Share |

Live 4 Evan, Inc. (Live for Evan)

 PO Box 845
 Hopkinton, MA 01748
[P] (774) 270-4742
[F] --
www.Live4Evan.org
Jack.Nealon@Live4Evan.org
Jack Nealon
Facebook Twitter
INCORPORATED: 2014
 Printable Profile (Summary / Full)
EIN 46-1948281

LAST UPDATED: 10/26/2018
Organization DBA Live4Evan
Former Names --
Organization received a competitive grant from the Boston Foundation in the past five years No

Summary


Mission StatementMORE »

Live4Evan, Inc. is a 501(c)(3) nonprofit organization with the mission to provide temporary housing for families of children with congenital heart disease to create a world where children receive cardiac care with their families by their side.

Mission Statement

Live4Evan, Inc. is a 501(c)(3) nonprofit organization with the mission to provide temporary housing for families of children with congenital heart disease to create a world where children receive cardiac care with their families by their side.

FinancialsMORE »

Fiscal Year Jan 01, 2018 to Dec 31, 2018
Projected Income $145,000.00
Projected Expense $140,000.00

ProgramsMORE »

  • Live4Evan Housing Program

Revenue vs. Expense ($000s)

Expense Breakdown 2017 (%)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

For more details regarding the organization's financial information, select the financial tab and review available comments.


Overview

Mission Statement

Live4Evan, Inc. is a 501(c)(3) nonprofit organization with the mission to provide temporary housing for families of children with congenital heart disease to create a world where children receive cardiac care with their families by their side.

Background Statement

Live4Evan is led and operated by exceptionally passionate people who have personally experienced the challenges and uncertain futures of having a child with a congenital heart defect, the most common birth defect in America.

Live4Evan is named after Evan Girardi, an incredible young man who died from a heart arrhythmia during his senior year at college. Rather than allow Evan’s passing to put an end to his tremendous legacy, his friends and family formed Live4Evan to serve as a testament to the power of relationships and the importance of having loved ones by your side. Evan’s parents serve on the Board, and his dearest friends now lead day to day operations. Live4Evan truly understands firsthand the importance of staying by a child’s side without having to worry about additional burdens that life can bring.


Impact Statement

A warm bed. A hot meal. A toothbrush. These are just a few comforts of home - things we take for granted each day. Live4Evan believes in the power of these seemingly insignificant items to uplift families while they are away from home for medical treatment, easing the burdens they will inevitably face.

Since March 2016 Live4Evan has provided a fully equipped home-away-from-home to over 20 families from ten different states, and several countries. In addition to a safe and comfortable living space, families are surrounded with an incredible support network, and are given all the provisions needed to maintain a sense of ‘home’.


Needs Statement

Congenital heart defects are the leading birth defect, affecting 1/100 births. Boston is home to multiple world-class medical institutions which are leaders in treating pediatric heart abnormalities. For this reason, thousands of families leave home and journey to Boston for medical care each year. The duration of treatment can be unpredictable, ranging from a few weeks to several months.

Housing in Boston is difficult to find, expensive to secure and a major source of stress for families in already stressful circumstances. Through its independent apartment, located in close proximity to Children's Hospital, Live4Evan provides temporary housing and all the comforts of home for these families. This support allows parents to focus their full attention on their child, with a safe and secure home-away-from-home. With additional support, Live4Evan can expand the number of apartments available to families.


CEO Statement

--

Board Chair Statement

--

Geographic Area Served

INTERNATIONAL
NATIONAL
Access to the Live4Evan Housing Program is open to any family traveling further than 50 miles to Boston for congenital heart care for their child, with an anticipated stay of two weeks or longer.

Organization Categories

  1. Housing, Shelter - Housing Support
  2. Human Services - Human Services
  3. Health Care - Patient & Family Support

Independent research has been conducted on this organization's theory of change or on the effectiveness of this organization's program(s)

Yes

Programs

Live4Evan Housing Program

Temporary housing in the Live4Evan Housing Program is available to any family traveling further than 50 miles to Boston for congenital heart care for their child, with an anticipated stay of greater than two weeks.
Budget  $40,000.00
Category  Housing, General/Other
Population Served Families
Program Short-Term Success 

For each additional apartment that Live4Evan is able to add to its Housing Program, the following objectives and success criteria apply:

1. Objective: Increase number of families served

Success criteria: Serve at least eight new families per apartment, per year

2. Objective: Reduce stress among families
Success criteria: 80% of clients will report feelings of confidence, reduced anxiety, etc. after going through the Live4Evan Housing Program

3. Objective: Serve as a resource/support families through the process

Success Criteria: 80% of clients will report feeling connected to and supported by Live4Evan

Program Long-Term Success  Through its mission to provide temporary housing for families of children with congenital heart disease, Live4Evan has a vision to create a world where children receive cardiac care with their families by their side, free of the external stress and worry of securing and affording housing.
Program Success Monitored By 

To measure the Success Criteria listed above, a comprehensive evaluation plan exists consisting of both quantitative and qualitative data:

a. post-experience survey consisting of Likert scale items and open ended response items to assess Live4Evan’s effectiveness at reducing stress and serving as a resource for families

b. count and track demographic data, numbers served, home state, etc.

c. individual debrief sessions (interviews) with families upon leaving the Live4Evan apartments

Examples of Program Success 
Direct feedback from our patient families sums it up best...
 
