local support group for metastatic patients.”
 
“The group facilitator is really special and provides us with the guidance and support that we need.”
 
“I love not feeling so alone with this diagnosis and having a chance to talk to friends who really understand.”

2. Symptom Management Program

Our Symptom Management Program provides funding for relief of intolerable pain, nausea, neuropathy, treatment side effects, exhaustion, decreased mobility, isolation, and emotional stress.  Breast cancer care and treatments have a multitude of expensive out-of-pocket costs including co-pays for hospital stays, health care provider visits, consultations, treatments, procedures, operations, lab tests, imaging tests, medications; travel and parking; missing work or needing to take leave from work; and home care. 
 
This FREE program is aimed at enhancing and improving the quality of life for patients.  Patients benefit from complementary therapies that provide symptom relief and an overall feeling of well-being.  These therapies are otherwise cost-prohibitive and patients are afraid or unable to spend money on them, even though they know they will be beneficial and help them feel better.
 
In 2017, our organization provided patients with:
 
60 Yoga Classes
12 Massage Treatments
6 Pool Therapy Visits 
4 Individualized Therapy Treatments 
1 Crystal Bowl Meditation Class
1 Engage Your Core Pilates Class 
1 Facial Treatment
1 Manicure Treatment 
1 Post-Thanksgiving Detox Class
Budget  $2,480.00
Category  Diseases, Disorders & Medical Disciplines, General/Other Cancer
Population Served People/Families of People with Cancer Adults
Program Short-Term Success  This program is a support group member favorite as it allows them to have additional avenues of symptom relief and "feeling like a person" throughout their course of treatments and living with metastatic breast cancer.  There is high participation in the program and patients are able to pick the treatments that help them feel better, as individuals.  We are very pleased with  participation, discern that there is a high need for these cost-prohibitive services, and are increasing promotion of this program to our patients. 
Program Long-Term Success 
This program improves patients' and families' experiences with breast cancer.  Patients feel better when their symptoms are being cared for and report that they look forward to their next complementary therapy appointments.  We support the treatment of the whole person and the promotion of their well-being.  When symptoms are controlled, functioning of the whole person, and their support systems, improve dramatically. 
 
Patients with breast cancer suffer symptoms of pain, side effects, inordinate amounts of stress, and are emotionally distraught.  Complementary therapies including massage, reflexology, acupuncture, Reiki, and others provide relief.  These treatments are cost-prohibitive and are not covered by health insurance. 
Program Success Monitored By 
In 2018, patients will begin completing evaluation surveys regarding the symptom management program.  Successes will also be monitored by the number of participants, and returning participants in this program. 
Examples of Program Success 
Immediate utilization of the program once the information is shared by the facilitation consultant to the patients, demonstrates to the board that this program is successful and much-needed.  Patients report to the support group facilitator that these treatments help them and  they definitely want them, but they cannot afford them.  It is extremely satisfying and rewarding to know our organization is able to provide such helpful services to breast cancer patients, for FREE.

3. Retreat Program

Our FREE Retreat Program offers meditation, yoga, Reiki, massage, creative art therapies, educational seminars, workshops, respite activities, relationship strengthening, enrichment activities and more.  Our retreats include beautiful venues, healthy meal choices, expert leaders, and more.  Our foundation has provided 7 retreats thus far, with two of them being overnight retreats.
 
In 2017, our Fall Retreat was at the Stonehedge Hotel and Spa in Chelmsford.  An overnight stay was provided with time to enjoy the swimming pool, jacuzzi and sauna; a delicious dinner, breakfast and lunch; and, creation of beautiful Fall wreaths.
 
In 2017, our Spring Retreat was "A Day in Nature" at Essex Woods.  Offerings included organic breakfast and lunch, creation of meaningful mosaics and camaraderie.
Budget  $6,714.00
Category  Diseases, Disorders & Medical Disciplines, General/Other Cancer
Population Served People/Families of People with Cancer Adults
Program Short-Term Success 
Our retreats are well-attended, receive excellent evaluations and are very successful at bringing support group members closer together.  Friendships deepen as participants share more about themselves, learn more about each other's families and lifestyles, and discuss positive ways to face a metastatic breast cancer diagnosis and maintain the best quality of life possible.
Program Long-Term Success 
The patients in the metastatic breast cancer support group are very engaged in the retreat process, provide activity and topic ideas for upcoming retreats, and ask about when the next retreat will be coming up.  They look forward to the retreats and are excited as one is approaching.  Long-term, the retreat program creates closer-knit patients in the support group meetings, increased participation in the other programs offered by Hope and Friendship MBCF, and a strong focus on the future.
Program Success Monitored By 
Our foundation monitors the retreat program success using data collection, attendance, participation, learning assessments, renewal numbers, and referral numbers to determine our ongoing successes and make updates, plan improvements and evaluate the changes, as appropriate.
Examples of Program Success  Our patients are constantly asking for another retreat opportunity as soon as possible, as they liked the retreats so much.  They are always discussing topics they would like to have addressed, respite ideas, additional retreat activities, venues, and have recently been asking for a two-night overnight retreat.  

4. Scholarship Program

Our Scholarship Program allows participants to attend national, regional, and local breast cancer conferences; retreats; therapeutic programs; and, educational classes for FREE.  Our scholarships include registration, transportation, food and accommodations.
 
In 2017, the foundation provided 3 scholarships to the Kripalu Center in Stockbridge for a support group member and her two daughters to attend the Mother and Daughter Retreat:  The Heroic Journey.  A 4th scholarship was provided for a support group member to attend the Betty J. Borry Breast Cancer Weekend Adventure Retreat in Leyden.  In addition, 6 educational scholarships were dispensed.
Budget  $10,653.00
Category  Diseases, Disorders & Medical Disciplines, General/Other Cancer
Population Served People/Families of People with Cancer
Program Short-Term Success  Upon return from national conferences, patients share their updates with support group members, their friends and families and their communities.  It is a great learning opportunity for all.  I "learned so much, made new friends and found hope" is how patients describe their conference experiences. 
Program Long-Term Success 
Breast cancer is a financially burdensome disease.  Our FREE scholarship program offers patients the opportunity to continue becoming  experts in managing their diseases, symptoms, side effects and life-styles.  The conferences attended thus far are oriented to patients and taught by national leaders in the fields of breast cancer.  Patients attending the conferences return and provide the support group members with the national updates in  breast cancer care including current treatments, the latest research, ongoing clinical trials and new strategies coming down the pike.  The conferences offer new opportunities for patients to find new friends, network, learn about new resources and find hope for the future which they share with  support group members, loved ones and their communities.
Program Success Monitored By  The successes of a patient's attendance at national conferences are monitored by multi-media interviews if the patient is interested in participating and confidential facilitation consultant updates to the board. We also receive a confidential summary from the patient about what they learned and how it has affected them or changes they have instituted in their self-care.
Examples of Program Success 
For the 5 scholarships already provided to patients to attend national breast cancer conferences, we have received outstanding reports of success in multi-media summaries from the participants and in updates from the facilitation consultant.  Attending conferences has reportedly provided patients with new friends, new resources, feelings of comradery, expertise, and empowerment, and most often, hope.

5. Enrichment and Bereavement Program

Our Enrichment and Bereavement Program is two-fold and reaches patients and their families.  Providing enrichment items, field trips, holiday meals, concert tickets and more lets patients know they are cared for.  Patients find encouragement to continue their efforts at living as well as they can for as long as they can.
 
Enrichment items are provided to support group members throughout the year to let patients know they are cared for, not forgotten and are encouraged to continue their efforts at living as well as they can for as long as they can.  Our enrichment programs allow patients to express their experiences creatively and therapeutically, and include field trips, gatherings, concert tickets and gift cards.
 
Our bereavement services provide for mercy meals for the support group members attending funeral services for a lost member of the group, memorial gifts for the families of support group members who have passed to let them know their loved ones are not forgotten, and a family event to take time and honor their loved ones.
Budget  $3,017.00
Category  Diseases, Disorders & Medical Disciplines, General/Other Cancer
Population Served People/Families of People with Health Conditions Adults Children and Youth (0 - 19 years)
Program Short-Term Success  As our patients have traversed the scary and unpredictable terrain of breast cancer, we have remained a constant presence that can be counted upon for our support groups and programs.  We continue to offer enrichment items throughout the year, bereavement recognition events including shared meals, and gifts to family members when their loved one's have passed, and annually in memory so they know their loved one hasn't been forgotten.  We are present and will continue to be.  We hear from patients, support group members and their families that our services are helping them during the most difficult times of their lives.
Program Long-Term Success 
Our enrichment and bereavement programs are well-received by patients, their support systems and the community.  People are amazed that we offer what we do throughout the entire experience of breast cancer from diagnosis to after the end-of-life.
 