"Live4Evan fills this hole that is so important that can keep families together and can keep them going when they are under extremely stressful, intense situations."  Erica Schultz, Live4Evan patient family
 
"Live4Evan is doing something that so many families like us need in that, yes, we need a place to stay, but we also need to feel like there are people walking through life with us."  Antonetta DePietro, Live4Evan patient family 

CEO/Executive Director/Board Comments

--

Management


CEO/Executive Director Mr. Jack Nealon
CEO Term Start Sept 2014
CEO Email Jack.Nealon@Live4Evan.org
CEO Experience --
Co-CEO --
Co-CEO Term Start --
Co-CEO Email --
Co-CEO Experience --

Former CEOs and Terms

Name Start End
-- -- --

Senior Staff

Name Title Experience/Biography
-- -- --

Awards

Award Awarding Organization Year
-- -- --

Affiliations

Affiliation Year
-- --
Member of state association of nonprofits? No
Name of state association --

External Assessments and Accreditations

External Assessment or Accreditation Year
-- --

Collaborations

Live4Evan collaborates with social workers at Boston Children's Hospital and Tufts Medical Center to provide housing for families in need.

CEO/Executive Director/Board Comments

--

Foundation Comments

--

Staff Information

Number of Full Time Staff 0
Number of Part Time Staff 1
Number of Volunteers 50
Number of Contract Staff 0
Staff Retention Rate % --

Staff Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 1
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 1
Male: 0
Not Specified 0

Plans & Policies

Organization has Fundraising Plan? Under Development
Organization has Strategic Plan? Yes
Years Strategic Plan Considers 4
Management Succession Plan No
Business Continuity of Operations Plan No
Organization Policies And Procedures Under Development
Nondiscrimination Policy No
Whistle Blower Policy No
Document Destruction Policy --
Directors and Officers Insurance Policy Yes
State Charitable Solicitations Permit --
State Registration --

Risk Management Provisions

--

Reporting and Evaluations

Management Reports to Board? Yes
CEO Formal Evaluation and Frequency No N/A
Senior Management Formal Evaluation and Frequency No N/A
Non Management Formal Evaluation and Frequency No N/A

Governance


Board Chair Mr. Jack Nealon
Board Chair Company Affiliation Live4Evan
Board Chair Term Sept 2014 -
Board Co-Chair --
Board Co-Chair Company Affiliation --
Board Co-Chair Term -

Board Members

Name Company Affiliations Status
Mrs. Barbara Girardi Ashland Public Schools Voting
Mr. Michael Girardi Hamilton Storage Voting
Mr. Dave Krueger Dietz & Watson Voting
Mr. Shane Lavoie Amundi Pioneer Voting
Mr. Gary MacDonald Consultant Voting
Ms. Whitney Mullen Diageo Voting
Mr. Jack Nealon MassHeartbeat Voting
Mr. Rick Odell Police Officer Voting
Mr. Shawn Ryan BGR Hospitality Voting

Constituent Board Members

Name Company Affiliations Status
-- -- --

Youth Board Members

Name Company Affiliations Status
-- -- --

Advisory Board Members

Name Company Affiliations Status
-- -- --

Board Demographics

Ethnicity African American/Black: 0
Asian American/Pacific Islander: 0
Caucasian: 9
Hispanic/Latino: 0
Native American/American Indian: 0
Other: 0
Other (if specified): --
Gender Female: 2
Male: 7
Not Specified 0

Board Information

Board Term Lengths 3
Board Term Limits --
Board Meeting Attendance % 95%
Written Board Selection Criteria Under Development
Written Conflict Of Interest Policy Yes
Percentage of Monetary Contributions 50%
Percentage of In-Kind Contributions 100%
Constituency Includes Client Representation No

Standing Committees

  • Board Governance
  • Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
  • Finance
  • Marketing
  • Operations

CEO/Executive Director/Board Comments

--

Foundation Comments

--

Financials


Revenue vs. Expense ($000s)

Expense Breakdown 2017 (%)

Expense Breakdown 2016 (%)

Expense Breakdown 2015 (%)

Fiscal Year Jan 01, 2018 to Dec 31, 2018
Projected Income $145,000.00
Projected Expense $140,000.00
Form 990s

2017 Form 990

2016 Form 990

2015 Form 990

2014 Form 990

Audit Documents --
IRS Letter of Exemption

IRS Letter of Determination

Prior Three Years Total Revenue and Expense Totals

Fiscal Year 2017 2016 2015
Total Revenue $103,224 $67,662 $31,565
Total Expenses $95,326 $50,303 $20,457