Our organization feels that patients and their support systems should be well-cared for, never forgotten and encouraged to continue on in their battle and have their needs met even when the battle is through.  We remain committed to being the organization offering these services in northeastern Massachusetts for those from the Merrimack Valley, the North Shore and southern New Hampshire.
Program Success Monitored By  Our patient, family member and community feedback has guided us to respond to requests for enrichment and bereavement services.  We hear  reports of the effectiveness of our programs in letting people know they are cared about, are important, are encouraged to do their best, and always remembered.
Examples of Program Success  An example of our enrichment and bereavement program success is the number of thank you cards our organization receives from patients, their support system members and communities for offering these services.  At wakes and funerals, family members frequently report to the facilitator and support group members in attendance that our support groups and programs their loved ones participated in made enormous positive differences in their lives and they are eternally grateful their loved ones had these opportunities. 

CEO/Executive Director/Board Comments

Our foundation reaches patients, and their families directly with FREE programs and services. Our goals are to promote quality of life and emotional well-being in our patients through our support groups, services and programs. When the patient is empowered, their family members, children and caregivers are positively affected, as well, and our goal is to fully expand our programs to this population. Studies have shown that support groups and wellness activities have a positive effect on longevity in breast cancer patients.

Management


CEO/Executive Director Ms. Kayla St. Pierre
CEO Term Start Mar 2018
CEO Email [email protected]
CEO Experience Kayla is the daughter of Heather LoRe, the founder of the Hope and Friendship Metastatic Breast Cancer Foundation. After experiencing the effects that Metastatic Breast Cancer has had on her family, she joined the Board of Directors to help those with metastatic breast cancer live their lives comfortably and with purpose. Ms. St. Pierre served as the Clerk of the foundation for five years and in 2018 took on the role of President. She is a Registered Nurse and holds Bachelor’s of Science degrees in both Nursing and Psychology. Kayla is a survivor of bacterial meningitis and also devotes time to raising awareness of the disease and the importance of vaccination.
Co-CEO Mr. Brian Twomey
Co-CEO Term Start Mar 2018
Co-CEO Email [email protected]
Co-CEO Experience --

Former CEOs and Terms

Name Start End
Heather LoRe Nov 2012 Mar 2018
Ms. Kayla Richburg Mar 2014 Mar 2018

Senior Staff

Name Title Experience/Biography
Lianne Bishop Board Member --
Charles Drapala Board Member --
Anthony LoRe Board Member --
Heather LoRe Clerk --
Mary McDonough Board Member --
Ashley O-Neil Board Member --
Marissa Reese Treasurer --
Judy Reynolds Board Member --
Kayla Richburg Board Member --
Brian Twomey Vice-President --

Awards

Award Awarding Organization Year
Difference Maker of the Week Marco Promos 2018
Risa S. Rosengard Grant Risa S. Rosengard Foundation 2017
Charity Girls North Shore Grant Charity Girls 2016
$100K for 100 Cummings Foundation, Inc. 2015
Healthcare-Related Charitable Support Genentech, Inc. 2015

Affiliations

Affiliation Year
-- --
Member of state association of nonprofits? No
Name of state association --

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

For our Fall Retreat 2018, we collaborated with Looking and Feeling Fab, Inc. who provided oncologically trained massage therapists, reflexologists and aestheticians to provide FREE treatments to our support group members.  Looking and Feeling Fab, Inc. also provided FREE samples of oncologically safe skin care products to our support group members.