Prior Three Years Revenue Sources

Fiscal Year 2017 2016 2015
Foundation and
Corporation Contributions
-- -- --
Government Contributions $0 $0 $0
    Federal -- -- --
    State -- -- --
    Local -- -- --
    Unspecified -- -- --
Individual Contributions $109,030 $56,411 $37,840
Indirect Public Support -- -- --
Earned Revenue -- -- --
Investment Income, Net of Losses $30 $29 $13
Membership Dues -- -- --
Special Events $-5,836 $11,222 $-6,288
Revenue In-Kind -- -- --
Other -- -- --

Prior Three Years Expense Allocations

Fiscal Year 2017 2016 2015
Program Expense $60,680 $39,625 $12,245
Administration Expense $34,646 $10,678 $4,220
Fundraising Expense -- -- $3,992
Payments to Affiliates -- -- --
Total Revenue/Total Expenses 1.08 1.35 1.54
Program Expense/Total Expenses 64% 79% 60%
Fundraising Expense/Contributed Revenue 0% 0% 13%

Prior Three Years Assets and Liabilities

Fiscal Year 2017 2016 2015
Total Assets $83,585 $75,687 $58,328
Current Assets $83,585 $75,687 $58,328
Long-Term Liabilities $0 $0 $0
Current Liabilities $0 $0 $0
Total Net Assets $83,585 $75,687 $58,328

Prior Three Years Top Three Funding Sources

Fiscal Year 2017 2016 2015
1st (Source and Amount) -- --
-- --
-- --
2nd (Source and Amount) -- --
-- --
-- --
3rd (Source and Amount) -- --
-- --
-- --

Financial Planning

Endowment Value --
Spending Policy N/A
Percentage(If selected) --
Credit Line No
Reserve Fund Yes
How many months does reserve cover? 6.00

Capital Campaign

Are you currently in a Capital Campaign? No
Capital Campaign Purpose --
Campaign Goal --
Capital Campaign Dates -
Capital Campaign Raised-to-Date Amount --
Capital Campaign Anticipated in Next 5 Years? No

Short Term Solvency

Fiscal Year 2017 2016 2015
Current Ratio: Current Assets/Current Liabilities inf inf inf

Long Term Solvency

Fiscal Year 2017 2016 2015
Long-term Liabilities/Total Assets 0% 0% 0%

CEO/Executive Director/Board Comments

--

Foundation Comments

Financial summary data in the charts and graphs above is per the organization's IRS Form 990-EZs with additional functional expense breakout detail per the Form PCs on file with the state of MA. Contributions from foundations and corporations are listed under individuals when the breakout was not available.

Documents


Other Documents

No Other Documents currently available.

Impact

The Impact tab is a section on the Giving Common added in October 2013; as such the majority of nonprofits have not yet had the chance to complete this voluntary section. The purpose of the Impact section is to ask five deceptively simple questions that require reflection and promote communication about what really matters – results. The goal is to encourage strategic thinking about how a nonprofit will achieve its goals. The following Impact questions are being completed by nonprofits slowly, thoughtfully and at the right time for their respective organizations to ensure the most accurate information possible.


1. What is your organization aiming to accomplish?

The goal of Live4Evan is to provide a home-away-from-home for families traveling further than 50 miles to Boston for congenital heart care for their children, at no cost to the family.  Live4Evan envisions a world where children receive cardiac care with families by their side, free of the stress of securing and affording housing.  

2. What are your strategies for making this happen?

Through events, sponsorships, and grants, Live4Evan strives to secure additional funding which will allow the organization to increase the number of apartments it is able to lease each year.

3. What are your organization’s capabilities for doing this?

Live4Evan has demonstrated capability in providing housing for families.  The organization has done a great deal of strategic planning, created structural operational procedures, and developed a blueprint for expanding its capacity.  Live4Evan is poised for rapid growth in the number of apartments it can manage and, consequently, the number of families it can support. 

4. How will your organization know if you are making progress?

Live4Evan measures progress one family at a time.  Each family is special to the organization, and the Board is very engaged in supporting the family throughout their stay.  Communications with each family is ongoing throughout their stay, and a follow up satisfaction survey is sent to each family upon their return home.  The results of the surveys are closely evaluated to make continual improvements to the program.

5. What have and haven’t you accomplished so far?

Since March, 2016, Live4Evan has provided a fully equipped home-away-from-home for over 20 families from 10 different states and 2 foreign countries.  In addition to a safe and comfortable living space, families are surrounded with an incredible support network, and are given provisions needed to maintain the comforts of home.  The cost of the equivalent number of nights in a hotel would exceed $90,000 annually.  

 Each year, more than 350 cardiac families who apply for housing through Boston Children's Hospital are not able to be accommodated, due to space constraints.  Although Live4Evan has been able to provide housing for several of those families, the need for housing continues to far outstrip the supply.  Live4Evan strives to close that gap through its Housing Program.