CEO/Executive Director/Board Comments


Foundation Comments

--

Staff Information

Number of Full Time Staff 0
Number of Part Time Staff 0
Number of Volunteers 20
Number of Contract Staff 3
Staff Retention Rate % 100%

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 23
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 20
Male: 3
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Yes
Organization has Strategic Plan? Under Development
Years Strategic Plan Considers --
Management Succession Plan Yes
Business Continuity of Operations Plan No
Organization Policies And Procedures Yes
Nondiscrimination Policy Yes
Whistle Blower Policy No
Document Destruction Policy No
Directors and Officers Insurance Policy No
State Charitable Solicitations Permit Yes
State Registration Yes

Risk Management Provisions

Commercial General Liability

Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency N/A N/A
Senior Management Formal Evaluation and Frequency N/A N/A
Non Management Formal Evaluation and Frequency N/A N/A

Governance


Board Chair Ms. Kayla St. Pierre
Board Chair Company Affiliation President
Board Chair Term Mar 2018 - Mar 2019
Board Co-Chair Brian Twomey
Board Co-Chair Company Affiliation Vice-President
Board Co-Chair Term Mar 2018 - Mar 2019

Board Members

Name Company Affiliations Status
Lianne Bishop Director Voting
Charles Drapala Director Voting
Anthony LoRe Director Voting
Heather LoRe Clerk Voting
Mary McDonough Director Voting
Ashley O'Neil Director Voting
Marissa Reese Treasurer Voting
Judy Reynolds Director Voting
Kayla Richburg Director Voting
Kayla St. Pierre President Voting
Brian Twomey Vice-President Voting

Constituent Board Members

Name Company Affiliations Status
Heather LoRe Clerk Voting

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
-- -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 11
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): 0
Gender Female: 8
Male: 3
Not Specified 0

Board Information

Board Term Lengths 1
Board Term Limits 5
Board Meeting Attendance % 71%
Written Board Selection Criteria Yes
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 50%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation Yes

Standing Committees

    --

CEO/Executive Director/Board Comments

Upcoming standing committees will include a whistle blower policy committee, a document destruction policy committee and a strategic planning committee.  

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2017 (%)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Fiscal Year Jan 01, 2017 to Dec 31, 2017
Projected Income $90,000.00
Projected Expense $45,000.00
Form 990s

2017 Form 990

2016 Financial Data per Nonprofit

2015 Financial Data per Nonprofit

Audit Documents

2017 Financial Statements

IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2017 2016 2015
Total Revenue $270,571 $39,913 $38,293
Total Expenses $43,357 $34,716 $31,041

Prior Three Years Revenue Sources

Fiscal Year 2017 2016 2015
Foundation and
Corporation Contributions
-- $10,000 $6,667
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $263,609 $24,645 $29,068
Indirect Public Support $6,562 $5,268 $1,338
Earned Revenue $400 -- --
Investment Income, Net of Losses -- -- --
Membership Dues -- -- --
Special Events -- -- $1,220
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2017 2016 2015
Program Expense $42,026 $30,579 $25,896
Administration Expense $1,023 $4,117 $3,595
Fundraising Expense $308 $20 $1,551
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 6.24 1.15 1.23
Program Expense/Total Expenses 97% 88% 83%
Fundraising Expense/Contributed Revenue 0% 0% 4%

Prior Three Years Assets and Liabilities

Fiscal Year 2017 2016 2015
Total Assets $251,575 $20,520 $15,323
Current Assets $250,701 $20,520 $15,323
Long-Term Liabilities $0 $0 $0
Current Liabilities $0 $0 $0
Total Net Assets $251,575 $20,520 $15,323

Prior Three Years Top Three Funding Sources

Fiscal Year 2017 2016 2015
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value --
Spending Policy Income Only
Percentage(If selected) --
Credit Line No
Reserve Fund No
How many months does reserve cover? --

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? No

Short Term Solvency

Fiscal Year 2017 2016 2015
Current Ratio: Current Assets/Current Liabilities -- -- --

Long Term Solvency

Fiscal Year 2017 2016 2015
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

--

Foundation Comments

Financial summary data in the charts and graphs above is per the organization's IRS Form 990 for FY17 and per the organization for FY16 and FY15. Contributions from foundations and corporations are listed under individuals when the breakout was not available.

Documents


Other Documents

No Other Documents currently available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

The Hope and Friendship Metastatic Breast Cancer Foundation fills substantial gaps in services to breast cancer patients, and their families, in northeastern Massachusetts, the Merrimack Valley, and southern New Hampshire.  Our organization offers FREE support groups, scholarships, creative retreats, symptom management therapies, enrichment, and bereavement programs.  Having breast cancer is emotionally and physically crippling, as well as financially burdensome to patients and their families.   
 
Our patients learn how to manage their disease, treatments, and side effects; mobilize their support systems; become self-advocates; become empowered against this increasingly prevalent disease; and, in the process, find hope and friendship.  Health care providers, family members, loved ones, and community members are pleased to be able to refer patients to our FREE programs.  Patients, their loved ones and the local communities report the positive impacts our programs have on their health and well-being.  
 
Breast cancer is the second leading cause of death of women in the US.  A woman's chance of getting breast cancer is 1 in 8.  A man's chance of getting breast cancer is 1 in 1,100.  For those diagnosed with breast cancer at an early stage, 1 in 3 (30%) will progress to metastatic (Stage IV) terminal breast cancer.  Lives are dramatically shortened as 50% will die in the first 2-3 years and 78% will die within 5 years.  Women and men are being diagnosed at younger ages than ever before.  There is no cure for metastatic breast cancer and patients are in treatment for the rest of their lives.  
 
Patients are grateful that our FREE programs are provided in a local, convenient and welcoming setting, separate from the hospital. The patients' families, caregivers, loved ones and communities find comfort in knowing that their loved one is being embraced and cared for.  We receive frequent requests to provide programs directly to the patients' families and caregivers as these groups are overwhelmed, devastated, exhausted and distraught due to their loved one's diagnosis of breast cancer.  
 
In 2018, our organization hopes to receive the necessary funding to expand our programs to caregivers, families, children and communities of those with breast cancer.  The success of our programs will be determined by the numbers of engaged and renewing participants; personal and professional referrals; committed volunteers; qualitative and quantitative data assessments, and analyses; and, increasing self-sufficiency of the organization over the next 5 years.
 
Outcome indicators of our programs include:  data collected at upon registration, at the beginning, and at the end of our programs.  Data is analyzed and our programs are updated, improved and new data collection and analyses are undertaken to evaluate the effectiveness of change.  Evaluating increases in self-sufficiency will be performed utilizing a non-profit self-sufficiency assessment tool with improvements implemented and re-assessed for effectiveness.

2. What are your strategies for making this happen?

For over 6 years, our foundation has been meeting the needs of breast cancer patients successfully with the FREE support groups and programs we offer.  We are focused on building off of our effective strategies to take the next natural step of expanding our programs to families, caregivers, and communities affected by breast cancer.  
 
Our strategies are multiple:
 
1.  Have a strong, all volunteer board engaged and committed to our mission and meeting the needs of our clients as they grow and develop.
 
2.  Have educated and experienced facilitation consultants.
 
3.  Increase our base of volunteers, fundraisers, grant writers and long-term corporate relationships to support the costs of our programs and self-sufficiency.
 
4.  Perform data collection, update and improve programs based on analyses, and then re-evaluating for change effectiveness.
 
5.  Create a strategic planning committee. 

3. What are your organization’s capabilities for doing this?

Our organization is uniquely capable to continue offering our services to patients and to expand our programs to the caregivers, families, children, and communities because we have been doing it efficiently, effectively, uniquely, and successfully for over 6 years.  We are committed to the residents in northeastern Massachusetts, the Merrimack Valley, the North Shore and southern New Hampshire for the long-term. 
 
Our desires to expand are natural.  We have found that by helping patients, their support systems and the communities also benefit.  We anticipate that meeting the needs of the caregivers, families, children and communities, our reach will close the gaps in services.  Our expansion goals are based on the requests from our patients and those in substantial need.
 
Our capabilities:
 
1. Over 6 years of experience offering our efficient, effective and successful patient support groups, scholarships, symptom management treatments, retreats, enrichment, and bereavement programs.
 
2.  A strong base of  volunteer board members, community members and professionals committed to assisting our foundation in running our programs.  
 
3.  Breast cancer is, unfortunately, so common that most of our board members, fundraising committee volunteers, community volunteers, and facilitation consultants have had first-hand experience themselves, or with friends, family, neighbors or colleagues who have or who have had breast cancer and we find they are sincerely committed to our mission.
 
4.  We have a comprehensive contact list, networking resources and  universal multi-media marketing access for community outreach and spreading the word as we expand our programs.
 
5.  Our services are FREE and open to all regardless of age, gender, race, color, national origin, sexual orientation, marital status, disability, religion, ethnicity, economic status, or any other characteristic protected by law.
 
6.  Our current support groups and programs are well-known and considered to be providing significant services in areas of great need and the demands for expansion are so frequent.

4. How will your organization know if you are making progress?

Our facilitation consultant will be confidentially collecting quantitative and qualitative data indicators, analyzing the results to evaluate the efficiency, effectiveness and successes of our support groups and programs, and then meeting with the board with updates and requested improvements.
 
We will be evaluating:
 
1. Reach--determining the numbers and demographics of participants in each program; the number of referrals from health care providers; and, the number of fundraising committee and community volunteers engaged and committed to our organization and service (Who are we reaching and where can we do better?).
2. Quality--completion of surveys at the beginning and at the end of each program offered (What are the percent increases in participants' improvements in attitudes, knowledge and readiness to take take on the tasks required?).
3.  Utilization--determining the attendance rates at each program, percentage of participants renewing in a program, percentage of participants enrolling in multiple programs, referral rates when performing intake on new attendees (Are support groups and programs well-attended, renewed, are participants enrolling in multiple programs, and are attendees referring new participants?).
4.  Community involvement--determining numbers of community members engaging in volunteer, fundraising and educational opportunities; completion of surveys at the beginning and end of each program; and, determine desire to continue participation (is the community involved and learning from the activities and ready to re-engage?).
 
***Our preference is to perform these surveys using online survey tools to prevent the use of paper products and the creation of waste.

5. What have and haven’t you accomplished so far?

The Hope and Friendship Metastatic Breast Cancer Foundation has been successfully enhancing and improving the lives of women and men with a diagnosis of breast cancer.  We offer FREE support groups and programs offering patients hope, friendship, empowerment, advocacy, resources for learning, networking opportunities, therapeutic activities, symptom management strategies, scholarships and creative retreats.  We have been accomplishing this in a setting where large gaps in services for breast cancer exist, in northeastern Massachusetts. 
 
Our breast cancer support groups have been meeting every other week since 2010.  Our non-profit 501(c) (3) all volunteer organization was established in 2012 so that we could increase our support groups and programs to address additional needs as identified by the patients and the support group facilitation consultant. 
 
Overwhelmingly, our patient participants report that the experience provides:  decreased feelings of anxiety, fear and isolation; better coping skills for managing a cancer diagnosis and its impact on daily life; improved relationships with family members and friends; increased abilities to manage their breast cancer, including the latest treatments, clinical trials and related side effects; opportunities to relax, laugh, cry and play in a safe and supportive environment; new friendships; and hope for the future.
 
In 2014 alone, our foundation covered the costs of 24 support group meetings with a facilitation consultant present; provided 3 scholarships for patients to attend national breast cancer conferences; covered the costs of symptom management strategies including massages, reflexology, acupuncture, muscle relaxation and yoga; provided a often requested field trip to a hospice house; covered the costs of a retreat on the often requested "5 Wishes--Dying with Dignity" national workshop; a holiday concert and luncheon; a bereavement luncheon after a member passed; the purchase of a portable wheelchair ramp for immediate use by patients when they need it; enrichment gifts; and 40 chaplaincy consultant hours.
 
Our support group members renew their participation in our support groups and programs 95% of the time, refer patients to our support groups and programs, come up with ideas for meeting topics, are active participants in the meetings and programs offered over and again, spread the word about our services, join in the work of fundraisers if they are feeling well enough, freely share their stories of being in the support groups via multi-media venues, utilize our multi-media lending library services, become powerful self-advocates and masters of their illnesses, treatments, side effect management, and their lives.
 
What is next on the horizon for our organization is to expand our support groups and programs to caregivers, families, children and communities. We will again be filling a substantial gap that exists in northeastern Massachusetts.